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Showing content with the highest reputation on 02/12/2023 in Posts

  1. Hello folks Happiness remains true to me. A few more days then I'm painless for 12 months And I weigh 92kg. 3 cigarettes a day and the rest is steamed. Pantoprazole is still in the drawer and sleeps. Greetings and pain free time
    2 points
  2. That was the sagest of advice as usual from @CHfather - certainly lots of us have armed ourselves with various combos of the above when in cycle and hitting the road. O2 E tanks have enjoyed some real popularity as vehicle companions. In a mid-shopping scenario like that, you might drop everything and down an energy shot while beelining it to the car with Sophie, where you'd be hitting the O2 ASAP. There was one clusterhead who was a patrol officer, driving in the car all day, who for many years had an E tank outfitted with a demand valve in the trunk at all times, and the way I remember it, he was consistently able to abort every single attack that tried to rear up whenever he was on duty.
    1 point
  3. Wow, so sorry that happened. Thank god you made it home, indeed. Horrible. Of course, it's an important reminder to everyone to "don't leave home without it," the "it" being whatever will help you out in that situation, from a small O2 setup in the car to a 5-Hour Energy in the pocket or purse to whatever emergency abortive you have (Imitrex, Zomig, etc.).
    1 point
  4. I so understand how this could be a favorite as I have a hard time believing that there is a Cluster Head out there that hasn't had this awful thought plague there mind. Sometimes it's hard (especially in the beginning) to imagine living forever this way. As for tracking meds and attacks, I initially used my outlook email calendar. I still shake my head when looking back and seeing my loggings of migraine. I no longer track the attacks as they have continued to morph, making tracking somewhat silly. There is something to be said about a diligent documenter and has proven helpful for some in the past. I now focus on things like supplement packaging, dosing levels and odd happenstances like warning signs as well as the last time I ingested something outside of pharma. Excel is a great tool as you can easily auto sum or create neat formulas like (cell such and such equals this or that). Now days I try and pre-package everything from morning intake, evening intake and for fuc8ks sake intake. It just makes my life a bit easier being able to grab a baggie although I do get the odd looks at Michael's craft store when buying out the small sized drug looking baggies...
    1 point
  5. ...same here....but that was because every cycle/triggers/pattern was same for 23 yrs when ECH. for me pointless, but still believe can be a valuable tool to detect subtleties of importance... ....seems we have discussed this a few times and i thought there was a newer version of journaling, but the search function fails me....perhaps someone recalls that thread(s)? ....one of my favorite diagnostic stories...and i believe from National Migraine (now Headache) Foundation newsletter... was the physician who noted, and used in diagnosis: "boy, you folks (clusterheads) sure do seem to all journal, i see it consistently". it was kinda implied as an OCD component of CH that i really don't know is valid or not ¯\_(ツ)_/¯. but i agree, we do seem to have the need.... ....the other favorite was the physician who asked, and considered a definitive diagnostic indicator of CH, a positive response to the question: " have you thought/considered/contemplated suicide?" is called suicide HA for a reason, and i firmly believe an absolutely essential question for any diagnostician....sorry for the thread divert...am easily distracted... "
    1 point
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