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They tell me my flight over has activities available to help pass the time.

Thank you, Vajenna, yes I've tried all them techniques you mention and I can't fiddle about with my cylinder what so ever if I did it would probably blow my house up lol. I've seen these valves where you can up the Ltrs p. minute but look nothing like the one I have everything seems welded together. And once it peaks, there's no chance of me staying on it as I'm all over the place, banging, slamming, rocking, crawling, dunking my head in ice bucket. I'm like a possessed demon screaming and crying. I'm attending the Glasgow conference in 6 weeks I'm sure I'll get so much information and knowledge there. I'm new to this site and its been a god send I've learned more in 1 week than I have from all off my health care professionals. I wish you and all other sufferers well on our independent journeys to find what works for us all.

Now that thing is a new one to me....just a wild guess would be a very over engineered built in regulator. Ainsley could answer if DJ is sending any masks over for the UK conference. If nothing has been arranged, I would be glad to bring a few over if a need exists. Knowing that any built-in regulator I've seen from the UK has a 15lpm max flow, I've sourced some "Y" connectors and some short tubing for a work around for those that want a higher flow than 15lpm. If one has access to more than one tank it will increase flow to your mask. Referencing the picture below, you'll find it's rather simple. Hook to both tanks and regulate the flow as needed. I plan to bring some of these to the UK, but the\ parts are available on Amazon for a few bucks.

Lol no @Shaun brearleythats me planning the route to your place.. If I gotta fly in that thing your coming with me!!

@Roysterin my experience over the years, they will be available soon...usually not out of stock for long albeit they are quite expensive when going to other countries but even at $75, it would be worth it for me....been using them for close to 15 years...just retired my 1st a couple years ago!! The best feature for me is it comes with a mouthpiece....having anything touch my face during a hit just adds to the pain but the mouthpiece works great! One tip about O2 efficacy.....myself, Spiny and many others have found that incorporating caffeine into the mix enhances the efficacy of O2...I keep cup in the microwave, nuke it as soon as a hit starts, get on the O2 for a min then sip coffee and blow the steam on my affected eye for 30 secs and back on the O2....that coupled with years of busting have resulted in my being able to dispatch the vast majority of my hits to 5 min when a cycle does break thru! DD

@BoscoPiko checking out her route to Glasgow Airport .

A description of hyperventilation from an O2 expert (the ex fighter pilot you mention in another post, who is indeed a hero in this battle) is here: https://clusterbusters.org/forums/topic/4919-batchs-hyperventilation-red-neck-bag/ In essence, it's fast, deep inhales and exhales (each inhale/exhale taking three seconds). The recommended process in the file is 10 3-second inhale/exhales (30 seconds total) of room air, with a forceful "crunch" of the abdominal muscles at each exhale. The author of the file writes, "The exhale part of this procedure is important. Exhale rapidly until it feels like your lungs are empty... They're not. At this point you do the abdominal crunch and hold the chest squeeze until your exhaled breath makes a wheezing sound for a second then throw your shoulders back and inhale as deeply as possible then repeat the exhalation with a crunch in one fluid motion." After the 30 seconds of hyperventilation with room air, take a deep inhale of O2. Hold the O2 for 30 seconds, exhale forcibly, and do another 30-second cycle of 10 inhales/exhales. You should read the file so you fully recognize what's going on there. Are you able to post a photo of your mask? It has a bag that fills up with O2 before you inhale? It has two circles of holes, one or both of which have a white or green gasket on the inside of the mask, but the other is just open holes? (One thing you can do that might help a little is to cover those open holes with tape or with your thumb, because they let room air mix with the O2 you are inhaling.) Your O2 is in a canister/tank/cylinder? So glad you're going to the conference! Wish it was sooner. Have you tried any other strategies to manage the pain of your attacks? Can't even imagine having it on both sides. Some people find that standing in very hot water helps, with some variations from there (for example, some walk out into a cold room and the back into the tub, some get more immersed than just standing, some simultaneously put an ice pack on the head).

@Roysterhope to meet up my friend

I'm pretty sure all preventives/abortives are okay with the D3 regimen. Take verapmil as far apart as possible from the calcium (because verapamil is a calcium channel blocker). Be sure to cover those open holes in your mask. WOW! I'd love to know what that giant thing is on top of your tank! I get that it's a "regulator," but there has to be more than that going on. Maybe @Racer1_NC knows. I wonder whether there might be some of the green masks (the ClusterO2 Kit) available at the conference? That would be a good opportunity for them, and if they shipped a bunch or someone brought a bunch, maybe they could be less expensive?? Maybe you might contact the conference organizers and ask/suggest?? Another thing popularized by Batch, as an abortive, is to give yourself "brain freeze" by getting something very cold to the roof of your mouth, such as an ice cube. Since you have that bucket there already, maybe give it a try??

I get it! Distractions are welcomed in the CH world but I'm a sissy when it comes to molten lava coffee (the kind that leaves your taste buds dead anyway)

Thanks CHFATHER, seems a bit complicated I think i will try and get a demo of someone at Glasgow (will you be going?). Another thing is I've noticed the 3ltr mask(green) is better I've tried to order of clusterheadaches.com but they haven't any in stock, they don't sell them on amazon in the u.k but do in other countries but works out with shipping to be about 75 dollars and I'm unsure whether the tubing, connections are different ( I've attached some photos of mine).So I'm going to phone ouch uk today. Also I would like to increase the flow to 25 or more but I don't think I could fit a regulator on these. I haven't tried the shower thing as mine peak within minutes if I don't take sumatriptan. I do however have at the ready a large bucket filled with water and at the onset empty ice into it and dip my head in until my head is at the point of freezing, which does counter act the pain of the cluster some what, but honestly I don't think it changes the duration time, or actually does anything it's something I've always done in a bad cluster as my head and body gets awfully hot. I've managed to plead and get a small course of prednisone and what a difference less than a day has made, I almost feel human again. Also I've started the D3 regime that batch(fighter pilot) discovered, such a clever man. But going to hold back for now until this cycle isn't so bad, because I believe its the same as vit m & vit L in that you can't take preventative or abortive. Thank you for all your help & advice and I hope I will see you in Glasgow.

Woo not me I take the pain of the hot coffee as a great distraction.

Do you drink caffeine at the same time? I find oxygen works best with an energy drink or I prefer a screaming hot cup of strong coffee. I also use a 15 lpm regulator. I have one that goes to 25, I bought it on Amazon and you might be able to do the same (I’m in the US so not sure on this). I personally am afraid to use it because my oxygen company was very clear about not using anything except what they give me and if they ever found out and I lost the tank I would be in shambles. I find I have to stand to get the oxygen to work well. Deep breathing using my diaphragm to empty the entire bags worth of o2 deep into my lungs and then slowly exhale trying to match the speed of the bag refilling. And at the end I lean/crunch forward to try and push as much air out of my lungs as possible. This is what I finds works for me. Hopefully someone on here will chime in and link the video because I do believe there is a video somewhere of a breathing technique. Also time is of the essence. I can almost never get rid of one past a certain point either.

@suze hi there. that happened to me when I first started using it. Not sick though. Just shaky and dizzy. For me it was because I was so worried I wasn’t using it right, and wasting oxygen. It was an emotional experience. I don’t mean for that to sound dramatic but it was from having the tank in my house, to learning how to breathe with it. You’re not alone

This must have already been mentioned here, but I don't remember it. "As it turns out, animals and fungi share a common ancestor and branched away from plants sometime around 1.1 billion years ago. Only later did animals and fungi separate on the genealogical tree of life, making fungi more closely related to humans than plants." https://www.scienceabc.com/nature/how-are-mushrooms-more-similar-to-humans-than-plants.html For the scientifically literate: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC48023/#:~:text=This congruence among multiple lines,constitute an independent evolutionary lineage.