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I’m still alive! I was warned repeatedly that day 3 would be the worst day and so far they were right!!! I feel so awful today. And my face is so swollen! But I’m told I’ll start to feel better tomorrow. I’m tired of yogurt, and desperately want a burger!!! I feel a little depressed today in addition to the pain, it just feels like I’ve been in pain for so long, and now I’ll be in this pain for a while, and who knows after that! It feels like I will never be ok again. All my friends are getting married and I’m just on pause, in pain, maybe forever. I’m just like, when will my life begin?? (I’ve also been watching a lot of Disney.) My mom assures me that I will get better but it’s hard to believe that right now! while I have nothing to do but lay in bed and feel sorry for myself I have been thinking about what the neurologist said, and everything I have researched, and everything everyone here has said, and I don’t think I like him after all. so I requested another referral to a different one while I wait a year for the headache clinic. I have that appointment in December. I don’t think it’s a “sinus headache” and while I fully accept that my teeth and the infection were probably causing many of my problems, I think there has to be something else going on as well. Maybe he is right and it isn’t cluster headaches, but I think it’s something. I guess with the tooth issue (hopefully) resolved, it will be easier to figure out. I do have a friend who was getting horrific migraines due to her wisdom teeth so maybe, and apparently tension headaches can also be triggered by jaw issues. But the way it came on in hours long “episodes” multiple times a day is really throwing me off. If it was the teeth wouldn’t it have been 24/7?? My jaw pain was 24/7 but not the face pain. but if it WAS cluster headaches, it seems like the cycle is finally done. I’m still getting some light burning sensations on my cheek/eyebrow, but the doctors are telling me that’s infection or anxiety. But none of that horrible pressure pain. So at least there’s that. annoyingly, when you do have a diagnosed anxiety disorder, everybody wants to blame everything on that! anyway. Thanks for checking in!! Sorry for rambling!! I’ve only had my cat to talk to lol. Hopefully I will be fully recovered soon.

I will definitely try to get a second opinion. I’m on a wait list for a headache specialist, hopefully they will give me more answers!

I also feel ready to give up on doctors!! It’s been so hard to get anyone to listen to me. The first time I went to the er for this they told me I could have a brain tumour! And then said I’d have to wait 6-8 months for an mri to find out! I was terrified for weeks until I was able to see my family doctor who suggested cluster headaches. Luckily she is great, just hard to get an appointment with. I swear that er doctor gave me ptsd!! Why would you just jump right to the worst case scenario!?