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Showing content with the highest reputation on 01/29/2025 in all areas

  1. Hi everyone my name is Sade and I’ve been troubled with cluster headaches for the past 17 years and I just found a remedy that has been working for me. So ok I linked the histimine release that happens and they say contributes to our headaches so i decided to take PEPCID ✨ So I take 2 20 mg tablets of Pepcid and it’s been working wonders. Then I started using Tiger Balm, it attaches to the nerves and I guess confuses them and stops the pain ITS AMAZING so as soon as I feel the clusters coming on I run TIGER BALM on all areas effected and that usually allows me to get ahold of if… Oh and I turn my neck to the side and that gives ALOT of relief on the C2 and C3 on my neck. Now I do both and it knocks down my episodes down to almost none a day! I know it’s crazy but it’s working! I hope this helps someone! Please try Tiger Balm and Pepcid and let me know if it helps anyone!
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  2. Maybe someone will give this a try. Do you use the Pepcid as a preventive or to stop an attack that has already started? Just as a historical perspective, I will mention that the antihistamine Benadryl has often been shown to be quite effective, and the overall D3 regimen is also an antihistamine method. Pepcid works on different histamine receptors than Benadryl (Pepcid, H2; Benadryl, H1), and it does seem (to me) that Benadryl might get more effectively to pain sources, since Pepcid works mostly on gastric/digestive tract receptors. Regarding Tiger Balm, there has been discussion of it over the years, and several people have said that it gives them some pain "relief" by being unpleasant enough that it distracts them a bit from the CH pain. You can read input about this by putting "Tiger Balm" into the search bar that is at the top of any page. In your 17 years of CH, I assume you have, as people often say, "tried everything." Are you not using oxygen, or the D3 regimen, or anything besides Pepcid, Tiger Balm, and turning your neck to manage your attacks?
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  3. shaydaymayday, I don't know anything about pepcid, but thanks for posting. I'm sure many people know a lot more than me that might be able to duplicate your test. Cheers, J
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  4. I don't know if this can help Mike but I hope so. I was desperately trying to find a preventative that would work for me. I tried Emgality for 7 months and it just was not effective at all for me. I don't have anything bad to say but sadly it didn't help me. I had thought verapamil didn't work when I had stopped it at 360 earlier in my journey. I later read a medical paper that the therapeutic dose for chronic started at 480-600. I than started verapamil again and found 480 did help a small amount and was over overjoyed. I am on 720 (240 every 8 hours) currently and have nights now that I sleep. I still have attacks mostly at night but not every night. Perhaps a higher dose of verapamil may help you. Your doctor may find this is appropriate to try ? Good luck Mike
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