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Not sure if anyone is checking this thread, but wanted to say Thank You! to everyone who participated and organized the webinar last week. I was diagnosed with clusters in 2009 and had them for about 15 year before that. Failed multiple treatments, some with adverse effects. I didn't pursue any more treatments or engage with communities when I discovered hard cardio worked as an abortive for me. I just closed off and focused on that for years, but about 6 months ago I decided to see if anything changed. I live outside Philly and I'm fortunate to be in the Jefferson system. I've had my first course of Emgality, anxiously waiting for my second. Dr. Mccrea, your description of the pain cycle, or the thought process resonated strongly with my experience. Joe, your story is both heart breaking and inspiring, thanks for sharing it. And, Bob, thanks for creating this space for us. Thank you again,

...i can't speak to the connection of these phantom odors to hits or cycle except to say that for years i experienced similar. mine were burnt toast, manure, electrical fire, and a few others. my cycles were very close apart and it never seemed connected to cycle position or hit prodrome. as i recall these were random and "interesting". is also a symptom of other scary neurological maladies like MS...which i have been tested for multiple times (negative). that its a "tell" is actually a good thing for you... ...rapid change in barometric pressure...like hi to lo pressure weather wave was a guaranteed trigger for me and many others. re "noon", guessing your particular circadian rhythm... ...that there is WAY typical of CH...it would surprise if only occurring during these... .....boy howdy, YES! and mega congrats on off loading the monkey...from contacts and research it seems clusterheads are more prone to addictive behavior than "regular" citizens... best jon