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Showing content with the highest reputation on 03/06/2016 in all areas

  1. Thanks for the quotes and the links CHf! But that word "probably" sticks in my craw. And "Few, if any, medical disorders are more painful than cluster headache." is still not the definitive definition that I have heard touted so many times. I tried googleing "the most painful condition known to man" and got the Goadsby quotes, along with some links to things like "Ten most painful conditions", "Seven most painful conditions" & "Fourteen most painful conditions", in which all but one put CH at the top. The one that didn't put shingles as the most painful with CH second. No where could I find a credible doctor or researcher that made that absolutely strong statement. The phrase is bandied about so much that to me, it is concerning. Bobb
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  2. I think we are in agreement CHS, there are a lot of really bad painful things out there that can hurt us, but Clusters tend to top them all. And even though everyone has different pain thresholds, Clusters still come out on top and often by a considerable distance. I also agree that this is an important message to get across to people who don't have clusters, it's the vagueness of the wording that bothers me, and how it doesn't convey a complete picture of the Hell that comes with clusters. Try this scenario on for size. Let's suppose I'm an Astronomer, and I publish a discovery I just made, which is: 'Astronomers have just discovered the largest galaxy known to mankind. In fact, it is 4 times the size of the Andromeda Galaxy.' Now, as a non-astronomer reading that, I would think they found a pretty big circle of stars. But I have no concept at all how big the biggest galaxy is, or even how big the Andromeda Galaxy is. So the information doesn't really mean a lot to me. OK, it's the biggest. Cool. But, if they were to say, 'our galaxy is approx. 120,000 light years across, and Andromeda is 260,000 light years across - and this new galaxy is 4 times that big! It's 1,040,000 light years across!!' - now they are starting to put the size of the galaxy into some perspective. OK, I can't really grasp the distance of a light year, but I know it's a far bit. A quick Google search says it's about 5.9 trillion miles. It doesn't take much brain power for me to work out that I could line 8 Milky Ways up in a row, place them on top of this new fictional galaxy, and they still wouldn't touch the edges. NOW THAT'S BIG! Relating one person's pain to another person's pain is very difficult to do. We all experience pain differently and there is no level playing field. So trying to convey how painful a cluster attack is, is very difficult. But I don't think putting a vague statement out there is the best way of doing it. Especially when having the condition of cluster headaches involves so much more than just the pain. Just my 2 cents. Not trying to change the world. MG
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  3. Sorry I disagree Moxie, but we are all entitled to our opinions and I respect yours. I broke 6 bones in 6 weeks. All 6 combined wouldnt be a kip7. I tore all the ligaments and tendons in my ankle. now that friggin hurt. That might be a kip 7.5. I had brain surgery and the pain after felt like a truck ran over me in recovery. that hurt as well. Maybe, a kip 7.75. I know women who said they would rather have child birth every single day of their life without anesthesia than have 1 attack. I personally would rather have the most severe migraine for the rest of my days alive than a kip 8 or higher.(I hae chronic migraines and tensions too). I spoke to a CHr who shot himself. Said it was nothing compared to a CH. to me....its all about personal experience and journey than we go through. How one deals with the disease, how one perceives it. How one copes. Myself....no other pain I have had in my life from hitting myself accidentally with a hammer to breaks,sprains, cuts and bumps even compares. To me, its the worlds most painful disease. Even my close friend with TM will concur. Everyones potion of CH is different too. Some are worse and I dont claim to be the worst or had the most. But the mere fact its even suggested as the worlds most painful disease should raise enough eye brows for eople to think hey this is some serious stuff. Myself.In my lifetime, No surgery, no cut,tear,break or any other injury or migraine have I ever even considered suicide yet I planned mine for CH.
    1 point
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