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Everything posted by 1961mom

  1. Nice to read some honest responses to the hallucinogen effects! I too am wobbly-kneed as I sip my tea! The thing I think about is something my neuro told me when I told her what my new treatment plan was going to be......she said "Cindy, I just don't think you are the personality type that would do well on hallucinogens. You're too hyper-vigilant." Oh just draw your little line in my sand, lady! I've had 3 wonderful experiences just to spite her! LOL ps I started dosing on Mothers Day. Today I drank my first sludge of rc seeds...trying to destroy any shadow that remains! Good Luck to you Scott1966 Cindy
  2. just made a small test donation! It worked for me. 8-)
  3. Shocked.....your posts are always informative. Thanks for sharing. Poor guy with the pen in his head! Dang, I'm like...."can he feel it in there, or what?" Gives new meaning to my one-liner around the house- If there is going to be something wrong with me...... It will all be in my head!
  4. happy belated bday! you're a great supporter and Dad to Michael
  5. That is a bummer but completely necessary from this mom's point of view. My son is twenty. One of his scariest memories was a 10 alone with me......I could never retell and capture the fear in his 3 year old eyes
  6. ps I just sent the author an email! I crack myself up being bold like I have never been before! I simply asked for laymen terms as to WTF his report means to all of us! hugs, Cindy
  7. That poor bastard! I'm in year 3 now and I get so sad reading about others who've done or are doing this daily! Will this information help to get Orphan Drug & Disease $$$? Could onset chronics become their own tiny little group that fits the criteria? Secondary chronics have hope to at minimum return to episodic?
  8. Interesting about head injuries.... I had my first attack at 17. No drug use prior to my first attack, however at 2 months old I had a severe head injury.
  9. Absolutely the perfect post (for me) to read & commit to my favorites. The discipline I've learned through this experience would be; "methodical and mindful" Thank you Shocked.
  10. I have been racking my brain trying to think of the most effective approach to get our voices heard in a way that doesn't backfire and send us back to the dark ages (was that just a few years ago?) Are any of you fellow sufferer's working on this behind the scenes? My natural instinct is to do the "Full Court Press". My training and career knows better! Patience, Persistent and PC representation is much more Palatable to the legal world. (IMHO)
  11. I hope you can put those thoughts aside and know we're on a roll (together) now:) We are such a small group within the populous that the idea of such a group (in my life time) was practically inconceivable over the past 32 years. So I celebrate all of you! I celebrate the world wide web! I celebrate the hope that I have when before I had none. Oh and I also drag every single soul that I love into my office and say "Watch this video. It's a documentary of my life with CH. I'll make you some lunch while you're watching!" Not one single person has left the room before the video was over!!!! It's like I'm finally legit, not just a whiner, but a true soldier in a very mean battle with a very mean disease. hugs sincerely, Cindy
  12. 1961mom


    Now you have! Thanks for welcoming me into your home today and for the 3 hour tour! (which flew by like 3 minutes! I couldn't help but respond to this thread) Cindy
  13. Thank you Bob! Thank you, Thank you, Thank you! Along with all the beautiful associates, researchers, scientists, side-kicks and minions of our quest! I cheer & cry & cheer again as I realize FINALLY there is HOPE. I fit the description to a T (in the Horizons 2009 video). Never took a recreational dose in my life, 49 years old, went from episodic to chronic (beginning May 08) and desperate until my first dose on Mother's Day, May 9th, 2010. Procuring my 2nd dose today! I think of one of my favorite lines in Gone With The Wind..... "As God as my witness I shall never go hungry again!" Deepest Gratitude, Cindy 1961mom
  14. Happy Birthday Denny! Thanks for sharing your story with me! You inspired me to give this method a shot and I could not be happier for the HOPE it has given me! Cindy 8-)
  15. I took Sansert circa 1990's. Very expensive then (I was uninsured at the time) Can you explain the differences in these substances? Layman terms please.
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