b.g.

Inquiring minds wanted to know, so I just HAD to bust out the translator

Oh i have been around for a couple years .... I just haven't "been around". And, if I didn't already know who you were (I still feel bad about that) I would think you were this guy He's cool, he's clean ... he's a love machine. It's THE LADIES MAN!! I'll bring the Courvoisier. Stay away from that Patron stuff

Well, I'm not "fine" per say. But thank you for the words of confidence. Looking back now, it was such a dark and dry period of my life.    It was like Dan said in his NatGeo deal .... I thought about my daughter and how tough it was going to be on her. I thought about what I was going to wear. I thought about how I was going to do it..... ugh ........ ok no more of that. I'm just glad we are all still here!!

That's very odd. I did the exact same thing the other night. I HATE taking the shot. It just isn't good. But I was in bad shape and fully ready to take it like a man. I got the kit out, dislodged the vial, jabbed it in my leg, got my little sawed off q-tip, and just before I started to push the plunger down I "had a talk with the beast". "Either f*ck off or I'm gonna do it .... I swear to God I will do it" ......... I pulled the needle out .... briskly walked around the house for 3-4 minutes .... and it was gone. Probably the first, last, and only time that will happen .... but I felt like a warrior for a moment there. I had beat the beast by using the some crazy ass Jedi mind trick or something. Just thought I would share that one.

Can I watch? Anyone wanna volunteer to butt stick me in Chicago?? :-*

Thanks BB .... it was seriously going to be suicide or an answer and I didn't have much time. I know that "s word" isn't nice to say around here .... but when I first got hit I got hit HARD. After my first 3 days of hell I told my wife (now ex) not to ever ever ever EVER give me a knife or anything sharp while i was in the dark bathroom going through an attack. Luckily she comes from a medical type family and didn't take my antics as a joke. She knew that I was going to off myself if I didn't get answers and get them QUICK. So 5 doctors in 59 days of hell and I finally got a recommendation to go to the Cleveland Clinic. That's where I met my savior. Dr. Tepper. I feel so bad for those of you who went years before knowing what was happening to you. There is no way I would have had the strength to go much longer than I did ......

yes and yes ... and good point. I don't have to inject myself very often, and that is kinda why I asked this question. yeah the thigh hurts .... not just instantly, but for a day or 2 afterwards as well. When I was first prescribed Imitrex I ran out and completely filled my script, which was 6 kits of 2 shots each, and each shot is 6mg. So yes, I have learned the rationing thing and it works well for me. It seems i have seen pics of 2mg shots now? Is this true? Do they exist? That sure would make life easier and a bit less painful. I would kill for an autopen with 2mg in it. (there's another one of those figure of speech things ) GOOD TO SEE ya bejeeber .... I might try the belly next time. LOL .... good idea

Just a fun type question with no real good answer. Personally, I shoot my Imitrex in the top of my right thigh. When I was finally diagnosed, Dr. Tepper pulled out a kit and had me "practice" injecting myself. There was no needle or trex in the kit .... it was just so I got familiar with it. I just happened to choose my right thigh and I guess that's why I have always shot there. Just out of curiosity, where do you shoot and why?

I had heard that before as well. Here is a newer article that was just published a couple weeks ago. I can assure you, I have tried in the past. I'm not sure where these people get this information but it sure as hell didn't work for me. If anything ..... it made matters worse.    At the risk of sounding too graphic here .... we all know that it would just be physically impossible to be the "aggressor" during an attack. You on top (missionary position) with your partner under you. That just isn't gonna happen. Luckily my wife (now ex-wife) was kind enough to "go down on me" at the onset of an attack to see if it would help. First, imagine how hard it is to maintain an erection during an attack ...... and secondly, if you are able to do so, imagine the hit becoming twice as bad as your body convulses. Where do they come up with these ideas? Has anybody had any luck with orgasms and CH? http://www.cbsnews.com/8301-204_162-57572820/sex-may-be-a-natural-way-to-treat-migraines-cluster-headaches/ Personally, I think that article was written by a German dude who heard "not tonight honey, I have a headache" from his wife one too many times

I needed a good laugh today Thank you!

There are 2 types of people in the world. The type who watch that video and think "what the hell?" And the type that get all choked up as tears well up in their eyes. I am definitely the latter. I almost can't watch those videos. BUT .... I do thank you for putting yourself out there so that non-sufferers might have a tiny glimpse of what it is like. Kudos and best regards, steve

I am so excited for this year. I simply cannot wait. I feel like a kid waiting for Christmas.

I am pretty much in the same boat. I don't like to mix methods, and the D3 didn't do anything for me. As stated, when you mix methods, you cannot get a real firm grasp of what is working and what is not. My big hang up was the imitrex. I rarely use it, but when I need it, I NEED IT..... and nothing else matters. Those times are usually when I get woke up out of a deep sleep and it's already too late for o2. When I had my first CH just over 2 years ago now (damn I can't believe it's been that long) I came here for help. I was told right away to not mix stuff, and to clean myself out before trying new stuff. That's what I did. Best regards, steve

I'm right there with you guys. Sick and tired of being sick and tired over trying to explain this thing. I gave up on it. I lost the only person in the world (besides you guys) that TRULY understood. My ex-wife. She was there for those first 2 horrifying months before I was diagnosed and got some tools to work with. It was nice to talk with someone who understood what it really is that we go through. My own mother saw me take the full brunt of an attack one time and had the gall to tell me that I was being a "drama queen". WOW..... I was speechless. I feel like I got voted into this very special club. So whoever voted for me .... thanks but no thanks I have resigned myself to the fact that if you don't have CH you don't even deserve to know what they are like. Or at least you don't deserve me wasting my breath trying to explain it to you. I have met a few people who are genuinely interested, but it really is impossible to explain it to them. So I gave up! I do like some of your analogies though. Some good stuff for real As sad as it is, I have never met another sufferer face-to-face. I cannot wait for Chicago. I don't know how I will act around people that just "already know". Hope to see you all there! And keep the analogies coming ..... if nothing else, they are good for a smile

Just wanted to let you all know that I sent greetings from all of you to God the other night. Holy hell. Anyways .... a rough day of o2 sucking followed, but all is well now. (going another round Saturday night) I have never been to a convention, so I don't know ..... but if needed, i can bring a car full of tanks?? I'm sure I could bring 20-30 "E's" with me if necessary?? I'm not sure how that all works. Best regards to everybody! Yes .... it's 4:30am and im getting hit but all is well.

Not that another opinion is needed here but +1 .... i have used expired stuff as well.

Thanks very much Dan I will most definitely be in Chicago. It's just a hop, skip, and a 4 hour drive from me ..... so I can't pass it up this time.

Oh yeah ... this isn't my first rodeo The one hour of sleep I get at a time is sitting up. I can't lay down at all. Not even half way reclined. THANK GOD a friend was able to help me out until I can get back on my feet ..... it's going to be a colorful, WONDERFUL night! I'm as happy as a pig in poop right now.

Well, you were right about the weather..... I still haven't slept, but I just replayed some kind of biblical scene outside my house. dark skies, dark clouds, cold front moving in ..... i was in boxer shorts ( and nothing else but an eye patch) .... i stopped and closed my eyes and looked to the heavens as the sprinkles fell upon me ..... and then i hurried back inside and grabbed the o2

64. Eye specialist at Duke only found two other cases on record. I doubt that you need to worry. Wow, ok. Thank you. I didn't even think it was possible ... now I know that it is .... it's just super uber rare. Thank you, and best regards, steve

Thanks for the good wishes. I hope you are right about the weather. No offense, but I quit trusting weather men years ago ahaha. Also, "b.g." stems from a nickname that I was given years ago on another online forum (not CH related) and it just kinda stuck with me. My name is Steve. Nice to meet you Best regards!

I'm right there with you hammered. Well, minus the stone part. I'm chronic and in ultra high mode right now. I haven't slept for more than one hour at a time in the last 5 days. I look like a warm bowl of death. I feel like a hot bowl of death. I haven't been this bad since before i was diagnosed. I drained 4 tanks today .... with 2 shots mixed in there somewhere. Bring on the plague, or the hellfire and brimstone ..... it can't get worse. I live alone and my poor dog has had her legs crossed all day because I couldn't take her outside. Too bright out there. I think I need a head transplant..... mine has turned to silly putty.

Hehehe!!!! I have Horners with the pupil permanently constricted on the CH side. One novel thing is that with the Horners, the iris has changed color. Otherwise, just getting old arthritis and not a bad case of that. I'm sorry to be so straight forward, but how old are you? I was under the impression that the color change only happens if you are very young and have a Horner's? This is something that I was pretty concerned about when I was first diagnosed. I am 36 so I thought that this wasn't something I needed to worry about.

+1 .... yeah yeah ... me too ... i forgot that part