b.g.

Hi jeebs Yup, had a great time with this group of goons

Was such a pleasure meeting this guy in Chicago last year .... only to realize after I made it home that we never took a picture together!! Definitely made up for it in Nashville this year. Stay strong Sir!

Hi TIM!! Just wanted to catch you on here and say thanks so much for being an inspiration. My medical records got sent to the SPG doctor today. The ball is rolling and I have my initial appointment next week. I know it's going to be a long road .... but I am ready! ------ Tim is on the left, I am right beside him, and yes .... that's the world famous Hipshot photobombing us

silly girl

Thanks brother. I'll be there ASAP!!!

The Chris Hanna group is the "cluster headache support group" https://www.facebook.com/ClusterHeadacheSupport?ref=br_tf The profile pictures with the CB logo stems from the Dr. Phil show promo. For those of you who do not know the story, one of our own, Jenny McClarren contacted the Dr. Phil show months ago and just received a call back from them. It is looking very promising that we may have a episode on CH in the making. To help our own cause, we all changed our profile pictures to the CB logo and posted Jenny's awareness video. The video can be viewed here: If anyone is on facebook, and would like to have a CB logo profile pic made, please pm me and I will make it happen for you. Also, I can be found on facebook here: https://www.facebook.com/kiki.kammeyer

I will be trying the new "non-evasive" stimulator. The Gamma-core. I'm honestly not real hopeful about it...... but I'll try anything once . I'll be sure to keep everyone up to speed on it.

Yay!! Keep them coming!! I haven't seen any of these ones.

Thanks for the input guys. I'll be sure to keep y'all posted as to my findings and decisions here.

It didn't work for me either. I gave it about 3 Weeks and then gave up on it. Very difficult to maintain the regimen, and it just wasn't helping anything at all.

You guys have hit the nail on the head. And for those of you not on FB, I'll put the rest of the story out there. I was a member of his group. I copied and pasted a thread from this message board about the availability of oxygen at the Chicago conference onto his FB group and it got deleted. I didn't notice that it was deleted right away though. Actually, I didn't notice it was deleted until a few days later when I copied and pasted another post from this site to his FB group. It was a long post from Bob W. explaining some of the things that go on at the conference. This time Chris deleted it right away and I realized it. So I sent him a private message about it. We exchanged quite a few pm's over the next hour about how he doesn't support Clusterbusters, about how CB hasn't funded anything since 2005 (huh?) and about how how he doesn't want ANYTHING CB related on his facebook page. In order to keep the conversation going, I just added fuel to the fire and let him ramble on. Then I made screen shots of the entire conversation and posted them for the whole world to see. The dude flipped out on me and started the name calling. It was very obvious that he was trying to keep his feelings about the Clusterbusters out of the public eye because he knew he was going to lose a big chunk of his minions if his REAL views came to be public knowledge. I have NO PROBLEMS with someone not supporting CB. Just don't pretend like you do in public, but then say otherwise in private. I care about this disease and everyone affected by it. I cared too much to keep my mouth shut about Chris and his antics. He has a God complex or something. His goal is to be Bob Wold. We all know that can't happen, but in his little mind, he is well on his way. He purposely deleted anything and everything that had to do with the Chicago conference. He tried to steer people away from going. He wants the CH community to follow him. He wants to gain financially from the sick and suicidal. So sad. So anyways, I "unfriended" him on Facebook after the name calling affair. But I remained a member of his group, just for the reasons that Vicky stated above. I never posted anything else in his group, but I remained a member. Then came Chicago. One of the best experiences in my life. Right up there with the birth of my child. 3 days after Chicago I got a message from "Jenny" saying that she was deleted from the group, and so was Valerie, and so was I. Supposedly, Chris got a bug up his butt and thought that we were "stealing" his members?? what the hell?? The dude is certifiable. No doubt. There is a screw or 4 loose up there. Now I am hearing that he is in line for a $25,000 "grant" of some sorts???? I assume that this is a private donation, and not coming from some government or higher education institution. I'll bet that's gonna fund the Chris Hanna vacation fund and not CH. Oh well, the world is full of them. I just prefer to stay away from his kind.

I posted this on the FB pages, but figured I'd throw it out here to get some VERY RESPECTED opinions. Does anyone know if the bios/results from the ten BOL-148 test subjects in Germany was published anywhere? A quick google search came up empty. Were the subjects episodic or chronic? My reason for wondering is that I am a high chronic and do not get the same long-term relief from normal busting methods that most do. I used to think it was me, until I had a chance to share stories with a few other chronics in Chicago and realized that I'm not alone in that aspect. If psilocybin, LSD, and LSA do not give me long term relief, should I be expecting it from the bromo LSD? I don't have unlimited resources, but I do have dual citizenship and could hop a plane to the mother-land and give it a go. Obviously, I will try anything at any cost to get some relief here ..... but if psilocybin, LSD, and LSA do not give me long term relief, it is really worth the BOAT LOAD of money to see if the BOL works for me?? Plane tickets, time in Germany, doctors visits, BOL ..... thousands and thousands of dollars involved here obviously. My thinking is NO, I will not get top notch results.

welcome back

Yes, yes, and yes. Chris Hanna is the Osama Bin Laden of CH. I IMPLORE everyone to keep your distance, be smart, and don't get involved with him in any way. He appears to be a very shady character.

Thanks for the kind words everyone! So good to see you back again Big Dan!! And so good to meet you Lee and Cindy. Yes, we are a pretty sexy bunch I'm also looking forward to Nashville so much. I'm still high off of Chicago and this is a feeling I MUST have year after year. I'll Never miss another one. Hoping to see many of you in Washington as well. It will will my first Headache on the Hill campaign, and much like the conference, once I hit one, I'll probably never miss another. I also wanted to say my piece on the BOL-148 update for those who missed the conference. I was very much looking forward to the update, and very disappointed afterwards. Yes, it does sound promising, but the fact of the matter is that it has sounded promising for well over a year now Although sad, it does make perfect sense though. It's all about money. Money, money, money. Basically, pharma is greedy (as if we didnt already know that). To paraphrase the information that was given at the conference, these pharma companies want to spend 25 million dollars and get a 2 billion dollar return on their investment. Well, the facts are that not every drug in the world is going to be as profitable as viagra, and basically spending a shit-ton of cash to produce a deritive of LSD that can only be marketed to such a small number of people just doesnt make good business sense. On the plus side of things, I have personally seen HUGE strides in awareness over the past couple of years and I feel very confident that our train is barreling ahead at full steam with no plans to slow down any time soon. Awareness = money and money = BOL. Sad formula, but it is what it is. Thank you for the kind words HeadacheRelief. You know you are a Goddess and a hero.Â

I will add more as they get sent to me.

Well, it has taken me a couple days to digest all of it, and I still can't put it all into words. I probably never will be able to. If you have been to one, you know what I am talking about. I met my first fellow clusterhead .... and then I met soooo many more. Meeting that first one is an experience I will NEVER forget. I've been chronic for 3 years now, and this is the first time I have felt "normal" since before my first attack. The love and support is impossible to put into words. I sat with people and had long, meaningful, in-depth conversations ...... and we never spoke a word. Looking into the eyes of another clusterhead is one of the most amazing things I have ever done. No words are needed, we just "know". Looking at another clusterhead is like looking into a mirror. We are all alike. We are all the same. I feel like I have known each and every person at the conference for years and years and years. It was like a family reunion. I saw someone have an attack in person for the first time. I helped someone use o2 for their first time. I taught someone how to extend trex shots. My family grew exponentially over the weekend. My phone is FULL of numbers of people who love and care for me. People who really truly understand. I am no longer alone in this. I laughed harder than I have laughed in 3 years. I cried harder than I have cried in 3 years. I played harder than I have played in 3 years I have never EVER given or received more hugs in a 3 day period in my entire life. Hand shakes are unheard of .... we hug it out. The closest thing I can relate it to is an old hippie commune of the 60'-70's. Everyone getting along for the good of all. What's mine is yours and what's yours is mine. On Sunday I dropped the daughter of a fellow sufferer off at the airport and headed for home. It was a 4 hour drive for me. I made it about 20 miles out of Chicago and had to pull over and cry for a little while. It was THAT meaningful. I met CHfather. As soon as we realized who each other was, you guessed it, a big ass hug ensued. I met the weatherman. We chatted for a few minutes, but regretfully I didn't get a picture. My mind was in such a whirlwind that I often forgot to pull the camera out and for that I am disappointed in myself. On the day that I was diagnosed, 3 years ago, I heard the words "cluster headache" for the very first time. I raced home and sat in front of the computer for the next 12 hours reading everything I could find. That was the day I found this message board, and the day I made my first post here. My introduction post must have stirred something in "Clustermom" because withing minutes of posting, she messaged me with her phone number. I felt pretty odd about that actually ..... a total stranger giving me her number like that. Later that night I was feeling pretty depressed after reading all the horrible shit that goes along with CH so I picked up the phone and called her. We chatted for a good while. That was the first "human interaction" with anyone familiar with CH. We stayed in contact those first few months, but then I went through a real bad time and we fell out of contact as I abandoned this board for almost a year. When I did finally find my way back on the board, one of the first things I saw was a thread started by her titled "where's b.g.". That touched me. Anyways, to make this already long story a little shorter .... on the very first morning of the conference we passed around the microphone and introduced ourselves. It was then that I saw her in person for the first time. Poor lady never saw it coming. I walked up to her with tears coming out of my eyes and she immediately stuck her arms out and hugged me. We held each other for a good while and then she pushed away and said "who are you" Now fully crying and all choked up, I barely mumbled "I'm b.g." ....... and then we of course hugged again. This is a REAL BAD time of year for me as I am switching from low to high cycle, so I unfortunately missed some of the speakers/events while sitting in my dark hotel room hugging an o2 tank, but what I did see was all pretty amazing. If you have any questions, feel free to ask and I will do my best to answer. I could go on and on and on and on ....... but here's some pics for those of you who didn't make it:

HAHAHA. Laughing my ass off. Is this who I think it is??  What a coincidence. I'm Steve / Ki-Ki ..... did you get your questions answered??  I sent that link to your FB messenger for you too. Sorry, I was too busy to check the board while in Chicago, but I'm glad we were able to hook up!!

had/having a great time. havent cried this much since I was a baby. Full report and pics when I get back home in a couple days!!

Well damnit jeebs!! There's another one down Hope to meet you next year!!

I will be sure to post a ton of pics here after I return For those twitter people, you can stay up to date with us in real time: Follow @Cluster_buster and use these hashtags, [ch8234]#[ch8206]Clusterbuster[ch8236] [ch8234]#[ch8206]CBinChi[ch8236]