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Days Won
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Everything posted by Purple
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how does that work? do I have to use my ID at CH.com? or create a new identity?
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Hello Shya, welcome to Clusterbusters Tony Only gave you the most important info relevant for your Sweetheart. jkandola's thread is full of the most important infos and steps Unfortunately, the "magic" is not an instant solution I have to wonder what kind of care your Sweetheart has received at the ER. Oxygen? Did they know cluster headaches? Relpax, is that a pill? (if so, that's no use) personnally, as is the case of many people on this board (but not all), I have absolutely no confidence in any meds that are prescribed for CH, except oxygen. But that implies to be dealing with the beast, detox, 5 days wait between busts, slapbacks, missed busts, etc., but anyways I was also dealing with the beast very much even with the nasty meds so... the adverse effects of these meds is... are horrible. Really and clearly, cafeine has major aborting virtues, oxygen works (I also use ice), and the testimonies on this board show that LSA, LSD and psilocybin (MM) also work, and in our opinion works better... But the magic is not instant remedy, but it is sometimes as I said in jkandola's thread, there are testimonies here of very severe chronic clusterheads being cured by busting. But that may take a while. But it's certainly better than the nasty meds that only worsen things in the long term. Well, that's my opinion anyways. Please feel free to flood us with any particular questions you may have, I'm sure you will get many answers most if not all the time. Supporters of clusterheads like you are highly respected around here
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Great [smiley=thumbup.gif]
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I think some have busted while still on Verapamil... Anyone on this? Zomig and Sumatriptan are based on the same kind of product than LSD/psilocybin/LSA, triptans, that is. So for sure, these products interfere with busting. Yes, the 5 days detox is Hell time, most here have been through that. Lots of coffee/energy drinks, properly set oxygen kit and ice (for me) or heat (for others) will help you get through this hell. But these meds are killing you, and actually they are bringing more headaches, more CH... You'll feel better after you detoxed.
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welcome to Clusterbusters jkandola, sorry you have to be here, but luckily you are I was going to answer you last night but Jeebs did before me. I think you should know that the Clusterbuster method is not always magic, but sometimes it is. It's clear to me now that preventive treatments with psilocybin, LSD or LSA works to avoid cycles, but if you're in the middle of a cycle when you start to bust, it might not be that magic... but it could. Well, you're chronic... but IÂ fell on a post by a long time user the other day who I hadn't heard of for a while (Tingeling). So I checked her last posts (posted 12 months ago) and... she's cured, and that's why I didn't hear about her for a while. I could barely believe that she was completely CH free now: she was so bad a chronic clusterhead, her life completely messed. She says that busting every month for years finally got completely rid of her CH and she now have a new life. She used a (her own) mix of LSA containing seeds and MM... So certainly, yes, the busting method works, but it's not necessarely an easy fight, especially if you're chronic. But all those meds you're taking right now are very nasty, and no doubt the best road is here. Good luck and don't hesitate to post any questionning you have. About quantities, opinions differ on that matter, and I guess it's because we are all unique... and have different reactions... I don't know. Personnally, for MM, IÂ took so far from 1 gram to 1,5 grams (dry of course), for RC seeds, I took up to 200 (with very little psych effect), and LSD, well... you never know how much LSD you take anyways unless you know the chemist who made it... even then. Some claim MM is the best busting substance, some say it's LSD, and I think that LSA is probably as effective, if not more (and without psych effect)
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yes, shroom burps for me the other day when I busted, even if I only drank tea (I used your trick, Moxie, peppermint tea, for I have not yet searched for capsules). Well really, I have to laugh about it. Compared to adverse effects of verapamil and triptans, a disgust for mushrooms is nothing
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Thanks Platypus for a clear explanation. Can I conclude that it would be possible to have Clusterbusters on top (shadowed, paid) of any Google search for "cluster headache"? about Wikipedia... this is then total contradiction from them if no secondary sources are available for Verapamil, since they claim: "(...)make sure that the Wikipedia article reflects how a medical condition is treated in the real world. For example, if 95% of doctors use drug A to treat cluster headache in reality, we should not talk excessively about drugs B-Z. "
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as far as I know, with Google, it will always be the most popular/relevant page that will rank first. Paying Google, I'm pretty sure, will only bring suggestions in the right column... but I realize now there doesn't seem to be a right column anymore... is it me?? Google might change, but For Google, it's important that any search brings relevant result, not commercial paid for any kind of crap. (that's what the success of Google was built on) LOL, I guess my answer to your question is: I don't know
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cool 8-) CHfather has been doing excellent work with the encyclopedians on the "talk" page of the article, although not much has changed so far in the article per say. It's my understanding that the article will be totally re-written because the they seem to say that the phrasing is terrible... there are two main things that CHfather has stressed: trying to include the fact that CH is "suicide headache", no ordinary affliction, which can justify relying on alternative treatments (that part seems settled now as far as the "talk" page goes), and of course trying to find good (for them) sources to possibly extend the mention about psychedelic treatment to more than simply a mention. there are (was) a few other very strange sayings in that article, like the fact that only 4% of clusterheads use Verapamil, which seems to me like ... imbécile to say (must be at least 40%). CHfather's work got them to change that part, but they changed it to something even more imbecile: "Verapamil was previously underused in people with cluster headache" CHfather has also stressed the importance of oxygen therapy, but all in all, the encyclopedians don't use logic, they use sources... and it seems there is not that many (valid) sources for that. The encyclopedians say (on the talk page) that the article should reflect the reality of what 95% of the treatments are "(...)make sure that the Wikipedia article reflects how a medical condition is treated in the real world. For example, if 95% of doctors use drug A to treat cluster headache in reality, we should not talk excessively about drugs B-Z. " But the problem here is that Verapamil is clearly largely used to prevent CH, we know that, but there seems to be very little "secondary sources" saying that. Well I think it's a long process and that patience is recommended. To my understanding, the article will change in the near future (will be all re-written). We will see how it turns out and can ask for more changes after if needed... well that's the way I see it anyways. I have read the page in many languages using Google translate (and my 1st language), and each present things somewhat differently. The French present it as a vascular-neurological disorder, and that's how French medical community seems to see it too, even though it seems clear to me it has not much to do with vascular issues... I think the best is to see it as a long term process with the encyclopedians.
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yea what is tripping, man? that's very philosophical : ;D I wonder if using such vague description of the quantity was like... trying to naviguate against the wind of laws and scientific discredit for working with illegal substances?
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Glad it could maybe help, and by the way Bravo, THMH, for your efforts and actions in this, when I suggested CHfather to take over, it was mostly because you couldn't anymore at that time for you were banned. But also I know for sure that CHfather is well organized and knows dam well all that's been published on here... After a while, I realized that my proposition could have been perceived negatively by you... it seems I'm excellent at putting my foot in my mouth Well to answer your question, CHfather, it seems that the first source mentions psilo and clusters, but I don't know where and how to find these documents. If you loook at that paragraph closely, source 153 seems to be the source of this sentence here: Psilocybin has additionally shown promise to ease the pain caused by cluster headaches, source 154 seems to only refer to clusters (not psilo) But I had missed one, the source 151, which is the source for this sentence here: half of cluster headache patients reported that psilocybin aborted the attacks, and most reported extended remission periods; similar results were reported for LSD. 151 Vollenweider FX, Kometer M. (2010). "The neurobiology of psychedelic drugs: implications for the treatment of mood disorders". Nature Reviews Neuroscience 11 (9): 642–51. doi:10.1038/nrn2884. PMID 20717121.
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I suppose this section of Wikipedia does not fall under the rule of their medical team? http://en.wikipedia.org/wiki/Psilocybin#Medical_research anyways this paragraph made it to Wikipedia Psilocybin has additionally shown promise to ease the pain caused by cluster headaches,[153] "one of the worst pain syndromes known to mankind."[154] In a 2006 study,[155] half of cluster headache patients reported that psilocybin aborted the attacks, and most reported extended remission periods; similar results were reported for LSD.[151] A 2011 review of alternative headache treatments concluded that, despite flaws in the study design, these results suggest that LSD and psilocybin may warrant further study for use in the prevention of cluster headaches—only subhallucinogenic doses of the drugs are required for effective treatment, and no other medications have been reported to stop a cluster headache cycle.[156]" Could some of these sources be of any help? 153 ^ Halker R, Vargas B, Dodick DW. (2010). "Cluster headache: diagnosis and treatment". Seminars in Neurology 30 (2): 175–85. doi:10.1055/s-0030-1249226. PMID 20352587. Jump up ^ 154 Husid MS. (2007). "Cluster headache: a case-based review of diagnostic and treatment approaches". Current Pain and Headache Reports 10 (2): 117–25. doi:10.1007/s11916-006-0022-2. PMID 16539864. Jump up ^ 155 Sewell RA, Halpern JH, Pope HG Jr. (2006). "Response of cluster headache to psilocybin and LSD". Neurology 66 (12): 1920–2. doi:10.1212/01.wnl.0000219761.05466.43. PMID 16801660. Jump up ^ 156 Sun-Edelstein C, Mauskop A. (2011). "Alternative headache treatments: nutraceuticals, behavioral and physical treatments". Headache: the Journal of Head and Face Pain 51 (3): 469–83. doi:10.1111/j.1526-4610.2011.01846.x. PMID 21352222.
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yeah ! [smiley=thumbup.gif]
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haha I had not, I deleted it before seeing this one too :
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there has to be something wrong with this way of thinking... I thought an encyclopedia was... to inform people about ALL that's going on... Wikipedia's definition of encyclopedia The word encyclopedia comes from the Koine Greek [ch7952][ch947][ch954][ch973][ch954][ch955][ch953][ch959][ch962] [ch960][ch945][ch953][ch948][ch949][ch943][ch945],[8] transliterated enkyklios paideia, meaning "general education": enkyklios ([ch7952][ch947][ch954][ch973][ch954][ch955][ch953][ch959][ch962]), meaning "circular, recurrent, required regularly, general"[9] + paideia ([ch960][ch945][ch953][ch948][ch949][ch943][ch945]), meaning "education, rearing of a child";[10] it was reduced to a single word due to an error[11] by copyists of Latin manuscripts. Together, the phrase literally translates as "complete instruction" or "complete knowledge".
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I don't know if we stand a chance, though... from the MastCell Wikipedia user profile: "If a person edits Wikipedia largely or solely to promote one side of a contentious issue, then the project is almost certainly better off without them. On Wikipedia, any form of real-life expertise is a serious handicap. If you have real-life expertise on a subject, do not under any circumstances mention it here.[2]"
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http://en.wikipedia.org/wiki/Wikipedia:MEDMOS http://en.wikipedia.org/wiki/Wikipedia:MEDRS
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The way I understand it, Wikipedia is not "them", it's "us". The goal is to reach consensus between editors (us, anyone) via the "talk" page. I think we might not have been encyclopedian enough in the way the information was provided, written, sourced, wathever... Reading these pages should help getting to know Wikipedia (English) better, and help some of us to fit into the Wikipedia way so to get our information through... It seems to me it is possible to reach a consensus on the content of that article if we do it the right way (wikipedia way, I guess). Now the article has been put on a freeze and SandyGeorgia asks for a total rewrite. http://en.wikipedia.org/wiki/Wikipedia#Editing http://en.wikipedia.org/wiki/Wikipedia:NOTCENSORED http://en.wikipedia.org/wiki/User:MastCell http://en.wikipedia.org/wiki/User:SandyGeorgia http://en.wikipedia.org/wiki/Talk:Cluster_headache I'm proposing that one of us gets into the debate on the talk page (http://en.wikipedia.org/wiki/Talk:Cluster_headache) to try to reach a consensus on the alternative treatments. I'm proposing CHfather to do that, if you want to, Chfather
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via the "talk" page, maybe? so that anyone can see what is going on. I always check the "talk" page on Wikipedia, and then I can see in what way the article is contreversial or not, or evolving Go CHfather !
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and changed again: all references to lsd and psilo have again disapeared (cur | prev) 17:52, 2 January 2014[ch8206] SandyGeorgia (talk | contribs)[ch8206] . . (60,328 bytes) (-3,776)[ch8206] . . ([ch8594][ch8206]Psilocybin and LSD: way off-topic, uncited, in the wrong place, and there is already a secondary review, see WP:MEDRS in the article that covers this) (undo)
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It's already been changed by Scott Martin (cur | prev) 17:38, 2 January 2014[ch8206] Scott Martin (talk | contribs)[ch8206] . . (64,403 bytes) (-474)[ch8206] . . (Undid good faith change by Chfather (talk) - please only add citations that reach our standard for reliable medical sources. Thank you.) (undo) personnaly, I'm not sure the suicide headache part is that important for CH, although the Trigeminal neuralgia page says it's the suicide disease, which sounds a bit weird
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Fantastic !! [smiley=thumbup.gif] I checked the French, Spanish and Italian Wiki pages, and there would be the same kind of work to be done there, it's barely mentioned. hmmm same as the Finnish page it seems. Maybe most Fins speak English, though? It would need to be done in other languages also...
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Hey Moxie, I'm so glad you get to be with your children. That's very cool. I know what you mean when the head will not cooperate... yeah, but don't let it beat you, and as you say yourself and yes, the best is to be true, and the true people will see beyond the ugly CH mask
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Joyeux Noël... well happy Winter Solstice [smiley=huh.gif] :-/ wishing everybody the best for 2014 [smiley=2vrolijk_08.gif]
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Serotonin, 5-HT receptors, brain chemistry +++
Purple replied to Purple's topic in Research & Scientific News
I will, thanks for the lead to that :-)