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ClusterBusters

jayhedges

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Everything posted by jayhedges

  1. jayhedges

    Meds not working..Going to try to bust!!

    Great news Jeff. I envy what you have in your freezer. Still searching, but at 57 I look a little suspicious on campus trolling for shrooms. Gonna let me hair grow longer and try in September when Johns Hopkins is back in session. You know all the med students are into that stuff. LOL. Keep in touch.
  2. jayhedges

    Shrooms legal anywhere?

    Carolyn: Can you provide price per gram or other meashurment and whether their is a linmit to how much you can buy in the Smart Shops?
  3. jayhedges

    Am I going chronic?

    Yury, I as on predisone and verap for about a month during my first cycle this year. I started to detox to prepare to bust but was advised that Verap would probably not interfere with busting like other meds. I stayed on it for a while now in between cycles and decided to just stop and see what happened. Nothing for three weeks. But if the Verap is giving you relief you can continue to use it. Don't know where you live but you might try busting with RC Seeds while you are waiting for you schrooms. Many find they works well and at least in the states you can buy them legally and cheap. O2 should help you but I wouldn't be in any hurry to detox until you have a substitute treatment plan in place.
  4. jayhedges

    Surface "touch" headaches?

    4th Chiro treatment for TMJ today. Again back and neck feel better than ever. Up to 15 miles on my bike the last two days. But no change in the surface HA, and sore throat is worse. everything is still on the CH side. Use about 5 minutes of O2 when I get up with a HA and another 5 Minutes when I go to bed for HA. Otherwise just waiting it out. Took 40 RC seeds this morning as a preventative dose with no affects of any kind. Guess I used enough lemon juice that they didn't even taste that bad. No upset stomach and nothing close to CH symptoms. Will do 40 more in about 2 weeks as prevent again.
  5. jayhedges

    Surface "touch" headaches?

    I'm between cycles...and last night my scalp on the CH side was sore to the touch. It is still sore this morning. Very weird...only hurts if I touch it or if I bend over and let blood run to my head. I know...don't rub your head and bend over stupid... but also having an ear ache and soreness in my jaw on the CH side. Could this be warnings of a new cycle? Shadows from the one ended three weeks ago? Anyone else have this "touch headache". My name for it...Jay
  6. jayhedges

    New here - My Hubby's story

    What a difference two days can make! Many more PF days and then weeks ahead.
  7. jayhedges

    Anyone's doctor on board about busting?

    Boston Doc: I respect your comments about Pharma kickbacks. I am aware of the changes in the laws about 10 years ago and know the days of drug reps wining and dining docs are over. You will get some push back from many on this site who feel we would have been better off never starting the meds as many of us have had no positive results and some have had horrible side affects over decades of meds. My starting protocol was Imitrex for aborting the pain, Prednisone taper and then Verapamil. None of which gave me any relief. When I found this site, I was on 25 lpm welding O2 in a week and immediate aborting of each HA in 10 to 20 minutes. It was immediate and amazing. Some here can list over 30 meds they have been prescribed by well meaning docs who are treating this relatively unknown condition like a Migraine or worse like we are crazy. I really appreciate the interest you have taken, and know you will learn a lot here but there isn't much decorum as we tend to say it like we "feel it". And you never know if you are talking to a CEO, Health Care Administrator, Teacher or someone on Disability due to CH. Everyone is equal here. Thanks again.
  8. jayhedges

    Surface "touch" headaches?

    Third Chiro treatment today and while my neck nd back are felling better than in years, surface HA continues at a very low level. Seems knowledgeable and honest and says it's the muscles causing the HA and to give it a few mor treatments. I still have an earache and soreness in my throat when I swallow, all on the CH side. Still going with TMJ for now.
  9. My cycle ended three weeks ago, but I have had a kip 1 or 2 HA for the past 7 days 24/7. It's sore to touch and I also have tightness in my jaw and an earache that comes and goes. Might be TMJ and seeing a chiro for that, but some have suggested it's a warning sign of a new cycle starting so I figure how much harm can it do. Haven't found any shrooms yet so have 40 RC seeds crushed (pepper mill works great David) and soaking in lemon water. Plan to take it tonight. Before or after dinner? Besides nasty taste and potential upset stomach what other affects should I expect?
  10. jayhedges

    Anyone's doctor on board about busting?

    Thanks Doc and you will inspire many others to follow your lead. It means a lot to us. Stick around and read this board for a while and you will see the frustration people in excruciating pain go thru because the medical community is not informed and the few that are have their hands tied. Then notice the support we get from each other.
  11. jayhedges

    New here - My Hubby's story

    Angel, just think how great these last few weeks have been and you have plan and tools. You are totally in control now, not the Beast, so be confident and grateful for not being where you were just a month ago. Good luck...prayer and good vibes to you both. Jay
  12. jayhedges

    Starting Preventative RC Seeds Tonight

    Any problem letting them soak for say 36 hours rather than 6 hours? I didn't last night so plan to tonight.
  13. jayhedges

    New Member

    I don't know, I do worry about when the next cycle will come, but during my cycle I know its going to end eventually, and that encourages me. I'll stick with Episodic...
  14. jayhedges

    Surface "touch" headaches?

    Mad6string. You may be right about it never going away. I've had to chiro treatments and neck and jaw feels better but still have the headache. I did turn my O2 up to hyperventilate and it stopped the HA for about 4 hours. So this little almost painless touch HA does respond to O2 for me, but requires more than my CH. Go figure. Chiro thinks its TMJ and he fan help so will stay with it a while and report back.
  15. jayhedges

    Surface "touch" headaches?

    Jeff, I had my second session with chiro today and he did the internal massage thing. Not as intense as you said or as he thought it would be, but over all my neck is much better. However, the "touch headache is worse now and has been with me non stop for six days. My ear and jaw are hurting more now than ever during this episode of whatever I have. Sounds like TMJ and may just take a while to fix. I did use O2 on it today and it helped. Not sure what to think of that because TMJ is muscular and should not respond to O2???? Regarding CH, I tend to agree with Tingling that the TMJ may be caused by the stress and muscle tensing, headbanging and general abuse we go thru during a CH cycle. I;m going to stick with the chiro to see if he can make what I have now go away, but plan to dose at the first sign of another cycle. Keep thinking and posting. This is a good discussion and we are all learning. Thanks, Jay
  16. jayhedges

    Fishing!!!

    So how's the hip and the kip, AO?
  17. jayhedges

    Rant

    Birdman, welcome to the PF world...enjoy. I'm in between too and deciding how to be ready for busting when the time comes. Guess I'll go with the traditional method too after seeing your experience with Mycobags. Was hoping to make a local connection as I'm not a real good farmer but may have to learn. Have you done RC seeds. Any comparison. David seems to have had better luck with shrooms.
  18. jayhedges

    What changes did treatment make to your life?

    Tingling...good stuff...I started the mind control when dealing with migraines at age 12...now at 56 I am using the same positive confidence to show the Beast and me that between the natural treatments, God and my attitude...he has no chance. CH really is the devil fully exposed and we can all beat him if we support each other and use the tools god has given us. Have a plan, execute the plan, but most of all believe in the plan. Jay
  19. jayhedges

    Anyone's doctor on board about busting?

    I first told my gp about O2 and she looked into it and wrote a script. Of course it was not adequate flow so I went to Welding O2 within 2 weeks. I also told her about the shrooms etc, and she brushed it off as not interesting to her. My Neuro didn't even want to see me for my CH once he knew my gp had prescribed Predisone and Verapamil. I decided to drop all scripts and stick with O2. Have seeds but looking for shrooms between cycles so I can be ready when the beast comes again.
  20. jayhedges

    Surface "touch" headaches?

    First I gained 10 lbs during my first CH cycle, probably because I use food to sooth my pain; physical or "cylelogical". Now back to the touch HA as I call it. Now a full 72 hours without it stopping for even 5 minutes. There are times that I have to press a little to feel the pain and others when just touching my hair hurts to a kip 5, but just when touched. Definitely not a CH but on top half of the crown of my skull on the CH side. Mild soreness in the gland on that side and tooth and jaw pain comes and goes. Saw a chrio yesterday who right away said it is TMJ. He told me to go buy a lottery ticket after reading my medical history and seeing Migraines morphed into CH and now TMJ all in 6 months. He said he can help with migraines but while he knew a lot about CH, didn't make any claims to help there. That was honest. I do think the jaw, neck and back adjustments that he did relaxed my neck like it hasn't been in months and may have reduce the touch HA pain. According to his opinion TMJ affects, muscles not nerves, in the throat, jaw, and scalp. He pressed on some points in my neck that made the Touch HA kip to about an 8. Anyway, I have no CH symptoms so will not bore you guys with any more on this but Jeff is right TMJ, which my Chiro said completed the trifecta. "Lucky Jay".
  21. jayhedges

    Good to be back

    Welcome back Donnie...missed you and lot's to catch up on...Jay
  22. jayhedges

    Surface "touch" headaches?

    Mostly though I'm looking for comments/info on the "touch only HA" if anyone knows what it is.
  23. jayhedges

    Surface "touch" headaches?

    Good stuff. Jeff, many say stress is a trigger for us so anything that relieves stress in the jaw and neck area has to make us feel better. I was at the dentist yesterday for a check up and asked her about the jaw thing and she wanted to give me the mouth guard. I declined thinking I have enough toys right now. Didn't dare tell her about the CH...not sure I could have handled a dentist's theory. Been thinking of going to a chiro for the stiff neck that is persisting even after my cycle ended. BTW I tried O2 today for this "touch only HA" and it didn't do a thing, and O2 aborts my CH HA's in 10 minutes so this thing is not a CH, but going on 24 hours now. If I would just stop touching it to see if it still hurts...it wouldn't hurt, stupid...LOL Jay
  24. jayhedges

    New member...overwhelmed

    Are you starting to sort things out? Feel more in control?
  25. jayhedges

    LSD and Migraines

    SmokeY: Many of us here are former migraine sufferers and some suffer both migraines and CH. You will get good advice about LSD and its potential for migraines. You may also look into the O2 page here. My migraines had morphed into Cluster Headaches before I discovered this site so never tried schrooms or LSD for migraines. I also found relief with pot for my migraines, but most here say it's more likely to trigger a CH that provide any relief. Stick around and the more knowledgeable with fill you in...
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