CHfather
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OK CHFather - I have been viewing this board off and on since around 2005. I never "signed up" until 2015, because I had no answers to offer anybody till then. I signed up then and made one post as "Goggle Eye". Last time I checked, mine was the very last post on that thread, so either it helped many people, or the thread just died for some reason, probably to be taken up anew by someone using the info I provided and claiming it to be their own. I chose that name because it reflected how I felt in my left eye every time I had a CH. I have suffered CH since 2001, and I never gave up hope. I have literally had thousands of mind killing "suicide" headaches over the years, and I can't even begin to count the lost hours of my life, or the lost sleep, or the effect that it had on my life, and on my wife. I sure don't need people who have no faith telling me that what I want can't be done on this forum. I never would have survived if I didn't believe in God, and I didn't have total faith that SOMEDAY He would heal me. I never had a doctor in the state I moved from in 2015 who knew anything about CH. I had to educate them all, and I did so by directing them to this site. Now you alone have a content count of 5,133, with 198 "days won". You must personally have the hundreds of followers I am trying to reach out to all at once. I have subscribed to many "alternative health" newsletters for over 40 years and I can tell you that I have seen hundreds of REAL CURES for many ailments be completely suppressed by the "mainstream". Do you know that the real, proven cause of and cure for "ulcers" was suppressed for over 30 years? To say that it would be impossible for me to reach at least 100 people all at once who might try what I could suggest on this site is simply to say that you don't really believe that there could be a possible cure for at least a few people. I am trying to reach many people from all over the world who can't or wont try the main "busting" method proposed on this site for fear of being arrested. I will not post what I can with only 3 or 4 people having viewed this thread and then see it removed for whatever reason. What say you now?
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My profile page shows that I have 16 "followers." Of those, there are exactly two who are currently active at this board. I would say that there are not more than a total of 50 people who are active at this board; in fact, I would put that number at closer to 30. Most people come, get what they need, and leave. Most people who are here are looking for specific things and aren't particularly interested in other threads. There is no way to start any kind of "movement" here except, in essence, one person at a time. When Batch first announced the D3 regimen (not here, but at clusteheadaches.com), most people scoffed at it. He had real credibility, though, because he had been a helpful member at clusteheadaches.com for many years. Some people tried it and told others that it seemed to help, and the data have accumulated over many years to make it into a fundamental recommendation for anyone with CH. I have no idea what you expect other than that kind of slow, one-at-a-time process. You're not the first person to come here with a proposed cure (I could list seven of them off the top of my head), and those have turned out not to work, except (maybe) for the person who announced them, but often even the person who announced a cure later acknowledged that it hadn't kept working. I can't really help you directly in any event because, as virtually everyone at this site knows, I don't have CH, so I can't be a test patient for your method. If it works for others, I can mention it, but that's it. For now, because I really don't understand your position, I have nothing else to say.
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