CHfather

https://clusterbusters.org/forums/topic/5627-notes-about-welding-o2/ Such crazy crap they put people through! "It looks like CH, but because you're such and such, I won't diagnose it as CH." The idea that to have CH you have to be a man, older, and a smoker, is nutso thinking from many years ago! The reason women have been told they don't have CH is because women aren't diagnosed with CH because "women don't get CH." Here's another file you might look at for an overview: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ Although the heading says "non-busting information," there is actually a summary at the end about busting that you should look at. Regarding your Imitrex, be sure to look at this. You don't need the full 6mg (if that's what your injector contains) to stop an attack. https://clusterbusters.org/forums/topic/2446-extending-imitrex/

@Psiloscribe??????

Thanks for getting back to us, Jack. So many don't. Much appreciated. Is this helpful at all? "Justin Kirkland ... was recently awarded a U.S. patent for the improved synthesis of the ergoline BOL-148: useful in treating cluster headaches." https://www.a4m.com/justin-kirkland.html#:~:text=Kirkland has earned a BS,useful in treating cluster headaches. https://patents.google.com/patent/US20160237080A1/en I have tried to locate this Kirkland fellow, and have called a couple of places where he is said to have worked. Good as I am at googling, I can't find him. As we have discussed, Drs. Halpern and Passie hold a patent related to using BOL to treat CH ("methods and kits"). https://patents.google.com/patent/US8415371B2/en

Yes, using welding O2 is still pretty common practice. In the ten years I have been here, I haven't heard about any kind of health issue from using it. Here's a post that attempts to answer some of the pragmatic questions: https://clusterbusters.org/forums/topic/5627-notes-about-welding-o2/

Back in the day, a couple of people reported success from using both. Here's one relevant thread: https://clusterbusters.org/forums/topic/1635-d3-and-kudzu/?tab=comments#comment-20779

I only shared it. All credit goes to Batch (xxx) for developing it, promoting it, and being there for anyone who has wanted help with it.

'fern, lots more options.... Please look at this file: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/

Beautifully (and sadly) described, Vader'. You can manage this thing. I'd suggest you might read this file for an overview of possible ideas. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ The great people here will be alongside you with as much guidance as you want.

Dogo, you are playing around the edges of your CH. Get/do the stuff that works: oxygen, D3 protocol, energy shots . . . and plenty of other options. Whatever doctor prescribed the vasograin had a very limited understanding of CH. I suggest again that you click on the word here and read the file that comes up.

Dogo, the first thing you want is oxygen to treat your attacks. And you probably want to start the Vitamin D3 protocol that has helped many people. There's a lot of information in this post, but I think it would be good for you to read it over: click here.

Consider welding O2: https://clusterbusters.org/forums/topic/5627-notes-about-welding-o2/

Splitting injections: https://clusterbusters.org/forums/topic/2446-extending-imitrex/ Some info that might be helpful since you're recently diagnosed: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/

ClusterBusters is a tax-deductible nonprofit organization. You can donate here: https://clusterbusters.org/donate/ (For future reference, there's a "Donate" button on the homepage, which you can get to by clicking on the word ClusterBusters at the top left of any page.)

Received mine a couple of days ago. I see the store is closed now, but I wanted to say that it's a very nice shirt -- good material, nice printing, fits right. "Well done!" and thank you!! to the t-shirt lady.

The nice thing about 5-Hour Energy is that it packs a lot of caffeine (twice as much as a RedBull) but can be chugged down quickly. Plain strong coffee is enough for some people (keep it ready in the fridge). 10 minutes is a reasonably quick abort. Caffeine and/or the special mask (ClusterO2 Kit) will probably speed that up. You might not get a whole lot faster abort with 25lpm, but you had said that 15lpm didn't really keep pace with your breathing, so it seems reasonable to think that if you can breathe at your most effective pace, you could cut off some additional time. Is it that you now can't use any triptan, or just that you can't take as much as the Imitrex injector (6mg)? It's always good for anyone to stay away from the triptans as much as possible, but you might want to be aware that 2mg of sumatriptan is enough to stop attacks for most people, and there are ways of using only that much. For example ... https://clusterbusters.org/forums/topic/2446-extending-imitrex/ There are a few additional ways of dealing with an attack in this post, under "Other 'Treatments'...." https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ Also some info there about the D3 regimen, which as others have said is very much worth pursuing.

Marlon, for an overview of treatment possibilities, you might take a look at this file: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/

Welding O2 is an option many choose. https://clusterbusters.org/forums/topic/5627-notes-about-welding-o2/ You might not use a lot more O2 with a 25lpm regulator, since you'll probably be aborting faster with it. Are you doing some caffeine as you start on the O2?

Thanks for keeping us updated about this.

mike', I know this wasn't your question, but what are you doing to treat your CH? Maybe if your attacks were more under control it would help your frame of mind at least a little.

Do the best you can to insist on a prescription for oxygen. I know you have read that in the post I linked you to, but I want to emphasize it. Do your best. Maybe bring this with you: https://jamanetwork.com/journals/jama/fullarticle/185035. Good luck!

And/or . . . see if you can get sumatriptan in vials, and syringes, so you can self-measure. The 6mg in the autoinjector is way more than you need--2mg or 3mg is all that's needed. There's also the 3mg Zembrace (in the US) injectable sumatriptan.

You are right, Denny! I just PMed you a screenshot of the $223 combo, but there doesn't seem to be any other order in the whole realm of sizes, colors, and styles that comes up that way.

I admit to being an overly large guy, but when I clicked on the size I intended to order, the price changed from $20 to $223! I'm sure it was supposed to be $23, but I was reluctant to proceed with my order. There is no place at the website to leave feedback, so maybe you can get this message to her.

If you are looking for these, you might start here: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ The section called "'Treatments' without O2 or other meds" might be most relevant, but maybe parts of the rest of it will be helpful. Not sure what kind of advice you're looking for, but the general principles of "busting" with psilo or other substances are included at the end of that file I just linked you to (the same information appears if you click on the "New Users..." thing at the blue ribbon at the top of the page).

Several people here have reported that it is helpful for them. The vitamin D3 regimen has also shown considerable success for migraines. https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10%2C000+IU+of+Vitamin+D+in+80+percent+of+people