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Everything posted by FunTimes

  1. Looking forward the the next post. If it is easy enough to get the certification why not? It is just another O2 outlet and maybe a cool new hobby to try out.
  2. Mel You can also look into making this to hold you over. It is the redneck bag. https://clusterbusters.org/forums/topic/4919-batchs-hyperventilation-red-neck-bag/
  3. I found that getting the script for the o2 from the doctor was only half the battle. The o2 company's around me either wanted charge me a tun of money per tanks monthly rental or said they do not service Cluster headache patients. I finally found one place that I could talk to and they worked with me, we found that it would cost me less money to pay out of pocket for O2 then it would if insurance paid for it. I get 2 m60 tanks filled 3 times a month for 90 bucks and I have 4 E tanks that cost 15 each fill. they come to my house and swap the tanks out. It took about a month of calling and fight
  4. Well I hope you feel better after getting that off your mind. We have all felt like this and gone through the same type thing in the past. I would say read up on Batches vitamin D3 regime, this helped me cut the pain level way down and also cut a few attacks out per day. I am chronic so I never really get a full pain free day. you can also read up on how to get welders oxygen setup and start aborting with the o2 to help get you off triptans and other busting blocking meds. I would recommend reading everything you can on this site and dont be afraid to ask questions 9 times out of
  5. Mal I also had issues with doctors and getting oxygen. I had more of a issue of getting a supplier of the O2 then I did with the doctors writing me a script. I have had places flat out tell me NO they dont supply to cluster headache people. I did get my prescription and started to call the top of the medical supply places in my area telling them I will pay for it out of pocket and finally landed with one. It took about 2 weeks and I found out that it is less money for you to pay out of pocket for the o2 for me then it is to use insurance and one less thing to deal with. I do not
  6. I have found that it was much cheaper for me to pay for my oxygen out of pocket then using insurance. call the oxygen supplyer and convince them it will be better for both you and them if they give you a few tanks. I have 3 M tanks and about 12 E tanks that I can rotate out to get filled and I manage it so I never run low enough to run out over a weekend. I am lucky with my place as they will deliver the next day as long as I call it in by 5pm the day before. I did have issues with them when I first started using them but after calling and talking with just about everyone I could and meeting a
  7. I can also vouch for the D3 and O2 i found about from this site. I have not gotten total relief from one or the other but I did cut pain and length of my headaches down and the best part is I no longer use triptans for aborting my pain. I should not say never, I will take it but maybe once a month just for a real head banger. I feel your pain and also get 4 to 6 a day but they are now manageable, I too get very frustrated at times and think nothing is going to help me but then think back to before I had this site to read other stories. You are not the only one and somebody always has it
  8. As far as breaking a cycle I can not help you with that but what I have done in the last year or so is start the D3 regimen and obtained oxygen to about clusters instead of taking any other meds. The D3 helped bring the clusters down in length and pain level. The oxygen aborts them with no side effects. you can find much more information on both by using the search function.
  9. As far as the O2 ad insurance go I have fought with just about every oxygen supply place in my county. I have found that with MY insurance company they charge you more for the monthly tank rentals and refills then paying on your own. I found a small medical supply store that would sell wheelchairs, walkers and things like that that would give me E tanks for 10 bucks each if I paid on my own but that guy was unreliable and about an hour drive to his place. I found a few places that flat out said no to cluster peopel and finally found on that will deliver to my house. I currently have 3 M60 tan
  10. I would look into getting O2. you can find a tun of information on here about it. It works great for me in aborting without the need for any drugs.
  11. DD Thank you for looking into this for me, it will be the first time I attend a conference and look forward to listening to your demonstration/workshop.
  12. I will be staying in a hotel down the road from the convention and was wondering how to get O2 delivered to my room so I have it when I am not at the conference. I was going to drive out with my own but if I can get it delivered to the hotel I would fly out.
  13. Does anyone have any information on a oxygen supply company out this way that will deliver o2 to a hotel room for some of us flatlanders planning to attend the conference?
  14. I sometimes put a ice pack on my neck and it seems to ease the headache a little but I do not have any sharp pain. Sometimes my neck muscles feel a little strainind after a headache but I think that is just from me getting all tense.
  15. That is something my wife tells me all the time, If I talk about it and think about them all the time I am more likely to end up sucking on the O2 tank. It does seem to be true.
  16. I just read your older post, The perlite stocking idea, I was wondering if you still do it this way or have you come up with a better way? I an about a year into growing and I will be making my own cakes for the first time and am looking for other ways to grow maybe a larger yield crop. I am using the brown rice flower and vermiculite in mason jars. then pressure cooker to sterilize. 

    1. MoxieGirl



      Last time I used it, I had to much water and effectively drowned my pods. I did some reading, and it says they should be separate from the core of the water a bit. So not saturated, but more a hydrated atmosphere. I also think I had a bacteria in my grow container, so have binned it and going to start again later this year.

      What I liked about it, was that none of the perlite ever stuck to the shrooms as they grew. It made a nice barrier, and was easy to clean up, rinse and use again. So I'm going to give it another go in the next crop.

      There is information out there about doing larger crops, and getting away from jars. I think Shroomery has some info on this. I'd like to get away from using jars too. It makes sense to me to have a container where the bed of the container is the grow material, and the shrooms grow as if they were coming out of the ground. Need to do more research though. I think it's more involved.


    2. FunTimes


      I hope everything is going well with your friend, Best of luck to you.

      I am trying something a little different every time I start a new grow. This is only my third time. I am chronic so I have not yet busted to PF days but things are getting better. I will let you know how I make out with this grow and maybe we can bounce ideas around and come up with something that works. I have read alot on shroomery and here on this site and it has worked well for me so far. 

    3. MoxieGirl


      Yes, please do keep in touch. I'd like to know how you get on. I kinda drift in and out of the forum, so if you want to reach me direct best use my email - penwiggle@gmail.com

      I'm not going to attempt another grow until my friend is no longer in need of my support, sadly that is probably only 2-3 months away. But, we have a number of carers coming in on a daily basis, and I wouldn't feel right growing shrooms here, and there is no way I would be able to bust anyway. So will resume that project later this year.

      I'm also chronic. Have had clusters all year 'round since they started Jan 2007. At my worst, I was getting 5 a day every 2-3 days. That's when I started busting. I now get 1 or 2 a month, and they normally last less than a minute, maybe stretching to 5 minutes. A really bad, horrific one, will be 15-20 minutes, and maybe a KIP 6, max. I get maybe 2 or 3 of those a year. 

  17. I am asking because I did do this study with no positive results. I did read that things were positive in the European study but can not find anything on the study here in the US. I had mine removed and still have numbness in the roof of my mouth upper lip and nostril on the right side. I do not regret doing this study because you dont know if it will help if you do not try and just because it did not work on my I was wondering is anybody had success with this. Just curious.
  18. Has anyone had any success with the Pathway CH-1 Study? Do you know of any updated information on the clinical trials in the US?
  19. I was taking sumatriptan about 5 times a day at one point. I had both the shots and the pills. Pills took about 30 minutes to set in the shots in about 5. I then found out about the O2 on this site and gave that a try and kept the triptan as a backup if I could not get oxygen or did not have it with me. I then read about how triptans can make things worse if taken to much and since I knew I was way over the recommended daily dose I figured I would stop them all together. I stopped on a Friday night and had a hell of a weekend rolling around in bed with non stop headaches but it was well worth
  20. I was put on Verapamil 240mg to be taken 3 times a day, This made my legs feel tired all the time so I tapered mine back to one time a day in the morning. I did not notice much difference in the amount of clusters of intensity of them when I cut back. From what I hear the extended release does not work as well for some people. I also get hit as I am sleeping and just started to take benadryl along with the D3 regimen and things are starting to get better for me now. I also spent the last few nights sleeping in a recliner to try to keep my head elevated a little and that also helped. This
  21. Thank you to all the advice, I am now on day 3 with NO Sumatriptan, the first day sucked but things seem to be getting better. After getting the correct o2 regulator and the better mask for it the oxygen is doing the trick so far. My wife and I will be driving up to Connecticut this week for more details on the study they are doing with the Psilocybin, I will let you know how that turns out. Not out of the woods yet but I think I can see it coming. Thank you all for your replies and advice.
  22. Thank you both for your feedback! I currently take 720mg total Verapamil daily and would love to stop with the Motrin but I think it is a mental thing that I just need to overcome. I had my blood pressure tested and was told I can not up the Verapamil at this time. I am a big coffee drinker and at one point cut it out of my daily ritual all together thinking it may decrease the amount of headaches I get in a day, but that did not help at all. I will try the 5 hour energy trick to see if that helps at all. I have given up drinking alcohol all together as that seems to be a trigger for me.
  23. I have been dealing with Clusters for about 4 years now and have viewed this site several times over the years. I created a login this week to just release a little. I started out thinking I needed a root canal due to headaches and had that done with no relief. I was then sent to a different oral surgeon who knew I had cluster headaches as soon as I walked in the door of his office. I was then sent to a neurologist who seems to be on top of his game with the newest cutting edge treatments for clusters and he set me up with a clinical trial for a stimulation implant that went into my cheek. I h
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