BoscoPiko

You are not the first to report this unfortunately.. As for the duration.... i've had attacks that have lasted upwords to 6-8 hours. Not common, but again not unheard of. Now that we know you are a rt sider (sorry) for this unfortunate experience.. it sounds even more like CH. I'm not a Doctor and have no definitive answers and can't even claim to know "what is what".. I can tell you that shadows are a really unfortunate offspring of CH. This conversation makes me feel like another member @mit12 with both migraine and CH might have some insight? @mit12

Well welcome @sanderson. Glad you decided to join us but sorry you needed to. Some of the symptoms you describe do sound a bit like CH. The "don't you dare try to rest attacks" are pretty common amongst us. I didn't notice any mention of unilateral symptoms? I see the comment about the occipital pain which I don't think is as common but definitely not unheard of. The fact that O2 worked for you (and that you have access to it) is great and is something that works for most cluster heads. Although many of us have experienced O2 not working during a full attack so I wouldn't let that rule out the possibility of CH. From my experience with CH, the pain is typically one sided with the daunting and very uncomfortable/uncommon side switch but it's usually always on one side or the other. I am not sure what you have tried to eliminate the occurrence of your pain but I would highly suggest the D3 Reg which you can read all about on here as it has been know to help with various headaches head attack types migraine included. Hope you get some answers and relief soon!!

Sorry to hear of this! Were they able to narrow down the cause as vitamin D toxicity?

Oh for pete's sakes! This one takes the winner winner polish sausage dinner? Glad your still around @jon019! Thanks for the much needed chuckle!

I've seen both positive and negative reports with regard to sexual interactions regardless of self preformed or a partner in crime. My take is the elevated heart rate either being the culprit or the savior.. Diffrent strokes I suppose All puns aside.. If a bit of single play worked for me and would keep Mr. Dooms day bunny away i wouldn't really care what anyone thought... I'd be bating away!! Check out the D3 it may just keep ya hands free... sorry ... not meant like that.. shoot. Aww everything just seems to fit in as a joke but for real keep on keeping on and thanks for sharing! I hope for your continued success!

Hi vanguard Caffeine has been discussed on here quite a bit with mostly positive references. It is know to help quicken the abort time when using O2 (quick shot prior to jumping on the tank) as well as helping with all sorts of things us cluster heads suffer with so my guess is that no, it was not a placebo. It's hard for me to be certain if something definitively caused an abort or if the CH attack just happened to end at the same time but I do remember grasping for straws one hellish attack and having it end with a cup of coffee..

Hi Chris, I don't know of any specific to CH but I know there have been some posts on here with folks attempting to create one and I think one other that had successfully created one. In the very beginning of my joy ride when being told I had migraine, I used an app called migraine buddy which was good for tracking dates, medications and pain scale but I soon got tired of it and switched to a self created excel log which I also tired of at some point in my journey. I guess I just felt like looking back at all the bangers made me depressed which I was already really good at doing especially when in a cycle which seemed to be the time I was most apt to visit the log. Anyhow, tracking can be a good thing especially if you are trying to gauge your next doomsday and get in front of it.. Lastly you can use the search bar at the top of each forum page and plug in key words like App and a bunch of past discussions will come up for you to review.

Suppose I'm special as all I did was stand up from the darn couch to let my Abby doo inside (best dog in the universe), turned the handle and Shazam! Shocked to my very core, nearly thought I somehow got an electric shock but yeah me.. no such luck. I'm sure there are many reasons one is afflicted with the fluker bunny and I sure would enjoy more methods to rid ones self as apposed to why. At the same time I understand how the why plays into the rid as far as treatments go. That being said, I'm darn sure sending my list to Santa this year and hope he checks the flipin thing twice!! Keep on being the coolest kids in town!! Admiration to all of you CH survivors!

Hi there, In my experience with the D3 reg the magnesium has been the culprit for praying to the porcelain god from the wrong end. You could try taking it at bed time after eating or start out with a lower dose of the mag and work your way up. You can also try switching the type of magnesium you are using (not sure what type you are currently taking) but typically magnesium glycinate is the easiest on the stomach.

OMG Jeeb!! Lord in Heaven please let my chrispified remains look better than Jeebs in his neon speedo! In your precious name amen!! LOL!!! Thanks to CHF your remains will most certainly have neon green specks of lycra mixed in with your ashes...!!! XO!

Found this site https://www.nia.nih.gov/health/brain-donation/brain-donation-gift-future-generations#:~:text=Step 1: Enroll in a,or cremation and related ceremonies. Might help?

He took a hike for now.. Suppose he got the drift of things at least I hope . @spiny worked him over pretty good so maybe that did the trick? It was pretty scary looking him up and seeing all the accolades! Sad that someone would want to capitalize on such a misfortune but nothing surprises me these days...

CHF beat me to a similar response that I meant to send yesterday....The one sided (lateral pain) and eye pressure fit the mold for the most part. The jaw and scalp pain do sound a bit different and remind me of something like Temporal arteritis or maybe Occipital neuralgia. With Temporal arteritis-(inflammation of the arteries in the head and neck) most experience symptoms like a severe headache on one side of the head, tenderness when touching the scalp, fatigue, jaw pain, and vision impairment. The above questions posed by CHF should be pondered and answered in an effort to narrow down the possible affliction (not that our opinions should be taken as a diagnosis). I completely second the recommendation of starting the D3 reg regardless! I really hope you get some definitive answers and find some relief soon!!!

Well trying to express my gratitude for those before me and those involved with starting this site would surely fall short! My words may 2, but trying won't kill me I suppose. Thank you 2 all of the pioneers that understood the need for a place like CB, thank you for compiling experiences into a haven for folks like me, thank you for caring beyond monetary gain, thank you for having the insights to recognize the need!

Lol jeebs I'm super serious! Grind, soak gag and choak over here.. it is odd that so many of us are same timing it.. I have upped everything so much that my tummy hates me! Uff.. the porcelain God has manifested its self and seems to think i should pray from both ends This 2 shall pass. In the famous words of @Dallas Denny...ONWARD!!