BoscoPiko

Hi vanguard Caffeine has been discussed on here quite a bit with mostly positive references. It is know to help quicken the abort time when using O2 (quick shot prior to jumping on the tank) as well as helping with all sorts of things us cluster heads suffer with so my guess is that no, it was not a placebo. It's hard for me to be certain if something definitively caused an abort or if the CH attack just happened to end at the same time but I do remember grasping for straws one hellish attack and having it end with a cup of coffee..

Hi Chris, I don't know of any specific to CH but I know there have been some posts on here with folks attempting to create one and I think one other that had successfully created one. In the very beginning of my joy ride when being told I had migraine, I used an app called migraine buddy which was good for tracking dates, medications and pain scale but I soon got tired of it and switched to a self created excel log which I also tired of at some point in my journey. I guess I just felt like looking back at all the bangers made me depressed which I was already really good at doing especially when in a cycle which seemed to be the time I was most apt to visit the log. Anyhow, tracking can be a good thing especially if you are trying to gauge your next doomsday and get in front of it.. Lastly you can use the search bar at the top of each forum page and plug in key words like App and a bunch of past discussions will come up for you to review.

Suppose I'm special as all I did was stand up from the darn couch to let my Abby doo inside (best dog in the universe), turned the handle and Shazam! Shocked to my very core, nearly thought I somehow got an electric shock but yeah me.. no such luck. I'm sure there are many reasons one is afflicted with the fluker bunny and I sure would enjoy more methods to rid ones self as apposed to why. At the same time I understand how the why plays into the rid as far as treatments go. That being said, I'm darn sure sending my list to Santa this year and hope he checks the flipin thing twice!! Keep on being the coolest kids in town!! Admiration to all of you CH survivors!

Hi there, In my experience with the D3 reg the magnesium has been the culprit for praying to the porcelain god from the wrong end. You could try taking it at bed time after eating or start out with a lower dose of the mag and work your way up. You can also try switching the type of magnesium you are using (not sure what type you are currently taking) but typically magnesium glycinate is the easiest on the stomach.

OMG Jeeb!! Lord in Heaven please let my chrispified remains look better than Jeebs in his neon speedo! In your precious name amen!! LOL!!! Thanks to CHF your remains will most certainly have neon green specks of lycra mixed in with your ashes...!!! XO!

Found this site https://www.nia.nih.gov/health/brain-donation/brain-donation-gift-future-generations#:~:text=Step 1: Enroll in a,or cremation and related ceremonies. Might help?

He took a hike for now.. Suppose he got the drift of things at least I hope . @spiny worked him over pretty good so maybe that did the trick? It was pretty scary looking him up and seeing all the accolades! Sad that someone would want to capitalize on such a misfortune but nothing surprises me these days...

CHF beat me to a similar response that I meant to send yesterday....The one sided (lateral pain) and eye pressure fit the mold for the most part. The jaw and scalp pain do sound a bit different and remind me of something like Temporal arteritis or maybe Occipital neuralgia. With Temporal arteritis-(inflammation of the arteries in the head and neck) most experience symptoms like a severe headache on one side of the head, tenderness when touching the scalp, fatigue, jaw pain, and vision impairment. The above questions posed by CHF should be pondered and answered in an effort to narrow down the possible affliction (not that our opinions should be taken as a diagnosis). I completely second the recommendation of starting the D3 reg regardless! I really hope you get some definitive answers and find some relief soon!!!

Well trying to express my gratitude for those before me and those involved with starting this site would surely fall short! My words may 2, but trying won't kill me I suppose. Thank you 2 all of the pioneers that understood the need for a place like CB, thank you for compiling experiences into a haven for folks like me, thank you for caring beyond monetary gain, thank you for having the insights to recognize the need!

Lol jeebs I'm super serious! Grind, soak gag and choak over here.. it is odd that so many of us are same timing it.. I have upped everything so much that my tummy hates me! Uff.. the porcelain God has manifested its self and seems to think i should pray from both ends This 2 shall pass. In the famous words of @Dallas Denny...ONWARD!!

Sorry Sean! Hang in there!!!

Already started trying.. I have all crossables crossed that you get out of cycle and I don't go in!!!

I think I'm in the ramp up stage (mad shadows for the last week and a half)

Hey Matthew @Matthew Funk, people on here might be able to help a bit more if we knew your script. If you have some stigma with regard to revealing it that's ok 2. There are many migraine meds that get scripted to us cluster heads (typical) but not so helpful unfortunately. I am also going through a rough patch with my CH and utilize a few different methods of preventatives. Have you done any research on the D3 protocol? Or the "Full Monty" D3 reg ? Both have pretty good results. Did you ever speak to your Dr. about O2 as an abort? It's important that you do as it could really help. Lastly, please read the new users banner as that may help you immensely as well. Feel free to ask and ask again if need be. I hope you get through this relatively unscathed. Your not alone here.

Well....many antidepressants have been sister medications for migraine and Ch. You did not specify the medication/antidepressants scripted but most are not effective for CH. Your doc should have first and foremost scripted oxygen as an abortive then maybe verapamil.. which currently is the so called gold standard of treatments not that it means much in the way of CH. The D3 regimen should be looked into as it has helped many more than verapamil..