BoscoPiko

Found this site https://www.nia.nih.gov/health/brain-donation/brain-donation-gift-future-generations#:~:text=Step 1: Enroll in a,or cremation and related ceremonies. Might help?

He took a hike for now.. Suppose he got the drift of things at least I hope . @spiny worked him over pretty good so maybe that did the trick? It was pretty scary looking him up and seeing all the accolades! Sad that someone would want to capitalize on such a misfortune but nothing surprises me these days...

CHF beat me to a similar response that I meant to send yesterday....The one sided (lateral pain) and eye pressure fit the mold for the most part. The jaw and scalp pain do sound a bit different and remind me of something like Temporal arteritis or maybe Occipital neuralgia. With Temporal arteritis-(inflammation of the arteries in the head and neck) most experience symptoms like a severe headache on one side of the head, tenderness when touching the scalp, fatigue, jaw pain, and vision impairment. The above questions posed by CHF should be pondered and answered in an effort to narrow down the possible affliction (not that our opinions should be taken as a diagnosis). I completely second the recommendation of starting the D3 reg regardless! I really hope you get some definitive answers and find some relief soon!!!

Well trying to express my gratitude for those before me and those involved with starting this site would surely fall short! My words may 2, but trying won't kill me I suppose. Thank you 2 all of the pioneers that understood the need for a place like CB, thank you for compiling experiences into a haven for folks like me, thank you for caring beyond monetary gain, thank you for having the insights to recognize the need!

Lol jeebs I'm super serious! Grind, soak gag and choak over here.. it is odd that so many of us are same timing it.. I have upped everything so much that my tummy hates me! Uff.. the porcelain God has manifested its self and seems to think i should pray from both ends This 2 shall pass. In the famous words of @Dallas Denny...ONWARD!!

Sorry Sean! Hang in there!!!

Already started trying.. I have all crossables crossed that you get out of cycle and I don't go in!!!

I think I'm in the ramp up stage (mad shadows for the last week and a half)

Hey Matthew @Matthew Funk, people on here might be able to help a bit more if we knew your script. If you have some stigma with regard to revealing it that's ok 2. There are many migraine meds that get scripted to us cluster heads (typical) but not so helpful unfortunately. I am also going through a rough patch with my CH and utilize a few different methods of preventatives. Have you done any research on the D3 protocol? Or the "Full Monty" D3 reg ? Both have pretty good results. Did you ever speak to your Dr. about O2 as an abort? It's important that you do as it could really help. Lastly, please read the new users banner as that may help you immensely as well. Feel free to ask and ask again if need be. I hope you get through this relatively unscathed. Your not alone here.

Well....many antidepressants have been sister medications for migraine and Ch. You did not specify the medication/antidepressants scripted but most are not effective for CH. Your doc should have first and foremost scripted oxygen as an abortive then maybe verapamil.. which currently is the so called gold standard of treatments not that it means much in the way of CH. The D3 regimen should be looked into as it has helped many more than verapamil..

My experience worked out that time without my head acting up. I made a point to take some treatments prior which I believe made the difference.

NO! THOUGHTS OF IT YES.. SUFFICED? Wade in the muck often? Want help? Still here....

I sure hope no one else has a suicide plan! Life with CH can be immensely difficult at times, but life between the clusters is just 2 special to give up on. @lp3 to make sure I answer your question, no I don't have a suicide plan but in the beginning of my CH (prior to finding CB), I was definitely guilty of thinking about it. I know you have been on here for quite some time, but I don't think you post all that often (which is absolutely ok). It's just that I wonder, if none of the things you mentioned not wanting to hear about don't work at all for you if maybe you haven't been properly diagnosed? Maybe try and see a different Doc or better yet a headache specialist. When is the last time you spoke to a Dr. about what you’re going through? I know you’re not looking for advice but that is pretty much what we do here (try and help). In a way I think maybe you are looking for help because how would it change anything for you to know someone else had a plan? Please excuse the ramble, I just hate to see/hear of a fellow sufferer being in such a bad way. If you change your mind and do want to talk about possible methods that could help, we are here!

Hi Ellie, Unfortunately I don't think BC will help. I was put on them in the very beginning when they misdiagnosed me with migraine and they did not help. I don't know if you can take supplements (vitamines) when breastfeeding but if you can a good start would be the D3 regimen.

I have to admit I was a bit confused as to what the ask of welding companies was 2. If you are bringing a tank to be filled with welding O2 and that is the ask, then the problem shouldn't exist. If bringing with the ask of medical grage O2 (virtually one in the same, medical tends to be slightly more pure at 99.5ish while welding is 93 to 95%) then I understand. So first question is what are you asking of the welding companies, medical grade or welding? If asking for medical, I suggest you just ask for regular welding O2. If in fact no welding companies will fill your tanks (seems unlikely) then it's time to start in on your Doc for a script!