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BoscoPiko

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BoscoPiko last won the day on August 26

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About BoscoPiko

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  • Gender
    Female
  • Location
    Unicorn Land aka CA
  • Interests
    Horses, fishing, hiking, rocks, gyms and minerals, boxing, weight lifting, keto, overall healthy eating, living off the grid, homesteading, gardening, animals (except reptiles)

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  • Cluster Headache Community
    Yes
  • Migraine Community
    No

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  1. Just an FYI that the link is bad. 404 not found error.
  2. Hi Mike, Sorry to hear that the headbangers are back... It's always a serious bummer to read about this sort of situation. Attached is a PDF of the D3 Quick Start guide. There has been some good discussions on splitting your trex injections as most find that they get the same relief with a half dose and this method helps to reduce overuse. There are other resources on here if you are open to less conventional methods to manage your bangers (Blue ribbon at the top-New users please read here first). I hope this passes soon!! Quick Start Guide - Sept 2023.pdf
  3. I haven't gotten through all of this yet @Craigo but great write up so far!
  4. It makes me feel hopeful that more neurologist are becoming educated and familiar with CH. It's good progress for us bangers. Thanks for the share.
  5. First I have read of this and very good to know!
  6. Yep yep, nice and informative Cant complain pain wise. Hope all is well with you 2!
  7. As much as I want to reply to this I'm going to wait for @Shaun brearley because he explains it quite well.
  8. I haven't read anything about triptan use reducing the effectiveness of O2. Are you using the same provider? My first thought tends to want to lean toward a bunk tank or possible wear and tear of your existing set up? I'm sure you know the basics of O2 usage (suggested LPM's/mask type & breathing techniques etc.) but maybe it's time to change up your intake method? I've had many discouraging and maddening experiences with O2. Some that included me being convinced it just didn't work anymore and some where I was sure it caused the attack to ramp up. In the end I discovered a few things, some of which you mentioned (the sooner the better), the breathing technique that worked last time is not guaranteed to work this time and a quick gulp of something caffeinated prior goes a long way.
  9. Double barrel meow meows!!! All is rt with the world now
  10. Aww big sigh of instant relief! Fabio's cool but Fabio with sholder kitty.. 2 cool for school.
  11. Great stuff CHF but I'm seriously missin the kitties after that Fabio, jail break, sawed off one z image
  12. I wonder if this might have anything to do with the amount of negative ions generated by the surf? I know it sounds silly and no I'm not a hippy chick or anything (nothing against them I'm just not one). It sort of makes sense when you think about the fact that humans are primarily made of atoms and molecules, with ions having a role in the biological process of things like nerve impulse transmission, muscle contraction etc. Ions are basically atoms that have gained or lost electrons, resulting in a net electrical charge. Anyhoo just a thought. Full geek out moment over!
  13. You could try some ice packs for the swelling. The ice might help to numb the pain a bit as well. The PTSD/Anxiety is a beach! I struggle with it all the time even when I'm in the clear. The one thing that I have found that helps is exercise and staying busy. I know some can't exercise without worry of an attack while others will use it as an abort. Ever since I was able to get a break from a particularly looong attack by jumping on the treadmill, it's been something that I do when I have bad shadows. Sorry I've not got much to help on this one. I hope your head clears up soon!!!
  14. Agreed. The "Sometimes" was a bit frustrating because you are forced to go with that selection even if your response would have been "Never".. That aside, my top three were anancastic, anxious and dependant. The dependant one was a bit funny to me because my husband swears all the time "you have your mind made up and there's no talking sense to you"!!
  15. I don't think it was ever meant to be a trend... Jeeb has had that profile pic since I joined the CB site and CHF changed his a while back (not sure why but assume it was in an attempt to look more cute) My profile image for social media stuff has always been of Bosco my late Abyssinian cat (coolest cat in the world)! Sorry to hear about the loss of your pup that's always hard. I lost my Abby Doo (lab mix) and Bosco (Abby cat) not to long ago and still have a rough time with it. Any animal profiles (except reptiles) are welcome in my book:) Thanks for the link. I'll give it a go and see just how bonkers I really am
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