BoscoPiko

So true Jeeb. Unfortunately full and continuous cessation has yet to be achieved through the D3 regimen. Less frequent attacks, regular cycles and intensity of attacks has been greatfully experience from many on the regimen making it a very useful tool for any CH sufferes toolbox.

Not sure why but it's definitely sad that it's not a common "go to" treatment. My first thought is that CH is pretty uncommon in itself so that could play a role. Then you have the very much so common migraine that the D3 protocol works for as well which makes my second though lean toward the fact that you generally cant patent naturally occurring vitamins or minerals so there is no reason (monetary) benefit for pharmaceutical companies to bother with it. Tens of billions of dollars are spent annually on migraine medications and unfortunately there are financial incentives for Doctors to influence medication prescribing.

Yea I'm sure your rt about the refined sugars but like i mention it's likely all in my head I make my own jerky so not worried about processed meats all that much but could most probably do better without the salimi and cheese. Gosh, when i think about all the things I've avoided for the simple happenstance of an attack after, it makes me feel silly (boy do i miss bacon)! Thank the man upstairs that I've never had one after going potty or my poor bladder would be in ruins lol!! Your lunch sounds good and makes me a bit hungry... Prayers for an early termination of this cycle of yours!!!

Hi Nikkk, Sort of the same as you. Nothing like a banger to zap your apatite away.. Lots of little bites in between the hits. Cheese cubes, almonds, salami, jerky sweet peppers and hummus etc. I tend to stay away from to much fruit because I somehow correlated sugar to an attack (most likely all in my head) no pun intended there

Thank you Jeeb! Holy cow, yes they both came with clob hoppers for feet.. .....enormous! I'm pretty sure we just brought to future whales into our home They have filled our house with all the things that have been missing (and then some)!

It's been over a year since my husband and I lost our fur kids (broke our hearts indeed). My husband hasent been the same evwr since. The quiet house and lack of a reason to get outside and do something other then grind away working was taking a serious toll on his heart (I wasn't quite ready) but couldn't deny his need. We found a reputable lab breeder and the rest is history Meet Neo and Aimon (brother and sister)I hope their picks bring a smile to your face. Wishing all my cluster friends are staying in the clear and excited for the holidays!

Just an FYI that the link is bad. 404 not found error.

Hi Mike, Sorry to hear that the headbangers are back... It's always a serious bummer to read about this sort of situation. Attached is a PDF of the D3 Quick Start guide. There has been some good discussions on splitting your trex injections as most find that they get the same relief with a half dose and this method helps to reduce overuse. There are other resources on here if you are open to less conventional methods to manage your bangers (Blue ribbon at the top-New users please read here first). I hope this passes soon!! Quick Start Guide - Sept 2023.pdf

I haven't gotten through all of this yet @Craigo but great write up so far!

It makes me feel hopeful that more neurologist are becoming educated and familiar with CH. It's good progress for us bangers. Thanks for the share.

First I have read of this and very good to know!

Yep yep, nice and informative Cant complain pain wise. Hope all is well with you 2!

As much as I want to reply to this I'm going to wait for @Shaun brearley because he explains it quite well.

I haven't read anything about triptan use reducing the effectiveness of O2. Are you using the same provider? My first thought tends to want to lean toward a bunk tank or possible wear and tear of your existing set up? I'm sure you know the basics of O2 usage (suggested LPM's/mask type & breathing techniques etc.) but maybe it's time to change up your intake method? I've had many discouraging and maddening experiences with O2. Some that included me being convinced it just didn't work anymore and some where I was sure it caused the attack to ramp up. In the end I discovered a few things, some of which you mentioned (the sooner the better), the breathing technique that worked last time is not guaranteed to work this time and a quick gulp of something caffeinated prior goes a long way.

Double barrel meow meows!!! All is rt with the world now