BoscoPiko

Yep.. what everyone else said. Traveled from Sacramento, elevation of 30 to my vacation house in Truckee elevation 5,880 with part of the drive up reaching an elevation of around 7,800. My heads exploded a few times but never my tanks

This is pretty encouraging!

Not sure if there is a correlation with the "onset".. Seems to me that you get it or you don't... (genetics unfortunately do play a roll) , unfortunate event either way indeed. During the effort to control the bunny.. YES there is what I believe to be a correlation. If your system gets drowned/depleted due to any infection/virus it is my personal belief that the door gets opened due to depletion of of the immune system and inability to respond properly. I say this because I was diagnosed with a chronic sinusitis nearly 12 years prior to the onset of CH. I have had several attacks after being sick and after sever bouts of allergies that have opened the stage for the cluster bunny to preform. The meds you mention putting a damper on the pain are not indicative of CH. I'm not saying you do not have it... The above is pixy dust to a Cluster Head.. Does noda .. Absolutely will not touch anything but shadows "if your lucky" To me.. this sounds like "migraine with aura" dreadful for sure and I've been wrong many, many times ! I pray you do not have CH and that a decent Dr. can sort this mess out for you!

That was a very nice post to read. I wasn't around in 2019 as I was still in the mess of figuring out what was wrong with me so I dont really know you'r story but I can imagine. I am also terrified to fly and have read all the threads on it as well, but I don't recall seeing anything new in the way of tips, tricks etc. It sure would be nice to hear back from you with how the flight went for you (hopefully seamless) and if I missed any new info on altitude success etc. I would love for our CH community to post here on it.

Happy Thanksgiving you lot! Many prayers sent your way on this Thanksgiving eve! Be well, eat 2 much, enjoy family and most of all keep the door to the cluster bunny tightly closed! Thank you all for being here for all of us!

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Hi Bailey, I suppose it depends on the size of tank you get. The smaller ones usually give me a few hours if I'm being conservative (usually not the case if I'm on the O2).. I'm glad the concentrator works for you but I cant help but wonder if the concentrator works how much quicker you could abort with pure O2?

Ditch the concentrator if a cluster head. They mix normal air with the pure o2 that you need to effectively abort.

Wow @CHfather this response of yours was wonderful!

If it makes any diffrence... I will say that I'm in constant amazement of the people on here. They are beyond kind and definitely the strongest people I've ever encountered in my entire life! I had no idea that there were others like me, others that could understand and respond from the same perspective and understanding of the level of pain. When I found this place and interacted with them I found a new sense of hope! I felt so alone as I've never met a fellow cluster head. I've chosen to stay because if I can help anyone in the way this site has helped me I owe at least that much..

Hey Nick, Looks like you have received some great responses (enough to help with your Dr. Appointment and options to prevent and abort). As for being scared, it's natural to fear pain. I think we have all been there. I know I have and something that helps me is to remember 1. I am not going to die and 2. It will stop. Lastly the more you read on here and adopt methods of self help the better things will get for you.. stay strong!

Well be sure to share any new tips, treatments or tricks when you get back. I wish a conference would come within decent driving distance of me but I'm happy to learn through you guys!

Jelly!

I liked this just so ya know but I have to be straight faced and reactionless for a bit

Exactly! Just like "I'm rubber you're glue what you say bounces off me and sticks to you"

Funny timing jeeb.. I just tried to like your post and got Shauned

I know! Is that not a saying in the UK? A childish one here in wonderland. We used to say it as kids...Fun times:)

LOL... fine be that way then

I knew it wasn't just me! Thanks for confirming that I'm only partially crazy

Impressive! Looks like they put a bicycle chain in there

Wow that's just amazing. I suppose what's more amazing is that she's up and mobile after being so broken. Nothing less than a miracle!

Oh but you are! No surviving this show without a touch of wisdom, perseverance, willingness, strength and endurance. Shoot if your afflicted with CH and still keeping on... your basically a bad a%#

LOL Shaun... Then I'll have to start calling you the Oracle

Hi HCF, As @Shaun brearley has said, ginger is helpful in curtailing shadows. I am somewhat of a constant shadower (usually have them on a daily basis). I have found that RC seeds keep them at bay for me for 2-3 weeks. I also think curcumin mixed with ginger helps quite a bit. The RC seeds are easy to get your hands on and legal to purchase (just not to consume) but who's gonna know if you do. If you type in RC in the search bar you will get all the info you need on processing/obtaining etc. I found this pinned thread quite helpful I am not sure what causes shadows but I have had them ever since my first battle with CH. Sometimes they seem to be a warning prior to a cycle and other times they seem to just be aftermath. I also feel like the longer you go without being in a cycle and allowing the cluster bunny to take your brain out and stomp on it, the more intense the shadows become (almost like a cist that really needs to drain) gross analogy I know but... Anyhow I hope this helps.

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