BoscoPiko

This is just rubbish and so frustrating! So sorry you are dealing with this. I have your old meds that you accidentally left behind during your previous visit. I can get them back to you if you would like?

LOL Jeeb only you can put a spin on something awful and make if funny....

This sounds like a great pre-vacation set up! Zomig is still in the class of triptans so I believe it may interfere. Not sure about the ergotamine but found this blurb about it online. (Ergotamine is in a class of medications called ergot alkaloids. It works together with caffeine by preventing blood vessels in the head from expanding and causing headaches.)

Hi Kat and thank you for the beautiful pic of your pup! I use curcumin with ginger but I think the stress is just causing worse shadows than normal.... I'll be fine just a rough few weeks..

Thanks @Bejeeber! I'm a little down in the dumps but your response put a smile on my grouchy face!

Uff.. I'll start with apologizing for my weak moment. My older lab Abby Doo has been home and injured for nearly two weeks. My husband and I have been rotating office and home time to ensure she is not left alone as she has a torn tendon in her rt rear leg and can't make it far to potty. My home is covered in potty pads, my husband and I are sleeping on an air mattress down stairs to be with her because using the stairs is out of the question, my sleep schedule is out the window at the moment due to being awoken with the need to go and my stress is through the roof! I had an attack last Friday because the cluster bunny managed to somehow get through my barriers. I dosed with a good deal of seeds and have been ok since but my goodness I am a wreck between the 3 emergency visits to our 24/hr. animal hospital, the run around to get her set for surgery, the worries of her being put under at 11 years of age and the body aches from in-home camping... My shadows are out of control and my moral is lacking. Not sure why i am posting this other than anxt. Anyhow thanks for putting up with me . My animals are my children... Rant over.

Gosh darn it @Shaun brearley, thought I told you that I identify as a skittle farting unicorn!!

Them some comfortable pillows! Squishy and such!

Well so much for my comment the other day about not having stuff coming out of your eye Maybe just try some of the over the counter pink eye treatment drops and see if it works. If not maybe a visit to the Doc is necessary.

12 minutes ago, kat_92 said: nothing gross coming from my eye). Well that's a positive in this dreadful mess your unfortunately dealing with! Wishing you a merry busting and happy clear year!

Could be just that your CH is aggravated by being sick especially if its the eye on your CH side but other than that I'm not sure. I suppose it could be a symptom of COVID. I read something that said 1% - 3% of people with COVID can develop conjunctivitis?

Hey Kat, I've had COVID and the Flu bug. COVID was more mild for me than this recent flu which did cause me to start spiking out. I had thought that I was increasing my D3 but made the mistake of pulling from the wrong bottle. Once I "actually" increased my D they stopped. I would definitely suggest an increase like @Bejeeber mentioned and since you are sick I would up my zinc and C. Hope you get better soon!!

There are some seeds (not sure about RC) that can be stored for 5-6 years but they are organic material and will break down over time naturally. The most important factors to consider are light, moisture and temperature. I store my garden seeds in zip locks with a paper towel inside the zip lock and then inside a mason jar in the garage fridge.

Hey @lp3 I just wanted to take a moment and reply to this post because I can feel your anger, disappointment and devastation through your words. To start I want to say that no your life is not a joke nor is mine or any other cluster head's. @mit12 was correct in saying that a cure is non-existent and that buying time to live life as we used to is possible! I really get where your coming from with not wanting to hear another bleep about a janky hypo or D3 or busting etc.. In the past I believed that this affliction was a punishment of sorts for some bad thing (I've done many a bad thing) in my past. Truthfully that's like saying a baby diagnosed with leukemia is being dished penance. For what?? I'm so sorry that you have not found "clear brain" as of yet and that your torment is so awful. My life has changed so much since this diagnosis that at times I'm not sure who or what I've become. My strength is perseverance! Try, Try and Try again! Don't give up my friend! Never give up! Yes it's hard and if you believe God chose you to walk the hollows of horrer then be proud because God chooses only THE BEST!

I believe Spiny mentioned caffeine tablets and 5 hour energy shots. Sounds to me like your really prepared with the pre dosing with M prior! Please share how it goes as it's a huge fear of mine as well and I haven't been on a plane since diagnosed. Good luck!

He was pretty refreshing to watch. That bit about thinking he had an aneurysm and or that he was dying made me smile because I

Thank for sharing @xBoss! Nice seeing some exposure.

Yep.. what everyone else said. Traveled from Sacramento, elevation of 30 to my vacation house in Truckee elevation 5,880 with part of the drive up reaching an elevation of around 7,800. My heads exploded a few times but never my tanks

This is pretty encouraging!

Not sure if there is a correlation with the "onset".. Seems to me that you get it or you don't... (genetics unfortunately do play a roll) , unfortunate event either way indeed. During the effort to control the bunny.. YES there is what I believe to be a correlation. If your system gets drowned/depleted due to any infection/virus it is my personal belief that the door gets opened due to depletion of of the immune system and inability to respond properly. I say this because I was diagnosed with a chronic sinusitis nearly 12 years prior to the onset of CH. I have had several attacks after being sick and after sever bouts of allergies that have opened the stage for the cluster bunny to preform. The meds you mention putting a damper on the pain are not indicative of CH. I'm not saying you do not have it... The above is pixy dust to a Cluster Head.. Does noda .. Absolutely will not touch anything but shadows "if your lucky" To me.. this sounds like "migraine with aura" dreadful for sure and I've been wrong many, many times ! I pray you do not have CH and that a decent Dr. can sort this mess out for you!

That was a very nice post to read. I wasn't around in 2019 as I was still in the mess of figuring out what was wrong with me so I dont really know you'r story but I can imagine. I am also terrified to fly and have read all the threads on it as well, but I don't recall seeing anything new in the way of tips, tricks etc. It sure would be nice to hear back from you with how the flight went for you (hopefully seamless) and if I missed any new info on altitude success etc. I would love for our CH community to post here on it.

Happy Thanksgiving you lot! Many prayers sent your way on this Thanksgiving eve! Be well, eat 2 much, enjoy family and most of all keep the door to the cluster bunny tightly closed! Thank you all for being here for all of us!

Woo hoo! images (1).mp4

Hi Bailey, I suppose it depends on the size of tank you get. The smaller ones usually give me a few hours if I'm being conservative (usually not the case if I'm on the O2).. I'm glad the concentrator works for you but I cant help but wonder if the concentrator works how much quicker you could abort with pure O2?