BoscoPiko

I don't know much about steroids other than you most likely don't want to continue them often. As far as breaking your cycle you might want to check out the blue ribbon at the top of each forum page "new users please read here first" sometimes we have to go outside of the typical treatments provided to us by Doctors/health care providers. As for your second question regarding the D3 regimen, I see no reason to discontinue it even when out of cycle, nothing wrong with a well boosted immune system! Lastly being declined health services even when willing to pay out of pocket does seem discriminatory. Maybe try and find a headache specialist center as they would be more likely to help you than even a high ranked neuro... On a final note I wonder what would happen if you just told them that you don't have insurance?

I would think that Covid possibly depleted your D levels and opened the door for the cluster bunny. There have been a few reports of attacks after contracting Covid and I think one or two after the vax. I would bolster up your system with the D3 regimen and since you were recently sick maybe do a loading session first.

It was jeeb .. I hesitated to swipe my card. I was out so I swiped..

I'm sure this is not just a me thing.. But I ran out of a few supplements today which I'm normally very good about keeping on auto order. Made an emergency trip to GNC and 2 bottles of COq10, 2 bottles of curcumin cost me $295.00. I'm a comfortable person financially but this is unreal! At this rate it will be costing upwards of $1,200 every 2 months for me to continue the full Monte reg... I am just feeling defeated and like my health costs are going to rob me from any thing else I get to do with my funds.. I have Kaiser insurance ( a platnum plan ) but they refuse to cover any natural supplements?? I'm just angry at the moment. I suppose this makes me even more angry because I know how tight money is these days for not so comfortable folks! Sorry for the rant you guys I'm just peeved....

That's a great step forward in the right direction!! So glad to hear that she is on her way to recovering.

That's awesome!!!!

Thanks Jeeb! I had just released a batch of lady bugs (you can purchase them) and yes they eat all kinds of bad stuff and are 100% non toxic LOL...

Thank you Spiny! It has been a bit more work than I anticipated but has also been so worth it!

No big deal and thank you for the info. I have been on the keto lifestyle of eating for years (well prior to it's popularity). Unfortunately it has never done anything for my CH but everyone is different and I am happy you have found something that has helped you! Like Spiny said "If it's safe and works for you" keep it up!

The greenhouse is producing quite nicely and was doing so well before I left..... Unfortunately the gal that I hired to pet sit and water my outside and deck plants did not pay attention when I showed her how to access the water and she accidentally turned the water off to the timers in the greenhouse which also feeds the evaporative cooler Fortunately the motor did not blow and most of the plants survived a few 103 degree days but I lost all my seedlings and a very nice bell pepper plant.. I had to do a little clean up of the dead leaves here and there but it is back to beautiful.. Oh and @spiny I do have a lovely captains chair in there with a cup holder and reading/writing platform. Sometime I just sit in there and relax. I don't think you can see the chair in the picks as the plants block it but here are a few update picks since the last ones.. I can't believe that the site is letting me upload so much! That file size issue must be fixed..?

Thank you Jeeb and Spiny!

Great news! So happy for you Shaun!!

Hi everyone, I made it home and through the wedding without a banger I thought for sure I would get hit but I made a batch of seeds the day after getting there and I think that's what got me through as I was getting some pretty bad warning signs on the way there but it all worked out. Don't like being there much but I made the best of it and i even got a chance to have dinner with my childhood best friend..

Your the best jeebs. I'm gonna be A OK. This place is just hard for me in all its beauty.. haven't been back here in years and it just feels off. I'm praying that I make it through the wedding and brought a small stash of seeds with me in an effort to double up my ability to be a part of this special event..

No idea why this double posted. And I sure hope you are all well.

Well I made it here to the wedding location with minor spikes to the left (cluster side is the rt.) Spikes to the left mean a doozy is imminent. I'm 5 hours from home and have 02 with me as well as some nasal spray which I won't use as the spray is a triptan. I hate being here as it's my home town and the memories flood. Wish I could say better ones outweigh the bad but they don't. I am on the coast and this place is beautiful just wish my memories of being here matched...so much of my life started here ..

Fingers crossed for ya!

Hi Titan, Sorry you're still getting hit. I am assuming that the 02 you tried was just to try and see if it would help you sleep/stay asleep without waking to a hit? You would need at least 15lpm if trying to abort. I typically start trying to abort at 25 then go down to 15 when I can't keep up any longer. Have you tried taking melatonin prior to going to bed? It has helped some on here if I recall correctly.

Awesome news Shaun! So glad she got through the surgery!!!

Sounds like the road is still long but I am so happy to hear some improvement! And yea what Bejeeber said I said!

This made me think of all the goofball things I do when being hit lol. Walk circles in the garrage, swing hands rotating them at the wrist like im strumming a guitar, talk to it like "it" has a conscious "for f@c#'! Sake can you just stop... Of course none of this works but it does give the illusion to anyone within sight that I'm bat shit crazy and most likely not a good idea to approach.. oh and gives me a little cardio and DISTRACTION. I never have learned how to sit still through it, I suppose I have yet to find my inner zen of calm @Titan32 I'm happy you got so much feedback on here and from some really great pain experienced/CH knowledgeable people and hope to hear some positive progress feedback from you soon. Take care!

Well there ya go the most awesome @Bejeeber sent you what you need to start the D3. I would start it straight away..

I think it's an individual thing (not everyone has a bad experience) you will have to monitor the personal effect it has on you and your cycle. I won't touch it due to it drawing out a past cycle of normally 3 months to just short of 5 months. The D3 regimen has made a huge difference in my ability to stay pain free for longer durations as well as tampering down the intensity when I do get hit. I'll have to find the link and send it to you If someone dosen't beat me to it. I'm passenger rt now headed to check on my mare but I'll check back here when I get back to make sure someone sends you the link.

Well shoot.. Sorry your here but glad you found this site. There is some correlation to sleep, circadian rhythm, biological clock etc. I don't know enough about that but here is a copy and paste of a write up on it: Discussion Cluster headache attacks are believed to be modulated in the hypothalamus; moreover, the severe pain and typical autonomic cranial features associated with cluster headache are caused by abnormal activity of the trigeminal-autonomic reflex. The temporal pattern of cluster headache attacks suggests involvement of the biological clock, and the seasonal pattern is influenced by the number of daylight hours. Although sleep is often reported as a trigger for cluster headache attacks, to date no clear correlation has been established between these attacks and sleep stage. Conclusions We hypothesize that light, sleep, and the biological clock can change the brain’s state, thereby lowering the threshold for activating the trigeminal-autonomic reflex, resulting in a cluster headache attack. Understanding the mechanisms that contribute to the daily and seasonal fluctuations in cluster headache attacks may provide new therapeutic targets. Anyhow were you doing anything to prevent CH when you were getting 3 years off? Are you on any preventative medication now? Many on here get nocturnal attacks and keep something like a red bull or 5 hour energy shot close by so they can down it and get straight to the o2 (for some reason the caffeine helps the o2 work faster) and most are able to get right back to sleep. I am thinking by the way you wrote "took" immitrex that you have it in pill form which can be somewhat slow acting verses injection. I am not suggesting that you use the immitrex that often as it has been known to cause extended cycles in some (myself included). I'm sorry you feel down and alone and I completely understand the feeling but do try and keep your chin up, surf the site as there is a plethora of good information on here that can help you. Hopefully some of the real experts will chime in here with better information soon.