BoscoPiko

This is interesting as I bought the cfaley (I am assuming they are similar devices) when this debacle started and tried it as an abortive. The device never aborted any CH attacks but was sort of a good distraction after you got used to the sensation. You are supposed to use it daily on prevention mode but I never followed through after it failing to abort. Now I am curious if I should give it a go for prevention. Anyway you have to have a script here in CA to purchase and the device costs about $500.00 after shipping and taxes but there is no subscription or monthly fee after that. My true thoughts however are that it's more of a welcome distraction than anything else.. I could definitely be wrong!

That's good news! My little issue wasn't a real trigger it was sheer mindfuc*ery. I'm also pretty sure that the other adoption of not eating bacon is also just in my head as I've eaten it all my life but I got a super exquisite banger after eating it one time so now I just sit there and drool when my husband orders it at breakfast...

Well at least these are more logical things to try than not leaning over lol!

Jeesh Juss, This sounds awful.. All the meds can't be good for you. I understand the pain is also awful (not saying i understand your pain as you have more than just CH) so I suppose the need and or want to rid yourself at any cost seems plausible but I can't help but to think that maybe a diffrent approach needs to be taken as I'm sure you've thought about at some point. I'm a chick so I don't worry about being a girly man. Some believe in prayer some don't but I'm gonna say one for you either way!

Jeesh .. I really need to grow some already and try this alternative method...I wish I wasn't so apprehensive .. maybe I'm just not at the wits end I need to be yet. Anyhoo I sure hope you are getting an occasional EKG at that dosage of verapamil (I was at that level and had to cut back due to heart issues) (some doc's won't require it and you may have to request). Positive thoughts (even if most likely won't help) sent your way!

I wouldn't let it give you 2 much anxt as I shadow the entire time between cycles sometimes worse as I get closer but not much worse than what I deal with on a daily..

I knew I wasn't the only one with "something ridiculous" LOL.. I had to give up the habit of not leaning over as it is somewhat essential

Glad you got a chuckle out of this most ridiculous post jeeb lol!

Knowing I'm going to be collecting thunder eggs here pretty quick I thought it may be nice to have something to laugh about (even if it means laughing at myself). Wondering, what's the most ridiculous or silly thing you ever started or stopped doing in an effort to avoid cluster? For myself the stupidest thing I recall doing was avoiding leaning over! Silly as it sounds, when I was a bit newer to this show I got a ch attack directly after leaning over so I then spent a few months trying to not lean over/down! I'm not sure if you have ever tried this but it was ridiculous I struggled to put shoes on undies 2! I allowed myself to be so discombobulated for a time that I truly believed it may save me .... How silly is that! Would love to hear what you did or didn't do!

I'm so sorry you are going through this at the same time I feel that it's important to tell you that you are leaving out details that could help someone on here help you. How many milligrams what type.. extended release or rapid? Have you ever attempted busting? Have you started the D reg? .. I feel it's important to be specific although I understand how hard it can be during an attack... I sure pray for you! Folks here can help just try and line out all that you are on and what you have and have not tried.

Hi Billyx, No I've never experienced that or heard anything on here about that issue. I do recall someone mentioning that there CH had gotten a bit worse during the loading phase before they got better.

You should also look into the D3 regimen it really has helped me (has not stopped them but tampered down the intensity big time). There are more options than the triptans which in the past have drawn my cycle out longer than normal. You may also want to have a peak at the blue ribbon at the top of the forum ("new users read here") as that is an option that works well for many I am told.

Good to know im not crazy and sorry about your cycle coming.. it all sucks ass but we will survive... you and me both!

Dropping eggs and killing brains..

Lol I'm stupid in pain and of course you can use it!

So I poked around the forum a little searching for neck pain and got a bunch of hits because I used the word pain in the search. I then just used the word neck to search and found some info that indicated that neck pain can be a pre-cursor to the onset? I'm still trying to figure things out but I remember this (broke neck thing, cant move your head side to side or forward and back without serious pain) happening to me before in the past and I may have chalked it up to sleeping on it wrong but now I am wondering if there is a correlation? I only ever get about 4 months clear at a time so with my last cycle ending on or about October 11th I know I'm going to get a visit from the cluster bunny here soon and the other day I woke up and had serious broke neck. Are there any others that experience this or am I just special LOL..

Don't do wind chimes either and thank you bud!

That's pretty cool!

What does the relaxation mode do?

Thank you Devonrex I'll look and see what I can find.

Thanks Juss I'll check it out

I didn't mean to not respond to the rest of your message either I'm just a bit slow rt now .. you are rite In the sense that I don't know shit and should be happy that not all has been robbed from me! Sometimes it's easy to feel sorry for one's self.. Not proud of it.. just trying to comprehend..

Thanks Juss but I don't want to be numb..I don't use any drugs (maybe I should lol) I love the music you posted! I'm just trying to figure things out. if I'm blitzed I can't take care if my duties as a wife, grandmother and friend so that's not an option but I appreciate your response!

Thank you both for the responses I'll be trying the meditation first thing and reading up on the link Jeebs provided. Much appreciation to you both!

Thanks Jon, That sounds doable, I'll give it a go especially since you mentioned "no training no method" I have a small gym in my office that my husband made for me so I can go in there, lock the door and give it a try. I just feel so tired of the constant one way train of thinking...