CHfather Posted September 28, 2011 Share Posted September 28, 2011 Do you have a doctor you’d like to recommend to others with CH? At its website, OUCH provides lists of doctors recommended by people with CH. There’s a US list and an international list. You can see them here: www.ouch-us.org/chgeneral/doctors.htm This reference has been valuable here when someone is stuck without a doctor who is willing to prescribe oxygen, and we sometimes hear from people who think they have CH but have not yet been professionally diagnosed. At our recent conference, I talked with the good folks from OUCH about the possibility that our members might have some names to add to OUCH’s lists. Clusterbusters’ leadership agrees that this would be a helpful service. So . . . Do you have a doctor to recommend? Just the name, the city and state, and the name of the practice are sufficient. If so, would you kindly post it here, or PM it to me or to Racer1_NC (that’s Bill, from OUCH). Many of us have had awful experiences with docs; maybe we can save some others from that same fate. Thanks! Jerry Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted September 28, 2011 Share Posted September 28, 2011 Hey Jerry, I posted this awhile back in a thread titled "Dallas area headache doc that gets it" on the CH.com board but I just looked and no one ever posted to the thread so I guess it got missed by the OUCH folks.... Hey ya'll I got a PM yesterday from a gentleman who was referred to me by someone on facebook....asked if I could recommend a neuro in the DFW metromess.....mine has quit treating headache patients so I called a young man in Arlington that I met last year from the clusterbusters board......gave me the name of his neuro in Arlington that he said was great and who also has a nephew that is a CH'er!!!! Dr Kevin Conner 817-417-6141 DD Quote Link to comment Share on other sites More sharing options...
CHfather Posted September 29, 2011 Author Share Posted September 29, 2011 Thanks, Denny! Great to see your latest PF report, too. Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted September 29, 2011 Share Posted September 29, 2011 Thanks Denny...... I would like to say that I don't catch them all when posted to the message boards.....if anyone has a Doc to recommend, please do post it if you like.....but to be sure I pick it up for the list, PM or email me. B Quote Link to comment Share on other sites More sharing options...
lenny Posted September 29, 2011 Share Posted September 29, 2011 Dr. David Kudrow...(310) 315-1456...the man knows our condition inside-out Quote Link to comment Share on other sites More sharing options...
Bonkers Posted September 29, 2011 Share Posted September 29, 2011 A doctor with a famous daughter. Quote Link to comment Share on other sites More sharing options...
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