anthony g Posted December 14, 2011 Share Posted December 14, 2011 I just wanted to share some. I have tried just about everything for my chronic shadows and breakthrough headaches for the last year. Was on verapamil stopped 3 weeks ago and my daily headaches actually felt a bit better felt like verap was almost doing more harm than good. Doc put me on lithium I am up to 450 mg a day not very high dose i know but honestly I dont want to proceed with it. i want to ween off of the lithium and i have rc seeds and shrooms and really want to go that route. I am a bit different when it comes to the "typical" chronic cluster as to I dont really get major cluster attacks for a long time just "stuck cluster shadows" almost daily. I get all the precursors of clusters droopy eye, poker in the eye feeling, red eye, sore neck ect, some days more than others. I am a bit scared to stop the lithium although in my heart of hearts i dont think its gonna work anyway. Would love some feedback and support from you great folks! thank you Anthony Quote Link to comment Share on other sites More sharing options...
tingeling Posted December 14, 2011 Share Posted December 14, 2011 Hi Anthony I`m nt typical CH`er either, but again, what is typical CH? Typical CH behaviour is to keep playing tricks on us, we never know how it will behave really. In the beginning i kept telling my doc all the symptoms i had, i feel my brain is moving, it feels kile a balloon or a worm crawls inside my head, i got hearing loss from time to time, it pops in my ear etc etc. He just looked at me. It`s not listed as CH symptoms. CH is so much mor than just extreme pain, droopy eye and runny nose. When you think of every single one you know of that got this condition and seperate them into two groups. One group doing the traditional drugs and the other group doing alternative drugs. Do you find something that make a big difference between those two groups? It seems to me that the people doing traditional medicine have their life occupied by CH. Everything is about CH. And most still suffer even if they use allot of medicine. The other group seems to move on, picking up on old or new hobbies etc etc. In general a very positive group of people who won`t let this condition define who they are. And also does not accept sideeffects from medicines that may not work that well anyway. Or don`t want medicines on a daily basis. Or like me, none of the trad meds work. If you could choose, meds everyday or one dose one time a month, maybe in a short period every 14 day? My opinion. Go off all meds the way you have to taper down and go for it. Why not? Your saying yes to life, that is the biggest risk. Painfreewishes from me Tingeling Quote Link to comment Share on other sites More sharing options...
anthony g Posted December 14, 2011 Author Share Posted December 14, 2011 Thank you SQL much for that ting! I am gonna talk to bob tonight and go for it! Just need some support along the way! Quote Link to comment Share on other sites More sharing options...
tingeling Posted December 14, 2011 Share Posted December 14, 2011 We need a like button in here ;D Quote Link to comment Share on other sites More sharing options...
alleyoop Posted December 14, 2011 Share Posted December 14, 2011 We need a like button in here I couldn't agree more Ting! tingeling said: "When you think of every single one you know of that got this condition and seperate them into two groups. One group doing the traditional drugs and the other group doing alternative drugs. Do you find something that make a big difference between those two groups?" It seems to me that the people doing traditional medicine have their life occupied by CH. Everything is about CH. And most still suffer even if they use allot of medicine." "The other group seems to move on, picking up on old or new hobbies etc etc. In general a very positive group of people who won`t let this condition define who they are. And also does not accept sideeffects from medicines that may not work that well anyway. Or don`t want medicines on a daily basis. Or like me, none of the trad meds work." I couldn't have put it any better! Quote Link to comment Share on other sites More sharing options...
anthony g Posted December 14, 2011 Author Share Posted December 14, 2011 so im going to ween off the lithium that i have been on for only a month. I have a question: I have seeds here that i purchased in july kept in my drawer so pretty cool dry place. Do you think the seed are still good? Thanks Quote Link to comment Share on other sites More sharing options...
tingeling Posted December 14, 2011 Share Posted December 14, 2011 Yep think so. I even freeze and defrost mine after soaking them, if i change my mind about dosing. Quote Link to comment Share on other sites More sharing options...
Ricardo Posted December 14, 2011 Share Posted December 14, 2011 It seems to me that the people doing traditional medicine have their life occupied by CH. Everything is about CH. And most still suffer even if they use allot of medicine. This is something that has definitely not been lost on me....Just yesterday when I was talking to my therapist he expressed amazement that I wasn't completely depressed all the time. Even said, "you're one of the least depressed people I know--but you get hit everyday, you're on drugs constantly, you have this specter of beast hovering over you and threatening every aspect of a normal life...." Most definitely, these psychedelics seem to get more to the root of the problem then traditional drugs, fixing our brain even just a little to put pressure on the beast to go the fug away...But I think the potent anti-depressant activity (which I think works by what we think of western medicine anti-depressant activity and a whole lot more) can really turn the tide from living in hell to living with CH, and making it OK. At one point I thought I was almost disabled. Now I can work, live my life, take care of all the things I need to (sometimes a bit slower than I want, but hey....) In essence, I love my life instead of fighting my life. Even lately, I've been getting hit pretty hard every day...but I shrug my shoulders, get done what I can, bust what I can, and remember to be thankful for the amazing light the universe sends me. Now I think I'll go put on some Dead and hug a tree -Ricardo Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted December 15, 2011 Share Posted December 15, 2011 All of the above!!! ditto... I'm such a better person in my skin since busting. It's no doubt treated more than just the pain of CH. Jeff Quote Link to comment Share on other sites More sharing options...
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