busymex4 Posted May 3, 2012 Share Posted May 3, 2012 Hello I am new here! I have a history of headaches and migraines. In the past 13 years I have had 3 MRIs and I think 2 CT scans, all have been normal. About 10 yrs ago I had one of my MRIs cause I had a headache (bad) that would not go away, I would get a one here and there but went on for a month or longer. Then about about 7 years ago and I had was I thought was a migraine for like almost 2 weeks straight!!!!!! So that was the last time I remember it being really bad and long lasting .......til now. Its different this time, Its mainly all my LEFT side. Pain is from eye to the back of the head into my upper neck! My ear hurts so deep inside it crazy!!!! Even when I swallow on that side at times. I seem to get woken up by my neck,,,,,,,starts in my neck or eye.....same side. I can get this once a day or 2-3 times a day. I WAS thinking my neck was strained and that was causing this. I started reading online cause its been 3 weeks now and I have only had like 3-5 days of no pain. They do come on pretty fast, and I have had some come on and be gone be 30 minutes all by themselves! Always wondered why, Well it sounds like I have a LOT of the symptoms of CHs. Like tonight it started coming on and it lasted for like 2 hours at the most. Sometimes the Pain in OMG!!!! And some is not AS bad, but still bad. A few times I cant even touch my face or hair, it hurts too bad!!!! It is like a DEEP inner burning hurt....like something you cannot GET TO. I cant lay down, seems to get worse! I DO better moving, and TRYING to stay busy! I whin, whimper, rock in bed ....I want to just CRY LOUD, but it hurts to bad to do that! Does this sound like CH??? My history is there and I have ALREADY been to my doc.......I will be going back again next week if its still here (not sure why as i HATE meds) Just wanted to see how this feels for you guys.......Thanks so much! I know you cannot tell me if I have it or not, but hearing what you have to say could tell me a lot! Quote Link to comment Share on other sites More sharing options...
FunGuy Posted May 3, 2012 Share Posted May 3, 2012 I hope your Doc is a good, caring and thorough person who is able to sort this all out. Mixed-type headaches are sometimes extra difficult to treat, one headache aggravating the other. Please let us know how the doc visit goes. FG Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted May 3, 2012 Share Posted May 3, 2012 BusyMex4, All of your symptoms sound like Clusters to me.. Sorry you might be in the club, but good news is you found this site! Many of us went years and years without a correct diagnosis. Don't blow your kidneys out with tylenol or similar pain meds as they don't work for us. There is a list of symptoms for CH on wikipedia I think has a good list. Might want to print it out and take to your doctor. DEMAND from him a script for 100% Oxygen therapy. It's the #1 best, easiest, safest attack abortive that has no side effects! (of course the big pharma companies don't make a dime so lots of doctors don't like presribing it... They'd rather give you a bunch of cr@p that doesn't work to "Try" first).. ok off my soap box.. Pain Free Wishes my friend (PFW), Jeff Quote Link to comment Share on other sites More sharing options...
kika Posted May 3, 2012 Share Posted May 3, 2012 I don't know how scientific this is, but I would request/insist on an Rx for O2 as use it therapeutically and diagnostically. I don't think O2 works for any other headaches besides CH, so if it works A) you get relief and you confirm your suspicion that it's CH. It beats going through a whole whack of meds that often don't work and can have unpleasant side effects. Good luck & take care Quote Link to comment Share on other sites More sharing options...
busymex4 Posted May 3, 2012 Author Share Posted May 3, 2012 I am a med Phobic......SOMETIMES I can take Motrin and it works (after a hour or more) and other time it takes a little of the edge off. I looked this up, and I would have to say that my pain level does seem lower than some......so the pain dont seem as intense as many of yours, BUT the pattern thing and the timing of them is amazingly like me and the biggest thing is how I fidget, everyone says to me to go lay down! NO WAY!!!!! That never made sense to me til now. I sit here now and I feel this coming on......I THOUGHT I was going to have a GOOD day, since it was this late in the afternoon without it hitting me, but guess I was wrong ..... I have 4 kids and this is SO getting in the way of things!!!!! Thanks everyone for responding! Quote Link to comment Share on other sites More sharing options...
blueballs Posted May 3, 2012 Share Posted May 3, 2012 When you go to the doc, ask for a referral to a neurologist if you havent already. That's the one who will get even close to the proper diagnosis. Hope you dont have clusters. bb Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted May 5, 2012 Share Posted May 5, 2012 Hi Bmex, I'm a bit late to the party, sorry (was outa town), but I'd like to hop in here and second BB's suggestion about the neurologist, and this part is critically important: specifically a headache specialist. No garden variety neuros allowed! They generally don't have the training, whereas one thing a headache specialist tends to be really good at is the all important accurate diagnosis. If the headache specialist tells you you have CH, well I'd recommend coming back here and checking out what us CH vets have found to often be more effective and just far superior for prevention than any drugs the MDs dish out, before you get into popping any side effect ridden prescription pills. 8-) Quote Link to comment Share on other sites More sharing options...
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