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5 years pain free now weird cycle


dehabel
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Hi fellow sufferers, 

 

I have a question. I’ve had five years of pain-free and all of a sudden I’m getting another cycle, but it’s super weird. Usually, I can tell during the day that it’s coming I get little twinges of pain that are different than normal and then the cycle will start. This one just started full on waking me up in the middle of the night with with a headache. So I started that vitamin D regiment and in the past two weeks I’ve had three that just wake me up in the middle of the night and that’s all that happens. I don’t get them multiple times during the day. I don’t get them multiple times in the night, it’s just one headache for about 30 minutes three times in two weeks has this ever happened to anyone, do I have cause for concern like this different than a cluster headache?  I do need to say that my head does feel weird during the day. It feels like weak. I don’t know how else to explain it. It feels weak, and that is normal during a cluster spell.
 

Thank you,

Chrissy

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Hi Chrissy, a cycle with unexpected changes in what had previously been consistent, reliable behavior of the attacks, such as the time of day they strike, duration, how many attacks per day, etc., is a phenomenon I've seen reported aplenty, and I've experienced this myself.

Just when a pattern has been seemingly cemented into place, stuff will suddenly out of nowhere get all switched up.

Long remissions after many years with CH is common enough too. Many get caught off guard when the CH does return following an extended remission, having believed their CH had completely burnt out.

 

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