5 years pain free now weird cycle

[dehabel]

Hi fellow sufferers, 

 

I have a question. I’ve had five years of pain-free and all of a sudden I’m getting another cycle, but it’s super weird. Usually, I can tell during the day that it’s coming I get little twinges of pain that are different than normal and then the cycle will start. This one just started full on waking me up in the middle of the night with with a headache. So I started that vitamin D regiment and in the past two weeks I’ve had three that just wake me up in the middle of the night and that’s all that happens. I don’t get them multiple times during the day. I don’t get them multiple times in the night, it’s just one headache for about 30 minutes three times in two weeks has this ever happened to anyone, do I have cause for concern like this different than a cluster headache?  I do need to say that my head does feel weird during the day. It feels like weak. I don’t know how else to explain it. It feels weak, and that is normal during a cluster spell.
 

Thank you,

Chrissy

[Bejeeber]

Hi Chrissy, a cycle with unexpected changes in what had previously been consistent, reliable behavior of the attacks, such as the time of day they strike, duration, how many attacks per day, etc., is a phenomenon I've seen reported aplenty, and I've experienced this myself.

Just when a pattern has been seemingly cemented into place, stuff will suddenly out of nowhere get all switched up.

Long remissions after many years with CH is common enough too. Many get caught off guard when the CH does return following an extended remission, having believed their CH had completely burnt out.

 

[dehabel]

Thank you!  This is the craziest spell ever.  

[Linds430]

I’m currently in “headache season” now and this is similar to my experience. I went almost two years pain free. My first headache was last week and I’ve had 3 moderate pain headaches and 1 severe last night - always at 11pm or after, waking me up in the middle of the night and they last between 30 min and 1 hr. I’m sorry yours are back after 5 years. It’s awful. 

[xBoss]

On 4/4/2025 at 9:03 AM, Linds430 said:

I’m currently in “headache season” now and this is similar to my experience. I went almost two years pain free. My first headache was last week and I’ve had 3 moderate pain headaches and 1 severe last night - always at 11pm or after, waking me up in the middle of the night and they last between 30 min and 1 hr. I’m sorry yours are back after 5 years. It’s awful. 

I'm in the exact same boat. Maybe a week ahead of you. The attacks when I fall asleep are ramping up. Had four last night.

[snafu]

in the same boat. had some weird single hits a month ago. brushed them off although i kind of suspected i'm going to have an episode again. busted a couple of days ago but as it seems it didn't do the trick. got hit with 4 nasty hits at night this thursday. i think daylight saving time is what gave the last push. upping my vitd3 as we speak and hoping it will work.

stay strong!

[xBoss]

14 hours ago, snafu said:

in the same boat. had some weird single hits a month ago. brushed them off although i kind of suspected i'm going to have an episode again. busted a couple of days ago but as it seems it didn't do the trick. got hit with 4 nasty hits at night this thursday. i think daylight saving time is what gave the last push. upping my vitd3 as we speak and hoping it will work.

stay strong!

Unfortunately the seeds did not bust my cycle. Working on getting some MM and a DMT pen but got caught with my pants down on the war kit and the money situation is in shambles since I had to miss some work. Yeah, mine started almost three weeks ago with a headache after drinking some beers and has ramped up to a full cycle. Sitting on about week three of 12 if I can't get a good bust in there. GL!