veggies Posted October 14, 2010 Share Posted October 14, 2010 tl;dr at bottom So when i get hit hard i have a routine i follow... just to kill time til the imitrex kicks in. recently i've added visiting my workplace, as i like the people there and its a way to kill time until the pain resides, a sort of distraction if you will. well, i was talking to a guy who i dont usually see at work, he works days and i work nights.. he said he used to have cluster headaches and doesnt anymore and i was like HOW DID YOU DO THAT.. he claims he went to the hospital and they gave him steroids, a single injection, and he has never had a cluster again... this was only back in march 2008 mind you, so he could relapse, but still... any news on the use of steroids to stop the clustermonsters for good? I'm gonna do my own research but let me know if any of you have any input!!! tl;dr, do steroids stop clusters? Quote Link to comment Share on other sites More sharing options...
Hipshot Posted October 14, 2010 Share Posted October 14, 2010 A steroid taper will take them away temporarily. That's the good news. The bad news is a (rare) side effect: AVN Avascular Necrosis. I had to have a hip replaced and others here have some similar stories. It's not worth the gamble. Dan Prednisone legal and mushrooms not? WTF Quote Link to comment Share on other sites More sharing options...
tingeling Posted October 14, 2010 Share Posted October 14, 2010 Steroids didn`t do much to my CH. So it varies allot. It wasn`t my doc who prescribed them. When i visited him, he told me this is a kind of medicin you should do once maybe twice in life time. He thinks side effects from medicines always should be considered. The specialist who prescribed them, she didn`t even bother look down when i showed her my bleeding feets (socks made wounds), that didn`t grow. And told me no way it was the medicines. this is one example only. Others may take larger doses, and still don`t experience what others do. Steroid are what they are anyway. When you look into what medicines you are given, for me, i will not tolerate to get poison my body with chemicals. But i need some sort of treatment. From the choices i have, i choose what comes natural. The natural choice is also what i have to take less, and it doesn`t give me side effects, beside some excess water about three days. It is what gives me, as i see it, best future health. Your body and mind, your choice Quote Link to comment Share on other sites More sharing options...
Guest Posted October 18, 2010 Share Posted October 18, 2010 A steroid taper will take them away temporarily. That's the good news. The bad news is a (rare) side effect: AVN Avascular Necrosis. I had to have a hip replaced and others here have some similar stories. It's not worth the gamble. Dan Prednisone legal and mushrooms not? WTF not to mention wieght gain, loss of body hair, stretch marks, certain body parts not functioning properly anymore (males in general) and the dependence that they create work great at first, then next time around ya need a bit higher dose, and so on, and the time between the steroid tapers gets shorter and shorter as far as pain free, many claim once the steroid taper is over the ch come back in a few weeks/months/years and are far more intense and harder to rid of. its a vicious cycle to go through, and many find the end result to be . . . side effects of steroids, no longer can use them, and ya still got headaches and possibly a few more medical problems if your gonna use them, make sure you are monitored for side effects very frequently if your using busting methods explained here on this website, you need to drop the imitrex, it will make busting more difficult and far less effective, ive seen a post or two saying u have dosed and are using imitrex, need to pick one or the other, stop one headache at a time or possibly knock out the whole cycle be well AO Quote Link to comment Share on other sites More sharing options...
Psiloscribe Posted October 18, 2010 Share Posted October 18, 2010 So when i get hit hard i have a routine i follow... just to kill time til the imitrex kicks in. You go visiting people during a cluster attack? Are you using imitrex tablets? If so the injections and nasal sprays don't take nearly as long to kick in...FWIW Some steroid injections can last longer than oral tablets. With the increased effects on your system come the increased side effects. There is no research that shows steroids break cycles. Almost every cluster sufferer here will tell you from experience that they can give you a short break but the cycles return and oftentimes stronger than before. Bob Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted October 18, 2010 Share Posted October 18, 2010 ..Almost every cluster sufferer here will tell you from experience that they can give you a short break but the cycles return and oftentimes stronger than before... Yeah that's been my experience. Short break from CH. Permanent side effects (due to staying longer at a high dose than is ordinarily advised). Please don't get any hopes up for steroids (we're talking prednisone here) enabling you to never have a cluster again. Quote Link to comment Share on other sites More sharing options...
Hipshot Posted October 18, 2010 Share Posted October 18, 2010 You go visiting people during a cluster attack? HMMMM Quote Link to comment Share on other sites More sharing options...
veggies Posted October 18, 2010 Author Share Posted October 18, 2010 yeah my ch has been very weird lately, ive been busting and stuff but one day i busted way too early (liek 3 days after previous bust) because im an idiot, and had like kip 3 aches, enough to annoy me. so i am able to go in to work (liquor store, ironically) grab a red bull and excedrin migraine cause i dont wanna take an imitrex PILL, and have some cigarettes. within a half hour im fine, then i hang out and talk to people. then leave, feeling better. but im totally not considering steroids anymore, thanks for the (scary) info Quote Link to comment Share on other sites More sharing options...
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