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Hi, This is great news. I am so happy for you. I also went through the phase of hopelessness quite to the extreme. However, I found the answers within this wonderful group of souls and I so far have had 6 wonderful pain free years away from this curse. The only adjustment I made to my lifestyle aside from starting the D3 Regimen 6 years ago, was just stopping alcohol completely. I mean I was a social drinker but just stopped it. Now I can't even stand the thought of it. I still smoke since 1995. I haven't made any changes to my diet much, beside eating alot of apples and drinking alot of water. O2 has my back always just incase. So that is a must have readily available always. So goodluck going forward and keep to what works for you. Pain free wishes

Hi The injections have been discontinued in South Africa for some time now. I'm in Durban. However, what I found personally is that those injections, whilst it does abort the attack, it brings on a series of follow up attacks. I would suggest that you read through the vitamin D3 Regimen. Since I had been introduced to this magical treatment by fellow sufferers, it has really working so well for me. It does take some time to start working, however, once you are a month or so in it, it works wonders at giving you years of remission. Well that's what I found. You just have to be patient with beginning and once you in the game, you will be rewarded greatly. It is easy to lose hope whilst beginning. I did. But I gave it my all and I am pain free going on 6 years now. Whilst doing this regimen you will still get attacks at first, however, kill those attacks with O2 and maybe some OTC pain meds for the after pain on that side. Look for the D3 Regimen on this site. You won't go wrong. During these past 6 years, yes "he" did appear once, however I was guided to increase the D3 dosage for a few weeks and it phased off. Always keep O2 on hand. Always. Make sure to check your D3 levels regularly. When I started, mine was sitting at 18. Explained my brutal attacks and frequent cycles. I managed to bring it up over 80 with loading doses of D3 along with the rest of the vitamins within a matter of 6 weeks. I am so glad this is working so well for me. Maybe consider or read up on it. Well wishes. Snowflake

Welcome Eric! So glad you found your way here! There are so many people here that are willing to help, give support and advice on how to deal. Welcome!!!!!

Welcome Eric. You are in the right place. Wishing you a well informed read/research and I hope you find a path of management that suits you well to keep the Beast in its cage. Goodluck

Anyone consider parasites to be a cause for clusters

Thanks for the welcome! I’ll give that post a read. Looks like it’ll answer a lot of what I’ve been wondering about. I’m sure I’ll have some questions once I dive in!

Thanks for reply.

Hi Friends. I hope you all are managing and coping well. Just a quick one, I wanted to add Glutathione, with the D3 Regimen to help/aid with the repair of the muscle surrounding both my hip replacements since I'm due for my second set of hip replacement surgery cos it's been over 15 years now. I'm 45 at the moment, so if I need to have them done again, now is the right time. Dont want to reach my 70s and then it will be too risky. However, if I can use alternatives like Glutathione to repair the muscles mainly cos my current ceramic joints are still in tact and functioning properly. Well... My left one is squeaking if I squat ( was thinking of using WD40.... Lol kidding) , but he ortho took x-rays and Said that it still looks in good shape. I do experience pain from time to time and I walk with a cane to assist me. Is this ok to Take glutathione or will it interfere with the Ch and the regimen? Thanks and well wishes always. Snowflake

Hi, welcome! It's a good place to be! I wish you well on your warrior journey.

Welcome, eric'. You might find this post helpful for an overview of things related to CH. Basic non-busting information - ClusterBuster Files - ClusterBusters At the end of the post there is core information about "busting," which is the reason this site was created. Of course, nothing beats interaction and direct answers to your specific questions, but that post might have some useful information in it.

Hi everyone, I’m new here and just wanted to say how grateful I am to have found this forum. Like so many of you, I’ve been navigating the challenges of cluster headaches and all the confusion, frustration, and pain that comes with them. I’ve tried a few things, some that helped a little, some that didn’t—but I know I have a lot to learn. More than anything, I’m here to connect with others who get it. Sometimes it’s just good to know you’re not alone in this fight. Looking forward to reading through your stories, learning from your experiences, and hopefully finding some new ideas or inspiration along the way. Wishing relief and strength to everyone out there.

Wow! Outstanding article. Thank you.

I would agree, across all media it seems that gets the least coverage. This is another option I want to get into my toolbox.

That is a very nice article!!!!!! My only wish, small in the context of how good the article is, is that RC seeds could get a mention in these kinds of stories. A discussion of them being generally legal to purchase and possess, highly effective, and generally tripless, would be very valuable for those folks who think MM would be too much for them, or too risky for them.

I had the pleasure of meeting Sammie during Headache on the Hill in March as she was part of our Texas delegation. https://www.theguardian.com/science/ng-interactive/2025/apr/23/cluster-headaches-magic-mushrooms-psilocybin?CMP=oth_b-aplnews_d-5

Gonna be my go to snack when busting know!!!!!!

I can make the world alot bigger if you want me to @CHfather

Made the ugly yellow spiders in my bad dream seem cute!!

Especially going by @BoscoPiko's reaction, not willing to put my money where my mouth is and even give that a single viewing.

Ok now that was horrifying!

People! Your worlds are way too small. Cooking Tarantula with Unique Style and Delicious Eating | Cooking Special Insects

So strange to wake up and read this after having bad dreams all night about being in a house infested with big ugly yellow spiders (by product of all the time I've spent in the greenhouse latley i think). In my dream I was trying to vacuum them up, in hindsight I guess I should have been getting my snack on....

I'm with you bej, spiders for breakfast dinner and tea from know on!!!!!!

I guess I've just personally been clueless and totally missing out - gonna head straight to the garage and rummage behind boxes and stuff in hopes of making up for lost time.

Wait . . . You mean everyone doesn't already do that?