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According to the OUCH "Recommended Doctor" list, these three in or near Seattle have been recommended by people with CH:: Issaquah: Dr Lily Jung Henson Seattle: Dr. Sylvia Lucas Neurology Headache and Multiple Sclerosis Clinic at UWMC Dr. Elena Robinson Krischner Gordon and Erlich Mds As Denny says, you have been getting really bad medical advice for a really long time. It's shocking to me (and I suspect to most of us) that oxy + imitrex pills gave you any relief. (Makes me wonder whether you actually have CH -- I'm not saying that you haven't been diagnosed with CH; only that those things usually don't work, and oxygen, properly used, almost always does.) Some things even a good doctor probably won't recommend (because they won't know about them): the vitamin D3 regimen helps lots of people (see the ClusterBuster Files section of this board for more info); drinking an energy shot or energy drink (or sometimes a strong cup of coffee) at the first sign of an attack helps; melatonin at night, starting with 6-9mg and working up, can help.

Guiseppi and I (Joe and Christy) are coming. Hotel is booked, registration paid, and now working on airfare. Looking forward to seeing everyone.