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'Reading all the blogs that in no way represent the experience I, and so many others, have had at the clinic serves no purpose for me.' Well, that says it all. You have posted on three of the Boards on this site. They all say the same thing. CURE. You want to speak at our conference even. You accuse this site of not honoring its' mission. In addition, you have provided no facts to support your stance. We will keep an eye out for Neurologist's testing and replicating this methed for sure. If it is proven to be effective as a cure, I am certain that we will all celebrate and post the outcome here. For now, perhaps you could provide facts? I am sure that my friend in South Africa, who has also undergone this treatment would be quite interested in reading them. I have had CH for over 40 years. I have had a ten year remission during that time. I have seen treatments come and go too. If this treatment proves to be a 'cure' without creating casualties along the way I might be interested. Facts please.

Our Clusterbuster conference is only a couple weeks away!! For those of you that aren't going but would like to say hello to the group, you have a chance. Some of you have already sent us your videos but would like more and let more people participate. We're looking for a short (under a minute is fine) hello. Content is up to you but we're looking for you to say hello, your name, where you're from (Country, state, city ??) if you have clusters or are a supporter, and just a little hello message. Maybe your whole family wants to say HI. If you just want to use your screen name, that's fine. Maybe both names ;-) Your standard "vine" video is fine or a little longer is great. You can be funny or serious, before or after you've had your coffee. We'd love to show the international group that we are, and see how many countries can be represented. Say hello in Hungarian if you'd like. Especially if you are from Hungary We'll be showing the videos during breaks and lunch and possibly at the President's Reception. Everyone that sends one in can get a Clusterbusters wrist band and we will draw some names to get a conference tee-shirt. Send them in to us at: conference@clusterbusters.org Include your mailing address if you want a wrist band/shirt. Try to keep them "cluster" family friendly. Please don't post them here before the conference. Let's keep them a surprise to those attending. We may make the entire loop of them available on our You Tube channel after the conference (unless you want yours out of the loop) If you don't know how to shoot and send a video, find a teenager with a phone, have them take a short video and have them email it to you. Then forward it to us We'd love to see you at the conference!!! Bob