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Showing content with the highest reputation on 04/09/2018 in all areas

  1. Adding just a little to what Jon said. . . . Here's a link to learn more about the D3 regimen: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 In San Francisco, UCSF Medical Center Headache Center is led by one of the world's leading CH experts, Dr. Peter Goadsby: https://www.ucsfhealth.org/clinics/headache_center/ It's hard for me to imagine how fresh air helped you, but as Jon says, the highly-effective, no-side-effect standard abortive is oxygen. Lucky for you (compared to many people), I think you can count on seeing a doctor at Stanford or in SF who will prescribe O2. For some people, sipping ice water through a straw aimed at the roof of the mouth, in order to induce "brain freeze," will stop an attack. Any other method that gets that roof very cold (such as holding frozen juice concentrate against it) will accomplish the same purpose. I'm not mentioning drugs or druglike things such as melatonin and Benadryl, since you say you don't want that. If you change your mind, let us know. Since your hits come at night, you could try sleeping in a recliner or in some more upright position (e.g., at a table with your head on pillows on the table).
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  2. Welcome Dima....glad you found us...some good folks will be by shortly to reply...in the meantime.. It's strange.....for some...like myself...stress is protective...relief FROM stress is a trigger......
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  3. I was taking sumatriptan about 5 times a day at one point. I had both the shots and the pills. Pills took about 30 minutes to set in the shots in about 5. I then found out about the O2 on this site and gave that a try and kept the triptan as a backup if I could not get oxygen or did not have it with me. I then read about how triptans can make things worse if taken to much and since I knew I was way over the recommended daily dose I figured I would stop them all together. I stopped on a Friday night and had a hell of a weekend rolling around in bed with non stop headaches but it was well worth it. I still am getting headaches on a daily basis and I am working on that with the vitamin D and M but I do not have them like I did when I was eating the sumatriptan for every headache! I actually had my first pain free day yesterday for the firs time in a long time. I still keep a triptan pill or 2 with me at all times just incase the shit hits the fan but only take that as a last resort. I maybe take one every other month. Finding a o2 supplier to get me enough delivered to my house as often as I need it was a hard thing to get done but with a little yelling and fighting I now have a place that will deliver next day for me with a phone call. Fingers crossed that they dont have a change of management and I need to start my fight over again. Best of luck to you and I would get that o2 tank in next to your bed as soon as you can.
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  4. Haha! I know the feeling exactly! I STILL refuse to drink Pepsi or eat fudge because one round of clusters started the night that I drank Pepsi for the first time in years and ate fudge for the first time in years. All other things were normal routine that night... Unfortunately, even completely omitting both from my diet ever since, had no improvement of clusters (that was about 15 years ago). My recent recovery was in no way related.
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  5. Anecdotal: I've had multiple autoimmune disorders...CH was the first....MS was suspected by several neuros....lymphoma and numerous environmental/food allergies followed. Antihistamines were helpful during my early ch career. I can't prove or attest to a damn provable thing...sometimes ya just "know"...I await the studies to affirm...... Best Jon
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  6. I have used the Gammacore for the last month and it works great as a preventative treatment for me, I use it for 4 minutes twice a day. I paid $598 for the gammacore device that has 300 two minute sessions and a 30 day shutoff timer that shuts off the device after 30 days of use (or non-use.) Once activated the gammacore expires in 30 days, I used it 90 times in a month so 300 uses is more than enough for anyone in a month. I also underwent Botox for a year prior but the side effects of Botox were too much for me so I prefer the gammacore. I am a retired Electrical Electrical Engineer that served on a nuclear submarine so I know a little about acoustical energy, I took the gammacore apart and the 2 silver round electrodes on top are actually sonic transducers that emit sound waves - NOT electrical waves. Underneath the electrodes are two clear plastic balls filled with a gel in which the sound wave is transmitted into the vagus nerve. 2 electrode screws are inserted into the gel to transmit the sound energy and the frequency is adjustable. This stimulation of the vagus nerve is by sound, quite similar to the Yoga chant "oooohhhhmmmm" that also can vibrate the vagus nerve slightly while the gammacore can REALLY vibrate the vagus nerve! The Gammacore is powered by 2 three volt batteries in parallel so if you know what you are doing you can "bypass" the 30 day shutoff timer and use the single gammacore for months and save thousands. You will need a couple electrical jumpers and a small rheostat to adjust the sound frequency, can get at radioshack for $5 bucks. I will post the detailed instructions and photos as to how to bypass the gammacore timer and have a permanent device, I cannot recommend this for novices due to safety risks and always wear eye protection when working around batteries. And I predict gammacore will start selling a permanent gammacore device soon, $598 a month is ABSURD!
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