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Hi Headsufferer, Welcome to the forum, really sorry you have to be here. In 2006/2007 I transitioned from male to female, and the hormones I took altered my hypothalamus, which, among other things, impacts headaches. I've always had periodic migraines, they run in the family. But in Jan 2007, I was diagnosed with daily chronic headaches, chronic migraines and cluster headaches, which turned chronic. From 31 Dec 2006 - July 2007, I had one constant non-stop headache + migraines and clusters. In 2011, I had 257 cluster attacks, 276 daily headaches and 42 migraines (each lasting 3-7 days). Not sure we can solve all your problems, but there is hope. Trust me, there is hope. By Nov 2011, I was getting 2-5 severe cluster attacks every 2-3 days. It was then that I sat down to put a date in my calendar to exit planet Earth, and then I remembered this forum, and logged on. I had given myself one year to find a solution. And hey, I'm still here. You can be too. I weened myself off of topiramate and started busting on 14 Dec 2011. I still have chronic cluster headaches, maybe 2 or 3 a month. They last 30 seconds to a few minutes on average, and although they can be sharp, I wouldn't call them painful. In 2012, after I started busting, I only had 3 migraines. I was seeing a neurologist at Addenbrooke's at the time, btw. He too had thrown his hands in the air as to what to do next. That was one of the reasons I started treating myself. As for restless leg syndrome, I stopped having caffeine after 5pm as my restless leg usually happened at night. No coffee, no soft drinks. I also found having a hot bath or spraying hot water on my legs when they were being restless helped. And, get exercise if you can - although I appreciate that is difficult. As for clusters and migraines, start reading the Clusterbuster Files section. Go through it with a fine toothed comb, especially the bit about playing well well others. You may find some of the meds you're currently on will prevent the methods we talk about here from working. And yes, they do work. Oh, and busting will also help with the depression. As far as epilepsy goes, cannabis I think is good for that. For some people, it makes their clusters worse, so tread carefully. Your daughter sounds absolutely wonderful. I hope we can help so she doesn't have to worry. MG

You do have a lot going on but you are in a good place here. I only have experience with the Clusters, I am chronic. The first thing I would say is get a prescription for Oxygen and get a cluster mask from here http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit you will want high flow rate and pure oxygen. this will help abort your cluster without the need for other medication. I also drink a 5hr energy drink at the first feeling of the cluster coming on. I do not know if the 5hr drink would conflict with any of your other issues so I would look into that. We have a tun of other information on this site you can read up on and pick what route you want to go. Read and ask questions.

I’m chronic and I dose once a month and that usually does it for me.