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Showing content with the highest reputation on 08/16/2020 in all areas

  1. Hey SECAuthentics, All of us on the anti-inflammatory regimen experience burnthrough CH at one time or another. The solution is simple. If you haven't switched to the Bio-Tech D3-50 50,000 IU water soluble vitamin D3 now is a good time to do so. You can order it from amazon or iherb. In the mean time most CHers in your shoes, me included, have loaded vitamin D3 at 50,000 IU/day for a week then droped back to the usual maintenance dose. When you switch to the Bio-Tech D3-50, one capsule a week is a good starting maintenance dose. I updated the basic regimen in July of 2018 adding the Bio-Tech D3-50 in place of the oil-based liquid softgel vitamin D3 formulation. In Jan of 2019, I added Methyl Folate + in place of the generic vitamin B 50/100 complex. The following photo illustrates the latest version of this regimen by brand and dose. CHers who stick with the above brands tend to experience a faster rate of response to this regimen. Take care and please keep us posted. V/R, Batch
    2 points
  2. Hi Rios! I see that you have gotten some great advice already! Has she tried Prednisone? Like a 5 day taper pack? It will kill the CH while she is on it. Not good for long term, but great to give her a much needed break. While on that, she could be starting with the Verapamil short acting and let it get to work. As you know, any physician can prescribe those for her in the short term. It would be a start. Verap should be titered up with checks for blood pressure and heart monitoring to perhaps. She is having a lot of Trigeminal Neuralgia Symptoms I see. When mine gets fired up, warm heat really helps a lot. I would hold my face over a heat source and be soothed enough to lie down after a while. I don't want anything to touch it either! Cold made it worse. Those were the early days of my trip down this path. I slept on my back on the sofa to prevent rolling over on it and setting off another attack. While not the most common form of CH, some of us get hit thru the temple area the hardest. Mine feels like a hot railroad spike is being driven thru my temple and into the nerve of my eye. It feels light lightening strikes crawling further and further across your face as the branches light up. I try to 'push' it back by lightly stroking the ends of the tentacles that are invading my face with a screaming hot nerve pain. Then, it reaches the point where you cannot touch any of it and just rock in agony, praying for that damn octopus to move back where it came from. It leaves the whole area sore. And leaves you exhausted after. Even if her symptoms are not the most prevalent type, it likely is CH. Just a variant. They might want to treat her for the neuralgia first, but I suspect that it is not at the bottom of the problem. Perhaps that is why the shots are not working. And getting hit right after falling asleep is classic!!! Hugs to you both and many thanks for being her supporter!! We love our supporters! And thank you both for working in the COVID conditions!! My heart goes out to you.
    1 point
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