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Showing content with the highest reputation on 01/30/2021 in all areas

  1. drewbie, I haven't read your whole history, so maybe I'm mentioning things that you have already addressed, but there's a lot of stuff out there that could be part of a plan B that becomes part of Plan A. I feel hopeful that the D3 regimen is likely to make a big difference for you. A week is way too soon to tell about that, but it could be what is at least reducing your symptoms now. I think Batch (xxx) would suggest that at a time like now when your symptoms have ramped up, you ought to also be taking Benadryl or Quercetin. Jteira has mentioned busting. A person might even be able to do that without the regular tripping by using seeds. Pharmaceutically, there are all the new CGRP-related medications, both preventive (for example, Emgality) and abortive (for example, Ubrelvy). The medication Octreotide can work as an abortive when triptans don't, and so can DHE (dihydroergotamine). You might have tried Verapamil as a preventive, but even if you did, you might not have reached a high enough level for it to be effective (most doctors don't prescribe the levels that some people with CH need). Lithium is often quite effective as a preventive, and there are other things that work for some people, such as gabapentin and topirimate. Indomethacin actually helps some people with CH, and for reasons I mentioned in my post to Jteira, it might be worth giving that a shot. For some people, ketamine has been a very effective preventive. I understand that saying there are a lot of possible treatments and "all you have to do" is keep trying them is maybe not very heartening. There is likely to be some disappointment associated with that search, and some expense, and in some cases some side effects that you might not want. But you plainly have strong reasons to keep trying, and I'm just saying that there are things that could be tried.
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