Leaderboard

Look into RC seeds (Rivera Corymbosa seeds). They can do the trick and no tripping for most. You can order them online and have them in a few days, Grind them up in a pepper mill, soak them in some spring water for about an hour then drink them down. They can work just as well as MM sometimes with less mind altering effects. You can read all about them on this site by putting RC seeds in the search bar at the top of the page. I guess your doctor forgot to give you the jerk free pass card when they told ya you have clusters.. I got 2 of them and a card allowing me to be an ass twice a week.

'I guess your doctor forgot to give you the jerk free pass card when they told ya you have clusters.. I got 2 of them and a card allowing me to be an ass twice a week.' Agreed, we all need at least one of these!!!! Bosco, we learn to laugh about it over time I think. Sort of laugh or cry? I'll take laugh any day. Let the anger about it out, scream to the heavens and then get on with life. I suspect it teaches us to value good times a lot more than many do and that is a gift to be savored. Fun Times made a great suggestion regarding RC seeds too!!!

Understood about the major concern regarding possible negative effect of busting on mental health. Last I checked it can be a real risk, especially with family history, and is not to be taken lightly. Makes me wish even more for studies on non-hallucinogenic versions like BOL (which there currently is pretty much no availability of) to be undertaken in a big way, with the hope that besides there being great CH killing potential there (which we already pretty much know), it could also be shown to be effective at pushing the happy button.

You aren’t a jerk - just a cluster head in excruciating pain. I am sure the wildfires and poor air quality are contributing to your suffering. I am in the NorthEast but when we have weather issues (pressure spikes and drops, blizzards etc) it definitely plays a role. You may want to consider buying an air filter for in your home. My office at work is very stuffy etc and it has helped since we put a filter in to try to clean up the air. We all feel this way in the midst of it. My last episode all I could think was trying to make my way into the kitchen and find the knife block to use a Henckels to put myself out of my misery. Be well and hang in there!

Overall, I'd say you are not incurring any overuse risk, particularly if it's sumatriptan that you're using. Sumatriptan has a very short half-life, so your daily 25mg is fully out of your system before your next dose. I don't know whether you're messing with anything significant by breaking them up, but I would think not. (They do come in 25mg doses.) You are very fortunate! We rarely -- if ever; I don't remember it happening at all -- see anyone here who stops a CH attack straight off (or at all) with any dose of a triptan tablet, let alone a dose that small. Even with migraine, where the tablets are sometimes effective, it usually takes a while for a pill to have an effect.

Happens to most of us if not all. I feel mean, sad angry and I lash out at people all the time. My wife will sometimes remind me that im being an ass and kind of bring it to my attention but she understands why I am this way. As far as staying happy? I just kind of think about the ones I love and I am thankful that this is all happening to me and not them. I can deal with this my own way but if someone else had clusters then I would be one of the ones who just didn't get it. I know it will pass in a few days or weeks and I will feel better again. I am chronic so I have forgotten what it is like to be pain free for more than a day but I do have days that are better then others and I try to enjoy them. Depending no your location you may be picking up some sort of allergy from being out with your horses. you might want to look into the vitamin D3 by our member here know as XXX. I am sorry if you posted about this already and I missed it but how else are you dealing with your clusters? Coming on this site and venting about how your feeling is huge! people here understand and will help you figure it out.

and 4th it....

Now that Spiny has seconded the RC, I'm going to third it.

Thank you Fun Times. Very helpful! P.S. I am sure there are lots of “Delco”s (from your location) but we might actually be neighbors. If so, nice to know I am less alone!

Also, I hope it's safe to assume your boxing hobby doesn't involve you being hit in the head.

The psychedelics used for preventing CH cycles can indeed also have the side effect of making you happier. Of course YMMV. Personally I'm convinced they've generally lightened my mood. And this "mushrooms make ya happy" deal is moving beyond conjecture, with all the scientific attention now being heaped upon the subject. Like this bit from Web MD / New England Journal of Medicine / London Imperial College: Study: 'Magic Mushrooms' May Be Best Drug for Depression

BoscoPiko, Odd as it sounds, we get you. I try to be soft, yet I know my natural state is pretty gruff. I figure if I practice nice long enough that it'll become my natural state. I don't know if it's CH or other things in life (or the combination). I don't recall if you're busting or not? I've found (as most others I think), that busting comes with it other positive affects on our personalities. I haven't really felt happy in a long time. That seems odd to say. Get through this cycle and I promise you'll feel better. Your horse is ready for a long run when you've kicked your CH beast to the corner. Cheers, J

.....different strokes for different folks.....aint no absolutes in clusterville.... .....for about 7 yrs verapamil was a relatively successful med for me....manageable side effects and knocked out about 70% of hits and seemed to make hits lesser in intensity. 5-6 cycles per yr so a prevent was critical. nothing less than 480 mg/dy worked (had to be IR)....would go to 1000+ in high cycle. heart function monitoring essential, and extra fiber/water to keep things moving along. a serious med for sure....for a serious condition. eventually got tired of the constant fatigue and being med reliant and dialed in OXYGEN/energy drinks, D3, w/Zomig for breakthroughs (rarely) for my ultimate management....w/chemo, age, and other life changes being additional factors i wonder about... .....i'd do it again if i didn't know now what i didn't know then, or what's a Clusterbusters for? but, the alternative options presented here are not always possible, practical, or suitable for all...as far as i'm concerned, verapamil is an effective prevent for a good number of folk, and remains a valid tool in the ammo belt... best jonathan