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Showing content with the highest reputation on 11/21/2021 in Posts

  1. I like your idea of contacting the compounding pharmacy to locate a physician who will work with you. Can’t your doc get you a bridging prescription? Ketamine is schedule 3 so it’s like getting an opiate. Miserable place to be in. I’m not sure I’d be so stoic with the O2. Use it for all of them cause it works better and faster before the headache is fully establIshed. Keep up the positive attitude it’s tough to stay strong when you are constantly in the shit.
    3 points
  2. Yes, it is very important for the community for those who have taken Emgality to post their results. I too thank you Icantdance!!
    1 point
  3. i took the Emgality loading dose a few weeks ago. Got a fever, rash and am experiencing constipation issues and weight gain. Had zero effect positive or negative on my cycle.
    1 point
  4. Day 3 post infusion, 2 wicked day time attacks 1 wicked evening attack and 2-3 alarm clock attacks (wicked but I aborted w oxygen fairly easily). I’m saving my O2 for alarm clock attacks or kipp 10s I can’t tough out. it’s taking it’s toll on my family, despite my warning I was going to be up the creek the were “optimists “ that a new doc down here would have some magical answer/ treatment. I’m trying to let go of my anger about it all but it’s hard when I’m getting clobbered Day 3 was better than before I started all K tx a year ago but still has me questioning wanting to live like this. !!!not in the suicidal sense but in the if I died of natural causes sense it wouldn’t be so bad. My QOL sucks and unless I am able to find a doc to help me w home use K I’m up the river... time to call north FL docs Monday. Found a few pain docs at Uf that treat CH and some other headache pain docs as well. After I exhaust these options I’ll call the few remaining compounding pharmacy’s I haven’t called yet in N FL to see if they have a referral. After that my plan is to move back some how and see my old doc. Or a new one that works w K if some one here has a recommendation.
    0 points
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