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Showing content with the highest reputation on 01/12/2022 in Posts

  1. Another 3 weeks and it seems like I get 1 migraine every 2 weeks or so. Completely CH free since I started Nurtec. I have always thought that if I could get controll of the migraines the clusters would stop. I sure hope this continues.
    3 points
  2. Remissions are pretty normal for us episodics. I recently skipped two years and then it came back strong and lasted nearly six months. There is really no baseline, CH can vary widely from person to person or year to year. Cycles will vary as well, you can start out slow then they pick up and you are getting hit seven times a day for an hour plus per hit. Mine usually start slow then ramp up and then go down during the whole cycle. Try to keep tabs on it all with a journal so you can get a better understanding of how it all plays out. GL warrior!
    1 point
  3. He had.. beers?? Oksy. I'm impressed, gotta be feeling better! Mo
    1 point
  4. Update: This has continued to be effective, but he was still having occasional less severe attacks, especially when the weather changed which has been happening a lot recently where we live. Added Quercetin twice daily to the schedule about 10 days ago, seems to have helped even more. Only one attack since then. He’s even been able to have a couple beers without a headache which has previously been unheard of.
    1 point
  5. Juss, When I first joined this board, almost exactly eleven years ago, I was desperate to help my daughter (the person in my family who has CH). That's why I picked the screen name that I have. There was a guy who was furious with me, and let me know that in a very harsh PM, because he thought I was trying to make myself sound like something special, I guess like the "father" of CB or something. Farthest thing from my mind, but he wasn't having it. (He was generous enough to write me an apology, a few years later, for that and some other irritations he had with me. I have always been touched by that decency on his part (Brian, if you're listening. . . )) I mention this because I think you might have me confused with the guy who is indeed the "father" of this board, Bob Wold, whose screen name is Psiloscribe, and who perhaps is a genius in terms of knowing things about CH. I have no knowledge about Botox, and don't think I have posted anything about Botox, except maybe to point someone to the research here and there. If I were to need anything to convince myself that I am not a genius, it would be your posts, which I ponder from time to time, not only because of their content, which I generally can't grasp (but which I am glad to see that others, such as Bosco', Shaun', Jeebs, and jon' are learning from, so they can help teach me/us), but because they illustrate to me that I only know "a lot" about the most conventional things related to CH -- oxygen, meds, RC seeds, and a couple of others -- and the advice I share is nowhere as sophisticated as it perhaps could be. I have been telling myself to go back and thoroughly read your posts and links so I could at least be a little smarter, and with some free time I hope to undertake that project. (You reminded me of one of my favorite lines from a novel I liked quite a lot, by John Lanchester. The narrator, who one slowly comes to realize is completely nuts, is very jealous of his brother, who many consider to be a genius. The narrator says, "I myself have always disliked being called a 'genius.' It is fascinating to notice how quick people have been to intuit this aversion and avoid using the term."
    1 point
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