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Hi all sorry for the long delay in updates. It appears that the infusions did help or my CH just naturally cycles a little. I finally found a doc willing to work w me using ketamine at home and I am using intra nasal and troches. They also do infusions so I am going to schedule one this week. Since I got back on at home Ketamine my CH has quieted down a bunch but I still get hit. I am using a fair amount of K per month (600-800mg total). But I have built some tolerance since I have been using it a year and a half now. Most docs won’t give you that much per day bc they aren’t used to working w it. You do have to be mindful and not over use it as you can get gall bladder inflammation and gu side effects.

At this point, I use what NAC is available. Generally speaking, this is the Life Extensions NAC, which is $10 for a monthly supply. Concerning the NAD, I purchase the Now Foods NADH for $24, a 2-month supply-that is what is available by Vitacost. Frankly, I am not qualified to make an informed opinion on the discernable differences between NAD, NADH, and NAD3. I do realize the differences in the formulaic compound, but they do not appear justifiable in price differences. I am most concerned about the entire holistic approach, not attacking one problem. My concern when I see brilliant marketing is whether or not it is horse shit? Think Ultra Omega 3 on TV, which has barely any EPA or DHA, the main ingredients to reduce the inflammatory markers. And DHA is of utmost importance for cognitive improvements. I could go on for hours: I am learning myself. Nutrition and nonpharmaceutical approaches are--dare I say--still in the backwaters and dark ages. Thank God that all of my doctors know a fair amount about nutrition, and in comparison to most doctors, it is profound.

Hi Juss, That's just the only image I could get to load LOL. I do my best to not feed the Amazon beast as well. I actually got a bunch of those little bags from my mother in law who makes jewelry but it's good to know about Vitacost!

@Juss, are you going with the NOW brand of NADH? Any thoughts on it and your NAC vs the NAD3/NAD+ craze? I'm known to procure and consume HPN brand NAD3 from the Bezos empire, but it was kind of a roll the dice crapshoot when choosing between it and the Niagen NAD+ (and whether those forms are what they are marketing-cracked-up-to-be). I'd like to drop several more ultra-annoying acronyms here for all to enjoy right now, but have to run, will check back later.

In the psychiatric world, I have known several Manic Depressives and several with severe trauma to have sleep paralysis. Some just had severe clinical depression, wait, they call it major depression now. Oh, I know a few on the verge of a nervous breakdown. Oddly, the schizo types I never saw having the issue. Physically, those with disruptive sleep apnea, who quite often sleep on their back, alarmingly have sleep paralysis. We all know they try to pass the CPAP as helping CH and I don't know of a single person that it has helped. Narcolepsy--especially with Cataplexy---can cause sleep paralysis. They thought Narcolepsy caused my paralysis. It turns out that I never had narcolepsy, fibromyalgia, most likely CH or Migraine, or Chronic Pain Syndrome, yeah, those eminent docs for the past 8 years did not realize that it was a movement disorder, most likely, progressive Multiple Sclerosis with possible damage to the lobes and basal ganglia-oh well, and anyway. I suggest a sleep study, good luck with Rona. All headache forms can cause paralysis as well, that is something I am a bit uncomfortable/unqualified giving an opinion on. I don't often hear of it based on headaches. I would see the head doctor, a sleep specialist, and possibly a therapist-preferably if you can find one, psychodynamic/psychoanalytic, or CBT. Anything else, downright questionable. I have heard of antidepressants helping; however, they have more side effects than benefits. Everyone hates it when I say this, it is true: CBT provides numerous benefits, works better, and it is cheaper, has no side effects. If uncomfortable talking, try the excellent book Feeling Good The New Mood Therapy by Dr. David Burns ($10). I'd double down that there are underlying psych issues. Pills just mask the problem. I know first hand that until I dealt with the unknown trauma and wigging out, the paralysis was unreal.

Hey Cast Iron, Sorry to be so slow coming to the party. As long as your serum calcium assay remains within its normal reference range there's no hypercalcemia, a.k.a., vitamin D3 intoxication/toxicity. I've kept my 25(OH)D3 up around 450 nmol/L (180 ng/mL) for quite a while as you can see in the 5-year chart of my lab assays for 25(OH)D3, calcium and PTH.. It's presently up around 680 nmol/L (270 ng/mL) due to Fall/Winter leaf mold spores that trigger allergic rhinitis. After many years watching my assays for serum 25(HO)D3, calcium and PTH, my PCP looks at my 25(OH)D3 assay, smiles and then says, "I have no problem with your 25(OH)D3 this high as long as it helps prevent your CH and your serum calcium remains within its normal reference range." Mast cells, part of our immune system's family of white blood cells, release large quantities of histamine and other proinflammatory mediators when insulted by allergens. The histamine in turn, triggers neurons and glia within our trigeminal ganglia to express Calcitonin Gene-Related Peptides (CGRP) and other neuropeptides. Neurologists tell us the CGRP expressed within neurons and glia is responsible for the neurogenic inflammation and the pain we know as cluster headache. The bottom line is histamine to a CHer is like Kryptonite to Superman - Bad News. None of the prevents including vitamin D3 work very well during an allergic reaction. Many CHers, me included, have found a combination of 3,000 mg/day Tumeric (Curcumin), 3,000 mg/day Resveratrol, 6 to 8 grams/day vitamin C (taken in divided doses throughout the day), double the Omega-3 dose and Benadryl (Diphenhydramine HCL) at 25 mg 4 times a day all help block histamine effects and this lets the genetically active vitamin D3 metabolite 1,25(OH)2D3 down-regulate the expression of CGRP, other neuropeptides and proinflammatory mediators. This cocktail of extra supplements can take as little as a day and up to a week to take effect for some CHers. Others will find it makes their CH less severe and more controllable, like easily aborted with oxygen therapy. I also use a combination of 100,000 IU/day of Bio-Tech D3-50 and 0.5 mL/day (40,000 IU/day) of the Nutrasal Micro D3 taken sublingual as a loading dose. The Atkins-Ketogenic Diet can help. Avoid all sugars and fruit juices high in fructose. Avoiding all wheat and grain products can also help. If you do eat grain products, make sure they are Non-GMO. Most wheat and grain products are contaminated with glyphosate, the herbicide in RoundUp.. Ir causes all kinds of problems. As a herbicide it kills off the friendly colonies of bacteria living in our GI tract called the microbiome. A unique aspect of glyphosate’s insidious cumulative toxicity is its ability to get inserted into proteins by mistake in place of the coding amino acid glycine. Glycine is the smallest amino acid – one of the twenty or so building blocks of proteins according to the DNA code. Glyphosate is a complete glycine molecule, except that it has an extra methylphosphonate unit attached to its nitrogen atom. Hope this helps. Take care and please keep us posted. V/R, Batch

Hello there ive just signed up to cluster busters as I've been suffering with them for a good 5 years now. It's good to see everyone getting together talking about it, something I've never done. I'm keen to find out about fungi and mushroom treatment and how to take them. I live in the UK. I really need to try this as I feel like I'm at a dead end and sumatritan are just making things worse . Any info help would be much appreciated.