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Showing content with the highest reputation on 06/22/2022 in Posts

  1. Oh yes @jon019ive been accused of being a drug addict on a few visits to the Emergency department in my time . Just so glad I don't have the need for the place anymore .
    4 points
  2. ...as bad as it sounds, i always shout a YEAH! when the rare clusterhead reports being hit IN the doc office. this is an illness whose effects must truly be witnessed to be believed....otherwise they think you are exaggerating/drug seeking/crazy...... as we are left to describe the indescribable to the unbelieving...
    4 points
  3. The crazy thing about CH is it can only be diagnosed and treated from the patients words.
    3 points
  4. @BoscoPikoso true I remember going to A&E loads of times and all they wanted to give me was morphine at stupid doses just to shut me up . I'd be back in A&E 5 or 6 hours later with another attack , and again pump me full of morphine , but when I end up in A&E 5 times in 3 days they start throwing around this drug addict theme and that I haven't really got anything wrong with me . Oh and by the way morphine does f--- all for CH pain
    2 points
  5. Crazy thing is that most of us cluster heads wouldn't touch half of what the common day doctor is willing to prescribe for pain as it does nothing for our sort of pain.
    2 points
  6. Yes, do that!!! Perhaps it will open his ears to what you are saying. Good grief. O2: Tell us how you were instructed to use it please. That makes all the difference in the world. What flow rate, mask type, time, etc. It ALL matters. Do you utilize caffeine for your hits? Energy drinks or coffee? He may be a pain specialist, but that is NOT a Neuro and he likely has no idea regarding Clusters. They are not his forte. Have you read about the D3 Regimen? Cheap, easy, no doc, and good for you.
    2 points
  7. ...no truer words! 20 years ago, in the depths of intense CH, i had access to pure morphine. it didn't even TOUCH the pain of CH, but twice, and twice only, i took enough to knock me out because i was f'ing desperate. it was a wake up call to get this shit under control. morphine is definitely NOT the kind of drug to be self medicating with, especially under duress and w/o full mental faculties. thereafter got a number of years of good success with verapamil and oxygen, until ultimately dialing in the O2, energy drinks, D3 regimen....and a zomig ns in pocket as pacifier....
    1 point
  8. I have found that having Clusters teaches us why they say Doctors are “practicing medicine”! Over the last 45+ years I have heard try this and tell me what it does far to many times.
    1 point
  9. The trend continues! My city tolerates just about everything. https://www.freep.com/story/news/local/michigan/detroit/2021/11/06/detroit-psychedelic-mushrooms-proposal-e-entheogenic-plants/6303402001/
    1 point
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