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...it's a long, windy road.....but there's sun at the end Shaun.....

You see those nice Medical O2 tanks on my deck? THEY WERE FREE!!!!! Yes. I saw my Neuro last week and requested a script for O2. He gladly obliged and WE filled out a form. Our local O2 carrier is Lincare. The form has a bunch of questions unrelated to Clusters, so we left those blank. There were a lot of blanks! It stated ' minimum of 15LPM with a non-rebreather mask for 15 minutes, as needed for Cluster Headache'. My delivery came in 24 hours!! They will bring however much I require every week. 'How long does one tank last for you? How many next week?' So, should you need it and you are on Medicare, you can now receive it!! I am in heaven. Also in cycle, but this project makes it SOOOO worth the pain. I am delighted to have this cycle and uncover this stupid mystery we have been wondering about. Thanks to all of those who were able to attend 'Headache on the Hill'!!! WE WON!! Ok, time for a massive HAPPY DANCE. Yes, I will Pin this!

That's a great step forward in the right direction!! So glad to hear that she is on her way to recovering.

Oh my god just got back from visiting my daughter in hospital and she is know awake on really heavy pain killers so still groggy plus still on breathing tube at present , but slowly but surely my family and i are getting her back . This is probably 1 of the best days in my life I can't stop smiling. Gonna open a bottle of champagne to celebrate

i am convinced that the drugs the docs pushed (verapamil, triptans) made my bouts worse. big pharma has done nothing for me except make the only drug that helps me illegal. too bad lsd wasn't profitable enough for sandoz. it sucks but such is life. about 10 years ago i decided to stop all medication preventative and abortive. i stick to O2, Red Bull, D3 and Psychs. So far i'm managing this godforsaken disease better myself than all the highly educated neurologists i have been to. i am not disregarding medicine and science, it's just that in this case science hasn't done shit for me. i don't expect huge changes either. even with bigger groups of sufferers (migraine) medicine is fishing in murky waters and throwing everything but the kitchen sink aht the patients...

I've been with the same company for 31 years. I get hit I go home and come right back. I manage a grocery store with 200 employees. It sucks when I'm in cycle but I just have to power thru. Thank God for this place. It has made it alot more bearable. Freud I read most of your posts hang in there.

YES! (agreed with Spiny) From what I've seen, a common scenario with busting whle on verap is the busting will be effective to a degree, then when the CH is tamed enough and you're off the verap, the busting can really get in there and do it's work 100%. Sorry and horrified to hear of your high cycle straight from hell. Increased intensity as the decades go by is one of the dirtiest tricks the beast has up his sleeve IMO, but when the O2 and triptans stop working that's just way past unspeakable - I can see exactly why you're inspired to bust, brain dead dainbread! Really hoping it'll bring some major relief. (You're probably already well aware that unlike verap, triptans are major busting blockers, and tend to really spoil the party)