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Everyone in the study receive a dosage (adjusted for the person's weight) that I think amounted roughly to either one gram (one group) or .5 gram (a second group). Or placebo (third group). So it wasn't a matter of greater or lesser doses, just that the level of psychedelic experience that people had with roughly equal doses was not correlated with the amount of relief they got. Another interesting finding was that people with chronic CH did better in the study than people with episodic CH. Which seems weird overall, but even more weird considering the relatively small doses. (As you may know, the study did not show a statistically significant difference in relief between people who got psilo and people who got placebo. The numbers were slightly better for people who got psilo, but not at a level of statistical significance. Dr. Schindler has said that the number of participants in the study was too small to get valid results from it.) (I suppose I might cough up the $12 or something that is costs to read the whole thing, because I have about 200 questions. One of those, probably not explained or explainable, is that the standard was the number of attacks after receiving the dose (psilo or placebo). But if people were getting slapbacks from the psilo, which you have to imagine some were, that would be more attacks than the others would get from a placebo.)

4 weeks out from last treatment and still hanging in. Not complete pain free but now averaging about 7 clusters a week instead of a day, for me that is as close to pain free I have been in years. Question now is do I do a bust to see if it puts me over the edge to total pain free or do I hold out and see how long this last. I am afraid to rock the boat with a bust and have it set me back.

Are they not providing tanks to anyone or only headache therapy customers? The company I have used for years stopped providing for headache therapy and it took me over 2 weeks of calling and climbing the chain of command to get to the VP in my area. I had to come up with a compromise with the kind fella and now I pay twice as much and get half the amount of tanks I did in the past but I am still getting them so that is all that counts. Don't just take what they say, apply pressure and ask to talk to the next level of management until you get what you need. Then butter up the delivery driver to get as much out of them as you can. I am not in your area, im on the east coast but it may work for you too.

It's possible that trjonas is still lurking here, but you might have better luck sending her a PM. I think you can do that by clicking here (her handle should be in the "To" line): https://clusterbusters.org/forums/profile/27423-trjonas/ If you feel like a neurologist is all you need to keep CH under control (maybe for an oxygen prescription, for example), that's fine. If you're interested in treatment methods you might not know about (or might not be doing quite right), please read around and feel free to ask questions.