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I can't just reply to questions and be done with it (so you can skip my reply if you wish). I work in psychiatric ward and get sometimes called to help when there are patients who are suicidal and have CH. Very, very often when CH is managed to get under control, the suicide plans vanish and again, very, very often never return. But there are people who have more complex problems and conditions and need help beyond getting CH under control. Then you need to keep reaching for help - relentlessly as long as you need, or better yet - find a support person who helps you fight. And it's incredibly tough when the things that work for others do not work for you - these people would need a community of their own. People with torturous chronic pain - whatever the diagnosis or no diagnosis at all, who have not yet found help and those who have found something that helps mixed in one group. I hope you keep reaching out and find help.

I’ll list all my symptoms and this is what I tell doctors and the results have been cluster headaches and TMJ and trigeminal neuralgia. my symptoms have been: pain/headache on the right side of my head, stemming down into my eye socket (feeling like it’s being pulled back into my head) and into my jaw. After I have an attack which is now at least 15 times a day and lasts at minimum an hour to 8 hours at a time, my head feels bruised. Brushing my hair causes a headache, it’s so sensitive. My neck muscle protrudes out and you can feel it throbbing if you touch it. Does everyone have a job or are you guys on disability? I haven’t been able to keep a job and I’ve been denied disability, I’m lost on where to find something I can do. My pain is constant and headaches happen every single day.