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Showing content with the highest reputation on 06/07/2025 in all areas

  1. Hey everyone. Been awhile since i’ve been on here. I hope everyone is well and in good health. The last time i was on here, I made some pretty anxious and depression-ridden topics about how i thought my life was over.. boy was i wrong. I’m posting this to further support the tools and methods that have been written about on these forums.. and to possibly give hope to those that feel lost, as I once did. The last 4 years have been some of the most eye-opening years of my life. I’ve made drastic health conscious decisions that aided in my relatively pain-free years. I’ve tried “busting” and diet changes. Both with great success. I listened to my body and found that a combination of Vitamin D3, magnesium glycinate and omega 3 supplements help keep my headaches at low pain levels or at bay. An (almost) gluten free, no msg or additive, low histamine, anti-inflammatory diet helps maintain that low inflammation in my body. Sleeping with my head slightly elevated and neck supported also helps me keep the blood pressure from building. I also found that getting sick with a cold/flu will immediately bring a cycle on. I assume because of the sudden onset of inflammation in the body. Especially in the face/sinuses. Taking valuable information given by Pete Batcheller, (don’t know his @ at the moment, sorry!) the cycles have been very minimal in times where they should have been grave and unforgiving. I’ve learned to accept the fact that I may have clusters for the rest of my life. I’m 24 years old, and for the first time in the 16 years i’ve had clusters, I’m finally OK with it. Where there’s a will, there’s a way. But it’s important to keep in mind that pain free responses will not happen over night. Not every piece of information helped me. Some worked, some didn’t. Having a strong support system of people helped immensely. I can partially attribute my positive attitude to one of the “busting” methods that we know about. These headaches made me appreciate the little things in life, which in turn, makes life much more beautiful. Music sounds heavenly, sights are awe inspiring, love for those around me increase. I can live my life knowing I have the tools and resources to stop a cycle, should it come back. I also learned that hardships and trying times await each and every one of us, but will never make life not worth living to the absolute best of our abilities. The human spirit is truly indomitable. I extend my love and thoughts to everyone here! I’ll be sure to keep everyone updated as I grow older
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  2. Indeed. I only put up my cat avatar because there was some joking I wasn't getting enough likes, and cats were a theme among the more-highly-liked posters. Never had a cat; never wanted one. But then again, it's very relevant here to note that I don't have CH (my daughter does). So you might want to take my scores (responder #3) off the spreadsheet. In 1969, a fellow wrote about CH patients' "leonine" appearance," and in 1974, the great Dr. Kudrow "confirmed" that observation. PHYSICAL AND PERSONALITY CHARACTERISTICS IN CLUSTER HEADACHE, Headache: The Journal of Head and Face Pain | 10.1111/j.1526-4610.1974.hed1304197.x | DeepDyve Kudrow also said there that his male CH patients were on average almost six feet tall, which was about three inches taller than the average American male. Questionable as all that might be, there is this spooky-seeming thing from 2021: "Frontal Bone Height and Facial Width were able to discriminate, one independently from the other, CH patients from Healthy Controls with an overall accuracy of 77.00%." (PDF) Can Craniometry Play a Role in Cluster Headache Diagnosis? A Pilot Exploratory TC-3D Based Study Well, I took the Salamanca test. As you say, it seems to leave a lot to be desired. For one thing, the questions/items on the survey do not seem to be well correlated with the actual traits they are supposed to be measuring. I'm guessing that there are two questions per category (there are 11 categories), and you get one point for "sometimes," two for "frequently," and three for "always." (The actual line between "sometimes" and "frequently" seems much blurrier to me than the line between "frequently" and "always.") My top three traits were schizoid, anancastic, and paranoid, all of which are in the CH top six. I also got the same score for "anxious" (also in their CH top six) as I did for anancastic, but somehow they decided that anancastic was in my top three but anxious wasn't. I have to say that by the "normal" definitions of these terms, I am not an anxious or paranoid person. So my four top answers were all in the six most common ones for people who actually have CH. No idea what that might mean about the validity of the findings/instrument.
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  3. And further back it was probably the witch trials. My greatgrandmother died in an asylum nobody knows why or what. But I think I got an idea why it happened . I am so glad I was born in 1974. Today we got O2 and bustingagents.
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  4. Hi! No I haven't, but this is interesting. I've only done occipital nerve blocks twice. Each time I got relief from my episodic CH for only like 1-2 days. From a CH standpoint, this injection would likely help or do nothing. I don't think it would hurt or trigger anything. Good luck and don't forget to report back!
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  5. Hi, Some of you may be aware I did some research into the timings of CH cycles and remember that it is connected to solar cycles. Recently, it has become more and more obvious that the intensity of CH attacks "peak" whenever the Sun transitions from one sign into the next - whether this be in the sidereal or the tropical zodiac. If around the same day, the Sun is also "afflicted" by certain other planets, the effect is even stronger. In regards to this, I want to make a "forecast" for later this year. Anyone in a cycle around that time, beware of MAY 14-15 2025. The reason: around the middle of May, the Sun will be Ingressing into sidereal Taurus (sensitive point of transition), On top of that, Mars will also be in parallel to the Sun (affliction).
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  6. I'm just gonna move to a planet with no sun!!!!!!!
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  7. Its bad enough to where I can't do anything but scream and squirm around on the floor wishing i was dead lol. I am a big advocate on staying away from medicine. I don't even use advil most of the time. I just ordered oxygen so hopefully that will help.
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