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Showing content with the highest reputation on 07/20/2018 in all areas

  1. Good evening everyone (well really it's good morning)!! I last shared that I was in the process of being turned down for oxygen by my primary caregiver, and after nearly 5 years of being diagnosed with CH, I was referred to a Neurologist. I just had my appointment earlier today at 11 and.... My doc, James Zhang, asked me a variety of thorough questions related to when they started, the pain level, where the pain is located, triggers, etc. It honestly felt like a drag but I kept hanging on!! Finally, he explained that he is nearly certain that it IS in fact cluster headaches that I am
    2 points
  2. There should be a page in the Clusterbuster Files section on the board for O2 use. What I do is a few fast exhales till your squeek - like a breathing test which you likely have never had! Just force out all the air in your lungs. At the end, you will be making a funny sound. Now inhale deeply, hold maybe 3-5 seconds and exhale with force again. Now use your O2 to inhale deeply. Hold, exhale with force. When in pain we tend to hyperventilate so that part will likely come naturally. Just breath faster than normal and much deeper than normal! You are trying to get rid of all the CO2 in your lung
    1 point
  3. Mel You can also look into making this to hold you over. It is the redneck bag. https://clusterbusters.org/forums/topic/4919-batchs-hyperventilation-red-neck-bag/
    1 point
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