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Everything posted by Psiloscribe

  1. Its with deep regret that I have to inform everyone here about the passing of Dr. Andrew Sewell. I don't have a lot of details yet and will follow this up when I have more. I will release more info as it becomes available. I have been told that he died during or following surgery due to complications. Andrew was with us from the beginning with the early work with psilocybin at Harvard. He also did a study with us with LSA that provided a wealth of data and information on the LSA seeds that many people now use for relief. He was currently working on another study with us. It was d
  2. Thank you Fun Guy..... We do have a great line up already and hope everyone can find a way to make it. I want to emphasize the importance of registering asap even if you are going to be paying at the door. We need to get a good handle on the number of attendees. https://events.r20.constantcontact.com/register/eventReg?llr=asfwt7iab&oeidk=a07e6wnq9zdaec5a308 Bob
  3. There have been a lot of questions regarding this issue as well as several others over the recent past. The Board of Directors of Clusterbusters has issued the following statement; As a registered nonprofit it is Clusterbusters mission to find relief from cluster headache through research, education, advocacy and support. In response to the numerous inquires we receive regarding fundraising efforts of other organizations (nonprofit and for profit), we encourage individuals to carefully review all proposals and submit questions directly to those making the solicitation. Clusterbusters c
  4. http://www.cod.edu/news-events/news/12_may/13_psychedelicscluster.aspx The College of DuPage Human Services program will host "Changing Attitudes Toward Psychedelics in Therapy, Biology and Culture" on Monday, June 17, from 1 to 5 p.m. in the Health and Science Center, Room 1234. This program is free and open to the public. This program feature presentations by Tom Roberts, Ph.D., author of Psychedelic Future of the Mind, Bob Wold, founder of Cluster Busters and Bruce Sewick, LCPC, RDDP, CADC, the instructor of "Psychedelic Mindview" a course at College of DuPage. The sessions will explo
  5. Thank you Spiny. I know we've had a few members from Spain over the years and it seems it is a difficult place to get good treatment for many. Bob
  6. Anyone of our friends in Spain know of a good cluster doc in or near Madrid? Bob
  7. Moxie, I appreciate your desire to spread the word on this. That is what we are trying to do with our Advocacy work. There are about a dozen FB groups for cluster headaches. I'm sorry but I dont believe we should edit our work or the reports of our work so that they will conform to the rules of a group that censors what people can be told about clusters, treatments or what we are doing in Advocacy, Education or Research. The full report is available to everyone from the official Clusterbusters Facebook page as well as other places. There is also a FB page for the Alliance for Headache
  8. The "Cluster Stories" booklet is a work in progress and I am always adding to it. It is what we asked people to add to for the HOH trip. We are still accepting additions so anyone wanting to get their story written up, please send it to me in email. psiloscribe AT yahoo DOT com. I know its difficult for many but here is what I would like you to include. its important to keep it concise. We are trying to grab attention with these. its not for people to get compfy and read in bed. We use it in advocacy situations where people can read one or two and WANT to read the rest. So......keep
  9. An expanded report and update! Psychedelic Science 2013 MAPS This conference was attended by Bob Wold, President and Kim Robbins, Trustee. On April 18th through the 21st, Clusterbusters attended the MAPS conference in Oakland Ca. This conference allowed us an opportunity to accomplish a great deal in all of our missions. Education of the all layers of the medical community, from doctors and nurses to administrators, as well as all others in attendance regarding cluster headaches. Advocacy for increased research funding, improved treatment plans and visibility of a condition
  10. Very true Potter but because they quickly realize the difficulty and complexity of the project. A few things I can add to the great info already posted. (thank you all) 1. Yes, the patent had nothing to do with the fallout.....I was there ;-) 2. There was a LOT of early lab/clinical work using BOL in humans. Most notably in migraine among others. By early, I mean, 1940s, 50s. There is plenty of safety data. Again much of it so old that its not acceptable to the FDA. Another one of those roadblocks..."You haven't done any recent safety trials.......no you can't do any safety trials"
  11. A big thank you to everyone that helped make this trip such a success. i will be posting a full report here and on the website as soon as I can get it all written up. There is a lot to report on. Just the first of many thank-you's to Cindy for doing so much prep work and amazing work while in DC. Someone mentioned it was a little like herding cats and I agree. ;-) Thank you Cindy for not only all the work but also for keeping the motivation and determination levels high throughout the event. Clusterbusters pulled together a strong contingent of advocates that comprised a full 25% of th
  12. Hello From DC, Just letting everyone here know that you have an incredible group of people here representing you all. We've spent the day gettig ready to make our voices heard. This is one motivated group.... And dont tell him I said so but......John Bebee is the star here. ;-) I'm proud of this group and the turnout from the cluster community. Give you all an update soon!!! Bob
  13. There have been some important updates to the new website. I would like to thank Doug Wright (Fun Guy) for all his hard work on getting the website up and running. He has spent an extraordinary amount of time on the site. I hope you all check out and share the following pages whenever you can. We have added a large section on the "About Us" page that explains all the different areas we are involved in and will help explain that we aren't just "those mushroom people" ;-) Thanks to everyone that has helped us expand our footprint in cluster research, education and advocacy. http://clusterbus
  14. In a little over a week, approximately 20 people representing those with cluster headaches will be ascending upon Wash. DC to have our collective voices heard and actions of support carried out. Thanks to those voluntering to travel with us and the moral and finacial support of others, this is about twice as many as last year. We expect twice the results. To anyone wondering if our congress will be listening let alone acting on our behalf, I offer you this message from Dr. Robert Shapiro, President of the Alliance for Headache Disorders Advocacy. The group we are joining in DC again this ye
  15. If you are bringing someone with you on the trip and they are going to be going with you to visit the offices on the Hill, they MUST be registered with the Alliance so that their names appear on the appointment lists. They will need badges as supplied so please go to the Alliance site and get their names listed A S A P. Thank you The Management ;-)
  16. Thanks to everyone that is either going with us or has supported this event along the way. We have in excess of 20 clusterheads going to DC in April. We will strive to be the voice for everyone with clusters and making a case known on several issues. Bill, we'll be getting updates out to everyone that is going very soon. You and eveyone registered will be hearing from both the Alliance and CB as we set plans. Bob
  17. An update on this subject. it is something that we have discussed and worked on previously. Building, marketing, purchasing, design and inventory of a "store" is a large undertaking. it has to be to be done in a way that shows a profit and not a waste of any valuable financial reserves. That said, something like CafePress is one way to go. It does still take a lot of time setting it up to offer the right items, design logos, styles etc. Volunteer time has to be used wisely therefore any undertaking has to be "worth it" so to speak. I have spent quite a bit of time setting up a store a
  18. Thank you for asking. Yes we would be happy to have it translated and published. Will you be running it through a translator such as Google translations or doing it manually? We are also working with friends in Finland and Sweden regarding the best way to get these pages translated and available. Please just give the proper credits and also a link back to the original. Also please give a link to your version here. We may want to link to it in our webpages. Bob
  19. Thank you Lee Ann. There is someone having trouble. Hopefully it can be worked out. Bob
  20. Hi folks, has anyone else had any trouble logging into your account when using an Apple device through ATT? IPhone trouble? have had a couple of reports and just wondering if anyone else is having a problem. if you are using Apple and ATT and not having any trouble, THAT would be good to know also. ;-) Bob
  21. MissionFish is now PayPal Giving Fund 100% of every donation will reach the nonprofits we serve. Since 2003, MissionFish has been dedicated to helping nonprofits create new sources of unrestricted revenue by making it easy for people to give as part of their everyday life. In the nine years of partnership with eBay Inc., we have helped generate over a quarter billion dollars for nonprofits through the eBay Giving Works and Donate with PayPal programs. Throughout this incredible journey, we have constantly looked for ways to improve our service and expand our impact. In 2011, eBay set up
  22. I'll be there even if I have to put gas in my car. ;-) Looking forward to seeing Moxie and Jeff, and everyone else. Bob
  23. I have to say, this saddens me greatly. Although there have been many people in the UK that have worked hard against all the roadblocks to get help for people, and to make information available for people, no one worked harder and longer than Carl. And Yes, Phil was right there alongside. No one stood up for the rights of people to get information and make up their own minds, than this man. When it was impossible to get the info out to the masses, he took it upon himself to get it to those that were seeking help, personally, one at a time. A man that was not afraid to make enemies if t
  24. Happy New year everyone!!! I give you the words of the Dalai Lama "Along with love, compassion is the face of altruism. It is a feeling from deep in the heart that you cannot bear othersÂ’ suffering without acting to relieve it. As compassion grows stronger, so does your willingness to commit yourself to the welfare of all beings, even if you have to do it alone. You will be unbiased in your service to all beings, no matter how they respond to you." Thanks to all here that practice what he teaches. Bob
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