Bejeeber

Interesting! The pathology for some of us has been that vigorous exercise (like sprinting) can actually abort an impending attack. I'm a physiology ignoramus, but one thought that pops into my ignoramus mind is since such exercise draws more blood to the heart, lungs, etc. could it be drawing it away from the behind-the-eye sort of spots (inducing vasoconstriction there)? Also, it is very common to get hit hardest during sleep, which I tend to think of as being kind of the opposite of exercise. I will note that others have reported exertion will trigger an attack for them though.

We should all aspire to have such neon green specs of lycra sprinkled throughout our final resting....um....urn? Right?

Interesting about the "prescription non-steroidal anti-inflammatory drug that contains diclofenac potassium, used to treat migraine attacks in adults" Cambia. As is typical, there can be plenty of potential further discussion points contained within a report like yours - I'll just start by zeroing in on the triptans: By your description of them taking up to an hour, it sounds like you could have been prescribed the relatively slow acting pill form? Sumatriptan injections are of course known to be the most effective and much quicker delivery form, plus many get quick enough relief from triptan nasal sprays, but especially if deal killer GI issues aren't encountered with this particular Cambia NSAID, and if its effectiveness continues, it sounds like a much better abortive option for you - congrats on finding such a breakthrough! Here's hoping there's also an impending breakthrough with your O2 access, since success such as you are finding with a new abortive that is not widely recognized as effective for CH can sometimes be short lived.

It's astonishing to me how instantly tears can come to the eyes when reading this (especially the passing away at 49 years of age, but glorious life part). Thank you for posting this, replete with the ski mask, tank cracking etc. color . You are quite the example of an above and beyond cluster hero.

This part looks good: Step 6: The body is returned to the family for burial or cremation and related ceremonies. ....because cremation is my one last chance for having a smoking hot body.

I recall some reports from people who have been in bad car accidents or otherwise suffered head injuries, and this triggered their first clusters. It doesn't seem real common, and whether the trauma actually caused the CH, or was a trigger of a dormant underlying predisposition, I would be unqualified to speculate.

I suppose blood pressure must have also been thoroughly checked? Me: Nothing even vaguely resembling a medical professional, but when I was having very near passing out episodes multiple times daily, I put 2+2 together and realized the CoQ10 component of the D3 regimen is a known blood pressure reducer, so I went off of it and haven't had another pass-out episode since (close to a year). I'm not aware of passing out episodes being an actual cluster related sign or symptom.

Man time flings by in a jiffy whether you're having fun or not!

"Pray from both ends". That is another REALLY good one , for a really awful situation. You must be reaching some genuinely therapeutic levels to have had such a reaction, right? I mean c'mon, there's gotta be an upside there somewhere.

It's bad enough that Dallas Denny is going into a full cycle, now I'm hating the [BLEEP] out of this thread, with the news that the cluster bunny has gone completely ape on everyone right at the same time. WTF is happening?! @BoscoPiko I have to imagine you're getting real serious with the RC for the counterattack?

Agreed of course with Dallas Denny that the answer is yes, you need larger doses in the range he outlined, along with a detox from any busting blockers, of which triptans (e.g. Imitrex) tend to be the most notorious.

Looking forward to a report of a smoooooth flight, no CH issues! Flight fingers crossed.

I won' t be receiving any awards for sharp memory or perfect recall, but I do not recall any other reports of the initial high dose phase of a prednisone burst causing CH to get worse (you're on day 2 at 60, right?). Reports of CH worsening following the taper down, yes, but not at peak dose. I would hope you still may encounter some of the expected relief any minute.

What @big j and @BoscoPiko said. One prominent member went on record here as having had a specific day on the calendar planned, but successful busting found them decidedly cancelling the plan. Please forgive though for even mentioning busting, even in that context, if it is something that isn't for you.