Bejeeber

Michael I've been following your case since back when your dad first posted some background over at the CH message board, and I was stunned right then and there by the worst case of CH I'd ever heard of. I know it's been a rollercoaster with the incredibly extreme chronic CH you've had - induced coma even - followed by some relief with busting, and now back to square one. This transition you're having to make to be off of pain relievers right when the CH has come roaring back, well there's no candy coating it - it sounds like just a horrible trial to have to go through, we know you're running the gauntlet from hell, and it really concerns your family here who are reading about it. We do have a lot of hope though that you will break through the other side with the busting really unhampered and able to do it's thing 100% for you. Please try to keep your eye on the prize if you can (the other eye, not the one with the nuclear pinging behind it! :'(), and see yourself PF and back to your cool job (how COOL are they for holding it for you??!!). We're all pulling for you Michael, we're here for you as much as we can be in cyberspace during this trial of all trials, and we'll also be ready to celebrate when you come through the other side. -Matt

Hi Booj's mom, I don't have super informative, definitive answers for you, but I'll mention what I know about neurontin (AKA gabapentin). I've taken neurontin and at various times, many other boatloads of prescribed drugs for CH. From what I've seen, some CH'ers swear by it, some swear at it. I've seen some report complete prevention success with it, but probably a higher percentage who've tried it without success. I basically assume it will interfere with busting, although I'm not seeing it specifically in the med interactions list found here: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290130731 The last time I was on prescriptions for CH, I tried neurontin for the preventative, and thanked my lucky stars that it kicked in (it can take a couple weeks) just as my episode was about to spiral out of control with too many high kip hits to keep up with just using O2 and partial dose imitrex injections for aborts. It basically cut the amount of attacks down by around 50%, which brought the remaining couple months of the episode down to a manageable level. I felt a bit pleasantly drugged on it at first, but even on a high dose I found that side effect eventually went away. Sorry to hear of the struggles with getting Booj's Ch under control - here's hoping you find a breakthrough soon. :'( -Jeebs

Oh nonsense - you're only as old as you look! Wait a minute...is that how that expression goes? I hope not, because if so, I'm hosed!

Yes, the awesome best most! HAPPY B DAY!!!

It's extremely fecking cool!Â

Sounds like you're about to slam this beast with a crushing wallop that'll likely make him start thinking twice before he comes to visit again. And that's a good thing! Best of luck with the BRF! Will you be pretty much detoxed from the drugs for 5 days or more before you take your vitamin M?

After experiencing a concert with these guys in ideal surroundings last summer where they played a couple of these new songs ('Livin' In a World Gone Mad' and 'Meanwhile') I'm a genuine fan. http://www.myspace.com/dumpstaphunk So funky it may be illegal. Something unusual about their instrumentation: TWO bass players (!)

Well Kaboom, if anyone hands out any bonker awards at a conference, I think we should clearly rule this option out for the manner of presentation - even if some would find it could bring a temporary, welcome distraction from a CH attack:

Is my link to the Bomba Shack on Little Apple Bay topic not werkin? Bomba Shack link: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1297450426

Thanks Ron! I shan't be including myself on the list until I meet the stringent criteria though - otherwise everyone would receive a bonker, and then how special would a bonker be??!! Consider your suggested inclusion of the notorious gang of 3 a dun deal though. Maybe the rank and file soldiers such as myself can be peresented with a purple heart (or droopy eye?) award. And a reminder to all regarding bonker nominations: These are reserved for just 2 categories of folk who exemplify altruism and/or bravery:

Each medal of honor awarded is known as a "bonker", for reasons soon to unfold: These are reserved for just 2 categories of folk who exemplify altruism and/or bravery: .Â

Meet us at the Bomba shack: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1297450426

Just when I was trying to tame my doctor bashing tendencies you go and provoke me! Insert some good ol' fashioned doctor bashin' here: I find it incredible that headache specialists (in the US at least) routinely require CH patients in crisis to wait months for an appointment. There's just no imaginable no excuse for that whatsoever (they could reserve an appointment slot each week for an emergency CH patient, or there would be many other ways to make an opening). I still think it would be good to have a very public list of these doctors where they could be called out by name, detailing the repercussions of their negligence, callousness, greed and blatant violation of the hippocratic oath in a way that would come up whenever someone looks them up online.

Count me in.

The term 'YEEHAW!' immediately comes to mind. [smiley=2vrolijk_08.gif]

Wow what an inspiring post - thanks for that Mwib87! 8-)

Last I heard it's at the Bomba Shack. 8-)

Well you're officially drafted into the message board house band "The Fuster Cluckers" now Scott (Um, if you hadn't been already and I missed it). Hipshot provided the band name, which is clearly pure genius. 8-)

Sorry I don't know the answer to that, I just know that people have been reporting relief when taking it all in one dose per day, and that since vitamin D3 is fat soluble it needs to be taken with food or drink that includes some kind of fat content.

Whether it's the busts or the D3 or both, YES YES YES that is genuinely NIFTY!Â

Hi Kika - there are folks here with more experience than me, but I'll go ahead and take a shot at some of your questions anyway while we await the experts. If it was me, I'd order RC seeds and take them ASAP (you could be busting with them in just a couple days), and also start growing mushrooms (for sort of a backup) ASAP. Now, if you were able to get mushrooms sooner than later without having to actually wait for them to grow, I'd go for those as a first choice. That's because mushrooms have worked better for me than RC, and they seem more powerful to me. That's not the case with everyone though, so some personal trial and error may be necessary. As far as the actual experience is concerned - this is how it has broken down for me: RC: With 50 of them before bed I sleep better than usual and hardly notice a thing, except for about 60 seconds of nausea. Mushrooms: 1.5 grams and I trip like a futhermucker. I may be kind of a lightweight/cheap date. ;D LSD: The experience is extremely similar to mushrooms for me - it just goes on and on and lasts almost twice as long as mushrooms.

Count me in as also overwhelmed by this story. Wow - THANK YOU for sharing that Alex, and I too hope to meet you one day on your world travels. Ugh. Well I hope that sort of discouragement of the use of natural preventatives and strict promotion of toxic ones will be occurring less and less at OUCH as the word gets out.Â

Or maybe hopping on a plane today to St. Thomas - the Bomba shack - is something to look into.....? http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1297450426

My CH started 30+ years ago. Amount of cavities/fillings I've had in my lifetime: Zero. I've been clocked on the noggin purty good though as a kid. I know some CHers have a knee jerk response that "it's a defective hypothalamus - head trauma has nothing to do with it". To which I have to think "yoohoo! head trauma can cause the hypothalamus to become defective".

You may have to just change your forum name from hipshot to STONER. Hey I just noticed that above your name it says you are a "God member". And now I'm seeing the same for a couple other choice veterans like Bonkers and Alley oop. God, not gold? ;D Didn't realize that y'all are some kind of saints. Well except for Ron - I knew for sure Ron's a saint.Â