Bejeeber

I neglected to mention that, guzzling the kool-aid and buying into the positive Amazon reviews, I have used the EXACT SAME THERAWORX AS @CHfather, and I was also shocked at how reliably and consistently it worked for relief of intense leg cramps - for me, it has routinely worked to relieve full blown cramps in progress, and I still religiously keep it at the bedside in case. This is iron clad proof that the world's greatest minds think in an identical fashion , although I'll admit I hadn't thought to try it right before bed as a possible preventative. I'm also now starting to consider the greatest mind @FunTimes comment about too much caffeine as a possible culprit.

I very much like, and vigorously salute, the @FunTimes reply, and will just add my experiences as an adult life-long nocturnal cramps experience-er, whose wake up calls have been largely in remission for going on a year now: They can be a moving target, just like our 'ol CH buddy. Magnesium citrate worked for me for keeping them at bay for like a couple years at one stretch, then failed. Magnesium gluconate seemed to help at one point also, but individuals apparently can have different reactions to different forms - citrate worsens cramps for one family member, but gluconate doesn't Yep, the potassium-rich foods bananas, avocados, potatoes and sweet potatoes can potentially help significantly (at least until the target may shift) I didn't realize the sudden wake up cramps could be anything other than a ridiculously huge emergency-feeling level of painful until more recently when I had a couple that were a strange and thoroughly unfamiliar kind of 'moderate' I'm known to do occasional 'walking lunge' type leg exercises. Not sure what, if anything they're doing for me in the cramp department, but my current remission has coincided with the addition of this 'Advanced Electrolytes' supplement, one pill with dinner. I might question whether especially high doses of potassium are really required, but of course am fully acquainted with the desperate times/desperate measures mindset many of us here have been known to adopt courtesy of the CH!

That's some weird, suspect timing following the implant, but even though epinephrine at the dentist is a notorious trigger for some, the fact that the repercussions would typically be expected more instantly makes it sound like coincidence can't be entirely ruled out(?). Also, as you may be well aware, even following decades of consistent behavior, we can still expect CH to pull a change up on us, and start a cycle in a never-before-experienced fashion, such as a slow ramp up with advil etc. abort-able attacks at first. Hate to think it, but I would be bracing for some possible continued ramping up.

First, thank you @Craigo for the poll, and second, I do have to agree with @BoscoPiko on this one:

Dr. Graham's Credibility takes the biggest of hits right there.

Plus you have the (Moog??!!) modular synth action going on in the background, which....OK....may have nothing to do with CH, but is cool as hell.

Interesting indeed. My, we're quite the lovely bunch, aren't we? The Google sheet sounds interesting, too, if it was quick and easy enough (what kind of personality trait does "wants things to be quick and easy" come under?

Sorry to hear of this @Snowflake. Of course @Shaun brearley has called attention to a best immediate course of action.

Cluster fingers crossed.

Cycles extending longer than anticipated seems common, and that would include versions where the attacks are milder and fewer/farther between in the extended weeks. There has also been a minor flurry of reports as of late of CH'ers ending a cycle, only to have it then start right back up again for them. Weird that that one has struck a cluster of clusterheads all in a row, but as I more carefully read your report, it sounds like this fortunately will not be the case for you.

Especially going by @BoscoPiko's reaction, not willing to put my money where my mouth is and even give that a single viewing.

I guess I've just personally been clueless and totally missing out - gonna head straight to the garage and rummage behind boxes and stuff in hopes of making up for lost time.

Whoa, newly armed with this info, clearly we all need to get snacking on spiders, stat. Any encounter with a house spider should now be considered a welcome opportunity to consume a nutritious CH relieving morsel!

My current belief on whether nerve block injections would have much likelihood of being a blocker on busting, is no, probably not a blocker. Full disclosure: I'm not exactly well researched on this topic. It did come up previously in this thread that you may find pertinent enough to peruse:

I sure am no diagnostic expert, but the fact that your CH-like attacks do respond to oxygen, you feel them behind the one eye, and they are fast ramping makes them sound to me like yep, some CH really could be mixed in there with the migraines.

Hi @FunTimes, just checking, was that intended as will block, or will not block?

I recall at least one other report from pretty way back in the day of the successful use of continuous low flow oxygen while sleeping (I'm pretty sure it was with a cannula, to avoid suffocation type risks). With your cpap, you have a different, and also interesting thing going on there. I'm tempted to tag @Racer1_NC on this for any observations, since he is what I would consider a genuine O2 guru.

Hi Chrissy, a cycle with unexpected changes in what had previously been consistent, reliable behavior of the attacks, such as the time of day they strike, duration, how many attacks per day, etc., is a phenomenon I've seen reported aplenty, and I've experienced this myself. Just when a pattern has been seemingly cemented into place, stuff will suddenly out of nowhere get all switched up. Long remissions after many years with CH is common enough too. Many get caught off guard when the CH does return following an extended remission, having believed their CH had completely burnt out.

While “planning on” attending doesn’t always thoroughly guarantee it will actually happen, Jeebs (staying true to form and referring to himself in the third person) plans on attending! Psssst....I have to whisper this, but last I heard, Dallas Denny is rumored to be making plans to attend also...!

I think venting when things go badly (in your case, really really badly ) is a good thing to be able to do here. It may be a bit much to hope for, but sometimes, some of us have been known to get a one-off rogue attack, with no new cycle starting up. I'm hoping against hope that this is what could have occurred with you today.

Interesting! The pathology for some of us has been that vigorous exercise (like sprinting) can actually abort an impending attack. I'm a physiology ignoramus, but one thought that pops into my ignoramus mind is since such exercise draws more blood to the heart, lungs, etc. could it be drawing it away from the behind-the-eye sort of spots (inducing vasoconstriction there)? Also, it is very common to get hit hardest during sleep, which I tend to think of as being kind of the opposite of exercise. I will note that others have reported exertion will trigger an attack for them though.