Bejeeber

Man what a captivating report - well done @doctornugz With all your reading, I bet you've well noted that the busting can potentially help with the PTSD-like stuff too, so it sounds to me like you're preparing for a good shot at some double whammy busting benefits. All appendages quadruply crossed for best outcomes. I've now taken appendage crossing to another level @BoscoPiko , try to beat that!

What. @CHfather. Said! @M-Philly you're another now-lucky soul to have received this analysis with suggestions from @CHfather, who I have considered a preeminent expert on the most effective ways to combat CH for many many years now. I would treat his response as gospel, and as a side note, after just one false start (failing to catch the attack at onset), I have personally found the splitting of 6 mg imitrex injections down to 2mg doses to still be very effective for aborting attacks.

I feel that I (and others who have completed this) deserve some manner of bonus points, not because the survey was at all arduous or annoying, more just because I'm always scrounging for them bonus points. It seems like a good, worthwhile survey, so it's time to throw the competitive gauntlet down: Are YOU cool enough (you get to talk about mushrooms and stuff) to take this one on??!!!

What @CHfather said!

Something that can make it difficult to definitively pin down whether a drug like verap is for sure the culprit for worsening and prolonging your experience is that this sort of thing can, and does, happen out of nowhere after 20+ years, even without pharmaceutical involvement. I sure wouldn't blame you for blaming the verap though. And yep, the phenomenon includes getting hit at times of day you never, or seldom have before. For a couple decades I'd never had an attack in the evening prior to bed, I had become entirely confident it would never happen, then boom, welcome to evening attacks city (this during a prolonged and worsened bout). Episodics like you'n me worrying that we're going chronic, even after only 8+ weeks or so in, is so commonplace, it is practically THE LAW, but not only is it unlikely, it sounds like it is way too early for you to have such concerns. Just trying to ease your mind there. What you have going on there SUCKS indeed - the sleep deprivation and everything. Sorry to hear it, and I hope some of the non-pharmaceutical interventions we yammer on incessantly about here may work for you (I know you were talking about adopting the D3 regimen previously).

Maybe @Racer1_NC would have some input on this?

Hi Rich, I'm interested in some history detail - were you a daily chronic CH'er for 10 years straight? Or if you were episodic, what was your cluster pattern there?

And busting (or continued busting, if enough has already been undertaken to quell attacks), has been known to knock out the shadows for some of the luckier headbangers among us.

Yep, I think for a lot of us it's both.

I see it is available for pre-order: https://www.amazon.com/Psychedelic-Outlaws-Movement-Revolutionizing-Medicine/dp/0306828944

WOW.

I've been in the Austin area for 7 years now, so you'd think I might know, right??!! But sorry, I haven't used O2 since arriving, so I'm of no help. You may already be aware that many do switch to using welding O2 when medical O2 availability or cost isn't working out for them. I don't want to threadjack here, but as an aside, many forum members have been needing a whole lot less O2 since pursuing the non-pharmaceutical preventives such as are discussed in the blue New Users - Please Read Here First banner link at the top of the page, in case you haven't already been looking into such already.

Howdy, @The Count Glad to see you immediately got the good overview skinny from @CHfather (who is the best of the best). Turns out that one has been in recurrent use in the US too.

I think you're right, it's been 2018 since Tom contributed to discussions. I suppose you could always try direct messaging him via the site here, as that should deliver a notification to his email. I do remember how much success, and pretty much a new lease on life, he'd found with busting following his DBS, and I would hope the same could work for you if you develop a renewed interest in busting and the D3 regimen.

Yep @clusterheadachesurvivor aka Tom is the one other I can remember who had dbs, but he is someone I'm definitely going to remember as we met and hung out a bit at a CB conference.

Agreed with @ThatHurtsMyHead. I don't think of this message board as one of those that bans discussion of any non harmful experimental treatments. For some additional history, suggestions of possible benefit from Vitamin D were also harshly received back in the day, prior to the advent of the D3 regimen (and also dating back to before this message board was launched).

The Fuster Cluckers. I just went all Sherlocky myself in a search here to date the inception of this legendary Clusterbusters and Bomba Shack house band, and it was over 13 years ago (!!) Whew time flings by in such a jiffy when you're having cluster attacks fun. You're an official member of the band now whether you like it or not SHallMusician, and if you bring a demand valve for sharing to the gig, I think that automatically elevates you to the position of music director, assuming DallasDenny is cool with it. Congratulations (??).

Understatement alert! ^^^^ I bet you do get some some days of relief @FunTimes. Feeling confident enough to go public with that prediction right here, and looking forward to having been proven right when we get your valuable report on how it has gone.

Spiny has done so much to break me personally out of cluster hell and get me PF again, I’ll never be able to thank her adequately, and with her 12 continuous volunteer years here, involving over four thousand forum posts of truly expert, helpful, encouraging guidance, I know there are countless legions of others who have benefited from the same. As we all know, bad (as in really bad) things can happen to good people though. Now her adult daughter is suffering from the worst sort of utterly debilitating afflictions. Of course Spiny is devastated by this, seeing her child disabled and screaming in pain every few minutes. Today, true to form, spiny is traveling across the country to be with her daughter, to help her through, and to eventually bring her home (which will need to be modified-for-wheelchair-access) for care. Some real funding will be needed to make this possible, and there’s a GoFundMe that members here are already starting to contribute to in an effort to bring an aspect of ‘good things can also happen to good people' to this heartbreaking situation. For me it is also at least one way of expressing gratitude for all spiny has done: https://www.gofundme.com/f/usn7ba-help-me-bring-my-daughter-home

I press Frankenberry to the roof of my mouth as I eat it every morning for breakfast, but it doesn't appear to do jack for CH, so not recommended.

Bob so has it going on in that pic, even right down to the SOCKS.

It looks like we could go ask Alice - I think I spy her near the upper right corner of that pic...

Nice tip for affordability there, and nice work with stretching out those doses.

@Baby Moth, as evidenced by @BoscoPiko's reply, you sure came to the right place! Since Bosco covered the big stuff very nicely, I'll just follow with a bit of additional color: If left alone, or treated with certain pharmaceuticals it could, yes, but IT'S NOT GOING TO because you've happened upon the Blue Banner, D3 regimen, etc., that often enable us to prevent entire cycles - a big and most welcome deal. Great that you've had the O2 prescribed. It can be essential to know that high flow/non rebreather mask O2 can really make it work great if it isn't 100% working to abort attacks when following a typical low flow etc. prescription.

Best of results to you @gegibsonjr! Other CH'ers here have had successful back surgery - ready for you to join that club!