Bejeeber

Howdy, @The Count Glad to see you immediately got the good overview skinny from @CHfather (who is the best of the best). Turns out that one has been in recurrent use in the US too.

I think you're right, it's been 2018 since Tom contributed to discussions. I suppose you could always try direct messaging him via the site here, as that should deliver a notification to his email. I do remember how much success, and pretty much a new lease on life, he'd found with busting following his DBS, and I would hope the same could work for you if you develop a renewed interest in busting and the D3 regimen.

Yep @clusterheadachesurvivor aka Tom is the one other I can remember who had dbs, but he is someone I'm definitely going to remember as we met and hung out a bit at a CB conference.

Agreed with @ThatHurtsMyHead. I don't think of this message board as one of those that bans discussion of any non harmful experimental treatments. For some additional history, suggestions of possible benefit from Vitamin D were also harshly received back in the day, prior to the advent of the D3 regimen (and also dating back to before this message board was launched).

The Fuster Cluckers. I just went all Sherlocky myself in a search here to date the inception of this legendary Clusterbusters and Bomba Shack house band, and it was over 13 years ago (!!) Whew time flings by in such a jiffy when you're having cluster attacks fun. You're an official member of the band now whether you like it or not SHallMusician, and if you bring a demand valve for sharing to the gig, I think that automatically elevates you to the position of music director, assuming DallasDenny is cool with it. Congratulations (??).

Understatement alert! ^^^^ I bet you do get some some days of relief @FunTimes. Feeling confident enough to go public with that prediction right here, and looking forward to having been proven right when we get your valuable report on how it has gone.

Spiny has done so much to break me personally out of cluster hell and get me PF again, I’ll never be able to thank her adequately, and with her 12 continuous volunteer years here, involving over four thousand forum posts of truly expert, helpful, encouraging guidance, I know there are countless legions of others who have benefited from the same. As we all know, bad (as in really bad) things can happen to good people though. Now her adult daughter is suffering from the worst sort of utterly debilitating afflictions. Of course Spiny is devastated by this, seeing her child disabled and screaming in pain every few minutes. Today, true to form, spiny is traveling across the country to be with her daughter, to help her through, and to eventually bring her home (which will need to be modified-for-wheelchair-access) for care. Some real funding will be needed to make this possible, and there’s a GoFundMe that members here are already starting to contribute to in an effort to bring an aspect of ‘good things can also happen to good people' to this heartbreaking situation. For me it is also at least one way of expressing gratitude for all spiny has done: https://www.gofundme.com/f/usn7ba-help-me-bring-my-daughter-home

I press Frankenberry to the roof of my mouth as I eat it every morning for breakfast, but it doesn't appear to do jack for CH, so not recommended.

Bob so has it going on in that pic, even right down to the SOCKS.

It looks like we could go ask Alice - I think I spy her near the upper right corner of that pic...

Nice tip for affordability there, and nice work with stretching out those doses.

@Baby Moth, as evidenced by @BoscoPiko's reply, you sure came to the right place! Since Bosco covered the big stuff very nicely, I'll just follow with a bit of additional color: If left alone, or treated with certain pharmaceuticals it could, yes, but IT'S NOT GOING TO because you've happened upon the Blue Banner, D3 regimen, etc., that often enable us to prevent entire cycles - a big and most welcome deal. Great that you've had the O2 prescribed. It can be essential to know that high flow/non rebreather mask O2 can really make it work great if it isn't 100% working to abort attacks when following a typical low flow etc. prescription.

Best of results to you @gegibsonjr! Other CH'ers here have had successful back surgery - ready for you to join that club!

I've nothing to add except an endorsement for the impressively condensed best of the best advice already offered.

Just piping in to back @CHfather up on the typical effectiveness of that 60 mg pred level in a burst/taper (then of course watch out for a return of attacks when the dose gets down to around the 40 mark or so).

You got that right @BoscoPiko, and it's also the real world experience of some CH'ers here, one of whom described it as something like a "reverse survival instinct" that gabapentin can spur. It is weird indeed, and can be experienced as not having any sort of "I want to kill myself because I can't take it anymore" component, but more like a calm and nonchalant "it would be very right to turn the lights off permanently right now" feeling, with no emotion. That said, I'm one of the few and far between whose CH has benefitted from the 'ol gabby, where it cut the number of attacks per day in a raging high cycle in half for me, which in turn made it possible for me to abort every single attack that did break through, and that was a really big deal. I'd advise anyone on the gab to watch out for the weird thoughts/feelings, be prepared to recognize them as the drug talking, and to fully ignore them.

Hi @gegibsonjr, what @Shaun brearley said, and this is not exactly an additional suggestion, more just a mention in case you haven't seen this discussed before - vaped DMT is proving to be an especially effective CH abortive. I'm pinging @spiny here because she knows all too well the ins and outs of back surgery for a CH'er and may have some pointed advice on what to demand in the anesthesia dept. Heck for that matter, the legendary and god-like @Dallas Denny just had major neck surgery, and could conceivably have a pointer. Gee, everyone is doing it - even our own bum also god-like @jon019 may know a thing or 3 about CH/back surgery. (FYI, @jon019 was referred to as a bum for a sec there in a term of endearment American sense, not the UK meaning)

@Justin S , strategies for busting with psychedelics are discussed aplenty in our CH message boards such as https://clusterbusters.org/forums/forum/8-theory-implementation/, to which you are cordially invited. Spoiler alert: Microdosing generally isn't considered effective enough (larger-than-micro-doses are typically recommended). Not to detract at all from the value of a direct consult with @MoxieGirl for anyone who can land one!

+1 for the cluster gallows humor.

Agree with ShaunPiko, but will add.....er, wait a minute, they really went full nutshell on it, so I just have to agree with no real need to add anything. (OK, this has also partly been about finding some way to interject the term 'ShaunPiko' into the conversation.)

Each of us could have been looking a lot better after that way overdone rager of a booze fueled 'Survey Complete Partayyyy'. The last thing I remember is repeatedly shouting "I'M A CLUSTER BUSTING MICK JAGGER, MOTHERF**KERS!!!" while vigorously strutting in the middle of the highway - that was probably around the time law enforcement got involved.

I took the survey and am now strutting around all proudly and junk as a result. Please everyone take this survey thang.

Can see that dad was making sure to stay between her and the "deep end".

She's having a blast! Is that some manner of doggie life jacket she has on? If so, seems like a good idea for aiding with floatation for an older dog.