didgens
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Everything posted by didgens
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Daniel Radcliff is coming out in the open a bit mo
didgens replied to Fabalicious's topic in General Board
my thinking is that he has lots of $ and no shortage of doctors seeing to his care. he probably does what ever they tell him and is doing fine enough right now so that its not a bother to him. otherwise I think we would have heard more. I think he mentioned hes on veripemil or similar. ( I know I spelled that wrong). -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
Hi Cody ,, I am more interested in folks Prolactin levels which can be elevated by something other than a pituitary tumor and may for what ever reason be elevated in CH sufferers. Worth getting a blood test just to look see. -
Spinal Tap ? another weird poll by yours truly
didgens replied to didgens's topic in Research & Scientific News
OMG .. I am so slow .. that took quite a while for me to get it .. LOL thanks for the laugh today -
Spinal Tap ? another weird poll by yours truly
didgens replied to didgens's topic in Research & Scientific News
so the clusters came first ? -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
seriously this is it so below are some stated ways to up dopamine naturally ,, which also might fit as there is someone here that has totally altered his diet which he says is helping, somewhere else I read about a person that deprives them selves from sleeping completely for 24 hours and it has helped .. but I don't know about the exercise bit. http://www.wikihow.com/Increase-Dopamine -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
so maybe anything that increases dopamine might help ? no really ,, im going to stop now .. -
looks like there was some parallel research going on here ,, cool !!
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ok so what the heck .. I just created a thread on prolactin ,, you can read it here. https://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1423259601
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anybody here know if they were subjected to a spinal tap at any point in their lives ? thanks
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Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
ok i'll stop now have a good evening everyone ! -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
sooo .. (this is for my benefit .. sometimes I bounce the ball but don't follow it) Vitamin D increases the release of Dopamine ,, which restrains the release of Prolactin which at high levels can produce Cluster Headaches. aaaannddd since Psilocybin increases the dopamine levels this might fit.. -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
so to much prolactin can cause hypogonadism (low testerone) some here I know have found relief from upping testerone levels. ok after finding the below maybe folks can go get their prolactin levels checked huh ?? The rate limiting step in dopamine synthesis is the enzyme tyrosine hydroxylase. Insufficient levels of vitamin D inhibit tyrosine hydroxylase, resulting in a disturbance in the dopamine pathway. Vitamin D increases the release of dopamine. -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
additional info - a possible explanation for your hypothalamus connection. http://www.touchendocrinology.com/system/files/private/articles/8311/pdf/hansen.pdf -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
IV. Causes: Medications A.See Medication Causes of Hyperprolactinemia Causes: Non-Neoplastic A.Afferent Neural Stimulation 1.Mechanisma.Chest wall Sensory Nerve signal passed via spinal cord to hypothalamus b.Signal reduces Dopamine levels, which in turn generate less inhibition of Prolactin secretion Hypothyroidism: Increased prolactin levels are often seen in people with hypothyroidism, and doctors routinely test people with hyperprolactinemia for hypothyroidism. Breast stimulation can modestly increase the amount of prolactin in the blood. Chest wall trauma (for example, an injury from a car steering wheel after an accident) can lead to increased levels of prolactin. Marijuana use is also a well documented cause of elevated levels of prolactin. -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
by the way an H2 blocker is an over the counter ant-acid -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
since many CH'rs are smokers does the body recognize this as chest wall trauma ,, anyone here have their prolactin levels checked ?? be willing to try Cabergoline for a few months ? curious as always -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
and yet more .. so ok ,, I start thinking ,, you know my son had a collapsed lung at birth.. would the raised prolactin go back that far .. and was his cholic not cholic but CH's night after night ??? What Abnormal Results Mean People with the following conditions may have high prolactin levels: •Chest wall trauma or irritation •Hypothalamic disease •Hypothyroidism •Kidney disease •Pituitary tumor that makes prolactin (prolactinoma) •Other pituitary tumors and diseases Certain medications can also raise prolactin levels, including: •Antidepressants •Butyrophenones •Estrogens •H2 blockers •Methyldopa •Metoclopramide •Phenothiazines •Reserpine •Risperidone •Verapamil -
Cluster Like Headache - Pituitary Tumor
didgens replied to didgens's topic in Research & Scientific News
im running off down the high prolactin train ... its easy enough to get your doctor to test .. I find it interesting that the list below contains verapamil one of the weapons used against CH ... hmmm "What else can cause elevated prolactin levels? " There are a few conditions other than prolactinomas that may be associated with hyperprolactinemia. As prolactin is regulated by dopamine, medications that interfere with this substance in the brain can cause elevated prolactin levels. Drugs prescribed for psychiatric and gastrointestinal disorders may raise prolactin levels to greater than 200 ng/ ml. Other drugs that can cause mild elevations of prolactin levels include estrogens and verapamil, a drug used to treat high blood pressure. An underactive thyroid or inadequate thyroid hormone replacement can also raise prolactin levels, as can kidney disease, pregnancy, stress, and chest trauma. Causes of Hyperprolactinemia •Prolactinomas •Medications (phenothiazines, metoclopramide, risperidone, selective serotonin reuptake inhibitors, estrogens, verapamil) •Stress •Pregnancy •Hypothyroidism •Kidney disease •Chest trauma Most patients with medication-induced hyperprolactinemia will have prolactin levels between 25 and 100 ng/ml (rarely up to 250 ng/ml). If an elevated prolactin level is due to a medication, the level will usually return to normal 3-4 days after the drug is stopped. It is not possible to determine the cause of an elevated prolactin from the blood level alone. Even if you have a high prolactin level caused by a medication, do not stop any of your medications without first consulting your doctor. -
I recently read an article, attached here, regarding a 17 year old that started getting recurrent headaches for 3 years. they occurred 30 to 60 minutes after eating (??) Standard CH symptoms occurred. MRI of the brain showed a pituitary tumor growing inth the cavernous sinus. Although his prolactin levels were normal and all of his pituitary functions otherwise were normal.  Doctors gave him a glucose tolerance test and observed that the headache was in conjunction with elevations in the serum prolactin levels. The patient was given cabergoline (a dopamine agonist (side note.. psilocybin increases dopamine in the brain so maybe that's why RC seeds and shrooms fix the issue ? just a thought) from which he got relief of his symptoms. Cabergoline is a dopamine agonist. im sure this is a rare condition as sited in this article but who knows someone searching here might find it applies to them. it would appear that high prolactin levels and CH's go hand in hand in this case. anyway attached here for the read is the article. it might be worth getting prolactin levels checked by your doc in any case. A_Case_of_Postprandial_Cluster-Like_Headache_With_Prolactinoma__Dramatic_Response_to_Cabergoline.pdf
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So my son's Jan/Feb cluster period is here now
didgens replied to didgens's topic in Research & Scientific News
ok so no headaches for him now since Jan 26th , but bad hay fever sneezing ,, and normal bad allergy headaches. I really am beginning to think its environmental. 2012 Feb 8th Feb 15th 2013 Jan 27th Jan 30th 2014 Jan 2nd shadows off and on for the time we were in the mountains he also complained of wisdom teeth pain. 2015 Jan 18th Jan 22nd Jan 26th the above are just for jan/feb period -
Thank you Alan Thicke
didgens replied to ClusterHeadSurvivor's topic in Advocacy, Events and Conferences
wow !!! thanks !!! -
I was reading an article about the plaques that form in alzhiemers patients and just wondered if there was any connection. now I cant even remember where the article got to.. sometimes I follow the rabbit to far down the hole.
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also my son got one in the middle of the day last week with all the smoke in the air. so that one at lease was not sleep induced
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thanks guys !
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New Yorker - "The Trip Treatment" - Michael Pollan
didgens replied to CHfather's topic in General Board
very good !