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didgens

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Everything posted by didgens

  1. yes benedryl seems to help, and I have seen others on here that attest to it as well.
  2. yes march was bad for him. I asked if he thought he might be through it but he seems unclear.. hes noticing what I think you all call "shadows" .. or the lurker ,, I havnt asked for a few days so will see him later.
  3. nice pic batch. Have any of you ever had your doc do a blood serum allergy test when you have gone in for your regular annual blood work ? I would suggest it. I don't there is an extra charge its just another check box on the big sheet. worth a look see
  4. thanks spiny. its seems in looking at everyones pattern that everyones pattern is unique just to them. (could be the area not sure).. my son has had none in april may june or august but can change from jan this year to feb the next or feb this year to march the next, or let just have some in July for the heck of it. :-[
  5. most of the US has been in deep freeze. So If you live in a state which has been subject to these "Polar Vortecies" id be interested in a chime in. Have your CH's been quitter during this freezing/dormancy of your area or is it all the same ? thanks http://www.weather.com/health/news/worst-spring-allergy-cities
  6. an interesting article on the salient network https://www.quantamagazine.org/20131205-inside-a-brain-circuit-the-will-to-press-on/
  7. sending good energy and prayers her way.
  8. I guess my concern in all of this is that they are still treating the symptoms without finding the cause. this always troubles me. :-[
  9. I have now read several accounts of injections into the forehead or plastic surgery in that area reliving the pain. interesting.
  10. my husband is battling the C himself. I hope he can get to a big city hospital where they have all the big guns to fight with. I will keep him in my prayers.
  11. does that mean that those that are episodic (like my son) are getting hit this spring/month (like my son) .. whos had quite a few this month ?
  12. I also wanted to add that he said something weird to me. He said I didn't catch it in time. I said "what do you mean catch it in time?" he said if I can feel it coming on and I sit up I can stop it or make it less severe. ??? WTH ??
  13. and bam my son gets hit trying to take a nap in his car between classes. he knows this is a trigger for him ..arg
  14. or pituitary ,, can you have them check your prolactin levels ?? I've been waiting for someone to get this checked and report back ? thanks
  15. im not in support of this person ,, I don't know anything other than what you all have read on the internet. I do however wonder about surface nerves being partly to blame as there are those on this site that have received a modicum of relief with botox injections which to me indicates that the problems are not in the brain or at least can be addressed in several different ways. ie. you can medication for a tension headache,, or get massage, or get acupuncture.. more than one way to skin a cat so to speak.
  16. oh ... I just posted on General Tab as well !!! very exciting !
  17. did anyone else get this email today ???? Chicago, March 2nd, 2015 - As some of you may know from our conference last year, Clusterbusters has been in close dialogue with Eli Lilly and Company regarding the following release. Among our priorities, has been to provide them with what we felt was important input from the patient community. We are very pleased to be involved in this and will be providing additional information to our membership as it becomes available. Eli Lilly and Company has informed Clusterbusters that the company plans to start a research program for episodic and chronic cluster headache. Lilly is excited to start this program and work with Clusterbusters to actively help enroll patients. The company will provide more information, including the locations of participating study sites, to Clusterbusters and on the web at www.clinicaltrials.gov (expected in late March). Lilly expects the program to begin actively enrolling in late April. At this time, please do not make any changes to your current medical treatment or otherwise to try to qualify for this study.
  18. ,, I too drift away when my son is pain free. I think its natural to do the "normal things" when one is feeling normal. its nice to forget all the other unpleasant bits. I wonder if half the US being under deep freeze has caused the beast to be quiet in some ? food for thought.
  19. ok .. I feel like an episode of seinfield. I really don't have anything new .. I miss you guys and just wanted to say Howdy !! so HOWDY !! I hope you are all getting some relief .. im reading posts but don't have any input. I did download a whole boatload of medical papers I still have to crawl through. anyway ,, just sending a smile to everyone today !
  20. http://london.ctvnews.ca/london-sufferer-raising-awareness-about-cluster-headaches-1.2228262 http://www.wfsb.com/story/28065645/new-study-could-combat-cluster-headaches
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